CreakyJoints®
@creakyjoints.bsky.social
Community of people living with arthritis & rheumatic disease.
EST 1999.
EST 1999.
#ChronicIllness Thanksgiving reminders. A thread:
November 26, 2025 at 10:17 PM
#ChronicIllness Thanksgiving reminders. A thread:
Talking about vaccines at the Thanksgiving table? 🦃
Our latest episode shares clear, compassionate tips to help protect people with chronic illness or who are immunocompromised.
For many, vaccines aren’t political — they’re personal.
Listen: ghlf.org/the-health-a...
#Thanksgiving #Vaccines
Our latest episode shares clear, compassionate tips to help protect people with chronic illness or who are immunocompromised.
For many, vaccines aren’t political — they’re personal.
Listen: ghlf.org/the-health-a...
#Thanksgiving #Vaccines
November 25, 2025 at 10:03 PM
Talking about vaccines at the Thanksgiving table? 🦃
Our latest episode shares clear, compassionate tips to help protect people with chronic illness or who are immunocompromised.
For many, vaccines aren’t political — they’re personal.
Listen: ghlf.org/the-health-a...
#Thanksgiving #Vaccines
Our latest episode shares clear, compassionate tips to help protect people with chronic illness or who are immunocompromised.
For many, vaccines aren’t political — they’re personal.
Listen: ghlf.org/the-health-a...
#Thanksgiving #Vaccines
"You're always canceling plans" 🙄
My daily schedule:
My daily schedule:
November 25, 2025 at 8:12 AM
"You're always canceling plans" 🙄
My daily schedule:
My daily schedule:
Mahsa Pazokifard shares her powerful story of spending years searching for answers before finally being diagnosed with IgG4-Related Disease — and how self-advocacy became her lifeline.
Listen to the full episode: ghlf.org/the-health-a...
#RareDisease #IgG4RD #PatientAdvocacy
Listen to the full episode: ghlf.org/the-health-a...
#RareDisease #IgG4RD #PatientAdvocacy
November 23, 2025 at 9:49 PM
Mahsa Pazokifard shares her powerful story of spending years searching for answers before finally being diagnosed with IgG4-Related Disease — and how self-advocacy became her lifeline.
Listen to the full episode: ghlf.org/the-health-a...
#RareDisease #IgG4RD #PatientAdvocacy
Listen to the full episode: ghlf.org/the-health-a...
#RareDisease #IgG4RD #PatientAdvocacy
In this week’s episode of #TheHealthAdvocates, Steven breaks down how the government finally reopened, why ACA subsidies were at the center of the standoff, and what it all means for public health, chronic illness care, and your coverage in 2026.
Tune in: ghlf.org/the-health-a...
Tune in: ghlf.org/the-health-a...
November 21, 2025 at 9:14 PM
In this week’s episode of #TheHealthAdvocates, Steven breaks down how the government finally reopened, why ACA subsidies were at the center of the standoff, and what it all means for public health, chronic illness care, and your coverage in 2026.
Tune in: ghlf.org/the-health-a...
Tune in: ghlf.org/the-health-a...
We’re excited to introduce GetMyCOVIDVax, a new tool from GHLF designed to help patients and health care providers understand state-by-state access to COVID-19 vaccines at local pharmacies.
Use the tool and explore our updated Vaccine Hub at ghlf.org/vaccines
#Vaccines #COVID19 #PublicHealth #GHLF
Use the tool and explore our updated Vaccine Hub at ghlf.org/vaccines
#Vaccines #COVID19 #PublicHealth #GHLF
November 18, 2025 at 8:57 PM
We’re excited to introduce GetMyCOVIDVax, a new tool from GHLF designed to help patients and health care providers understand state-by-state access to COVID-19 vaccines at local pharmacies.
Use the tool and explore our updated Vaccine Hub at ghlf.org/vaccines
#Vaccines #COVID19 #PublicHealth #GHLF
Use the tool and explore our updated Vaccine Hub at ghlf.org/vaccines
#Vaccines #COVID19 #PublicHealth #GHLF
RSV isn’t just a “kids’ virus.”
In our season finale of Informed Immunity, we break down what’s new for 2025 and how to work RSV protection into your fall vaccine plan. Listen to the full episode via Link in Bio or go to: ghlf.org/informed-imm...
#Vaccines #RSV
In our season finale of Informed Immunity, we break down what’s new for 2025 and how to work RSV protection into your fall vaccine plan. Listen to the full episode via Link in Bio or go to: ghlf.org/informed-imm...
#Vaccines #RSV
November 17, 2025 at 10:36 PM
RSV isn’t just a “kids’ virus.”
In our season finale of Informed Immunity, we break down what’s new for 2025 and how to work RSV protection into your fall vaccine plan. Listen to the full episode via Link in Bio or go to: ghlf.org/informed-imm...
#Vaccines #RSV
In our season finale of Informed Immunity, we break down what’s new for 2025 and how to work RSV protection into your fall vaccine plan. Listen to the full episode via Link in Bio or go to: ghlf.org/informed-imm...
#Vaccines #RSV
New episode of #TheHealthAdvocates:
Dr. Tyler Evans discusses what pandemics reveal about poverty, politics, climate, and public trust — and why science alone isn’t enough.
Tune in: ghlf.org/the-health-a...
#PublicHealth #HealthEquity
Dr. Tyler Evans discusses what pandemics reveal about poverty, politics, climate, and public trust — and why science alone isn’t enough.
Tune in: ghlf.org/the-health-a...
#PublicHealth #HealthEquity
November 17, 2025 at 8:02 PM
New episode of #TheHealthAdvocates:
Dr. Tyler Evans discusses what pandemics reveal about poverty, politics, climate, and public trust — and why science alone isn’t enough.
Tune in: ghlf.org/the-health-a...
#PublicHealth #HealthEquity
Dr. Tyler Evans discusses what pandemics reveal about poverty, politics, climate, and public trust — and why science alone isn’t enough.
Tune in: ghlf.org/the-health-a...
#PublicHealth #HealthEquity
The data is in: RSV vaccines are doing exactly what they’re meant to do.
In our season finale of Informed Immunity, infectious disease experts explain why this matters so much for older adults and people living with chronic conditions.
Tune in: ghlf.org/informed-imm...
#Vaccines
In our season finale of Informed Immunity, infectious disease experts explain why this matters so much for older adults and people living with chronic conditions.
Tune in: ghlf.org/informed-imm...
#Vaccines
November 17, 2025 at 12:52 AM
The data is in: RSV vaccines are doing exactly what they’re meant to do.
In our season finale of Informed Immunity, infectious disease experts explain why this matters so much for older adults and people living with chronic conditions.
Tune in: ghlf.org/informed-imm...
#Vaccines
In our season finale of Informed Immunity, infectious disease experts explain why this matters so much for older adults and people living with chronic conditions.
Tune in: ghlf.org/informed-imm...
#Vaccines
Awareness matters — we’re proud to highlight the work of the TED Community Organization, a 501(c)(3) nonprofit that educates, supports, and connects everyone affected by Thyroid Eye Disease.
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
TED Community Organization | Thyroid Eye Disease Education & Emotional Support
The TED Community Organization is a 501c3 nonprofit dedicated to Education, Support and Connection for patients with Thyroid Eye Disease. And a trusted source of collaboration among TED researchers, h...
tedcommunity.org
November 15, 2025 at 11:02 PM
Awareness matters — we’re proud to highlight the work of the TED Community Organization, a 501(c)(3) nonprofit that educates, supports, and connects everyone affected by Thyroid Eye Disease.
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
Learn more and join the movement: tedcommunity.org
#TEDAwarenessWeek #ThyroidEyeDisease
On a new episode, we break down “TrumpRx,” PBMs, rebates, and how drug prices are really set — plus 4 reforms needed to ensure patients actually pay less.
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
November 15, 2025 at 10:27 PM
On a new episode, we break down “TrumpRx,” PBMs, rebates, and how drug prices are really set — plus 4 reforms needed to ensure patients actually pay less.
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
Watch here: ghlf.org/healthcarema...
#HealthAdvocacy #Trump
COVID and flu season are here, and staying protected shouldn’t be complicated.
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
November 15, 2025 at 9:54 PM
COVID and flu season are here, and staying protected shouldn’t be complicated.
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Take a moment today to make a plan for your annual COVID shot — your future self will thank you. 💙
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
For people living with chronic conditions or weakened immune systems, COVID is still a real risk.
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
November 14, 2025 at 9:36 PM
For people living with chronic conditions or weakened immune systems, COVID is still a real risk.
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Boosters, masking in high-risk settings, and staying informed can make a meaningful difference in staying protected this season. 💛
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
COVID isn’t gone — and protection from past vaccines or infections fades over time. This season’s updated booster is designed to help reduce viral load, lower your risk of severe illness, and protect the people you love.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
November 14, 2025 at 9:09 PM
COVID isn’t gone — and protection from past vaccines or infections fades over time. This season’s updated booster is designed to help reduce viral load, lower your risk of severe illness, and protect the people you love.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork #COVID19
We’re conducting a confidential survey to learn from people who use subcutaneous injections as part of their HIV treatment. Your experience can help researchers and healthcare providers better understand what matters most to patients.
Take the survey here:
ghlf.org/injectables-...
#HIV
Take the survey here:
ghlf.org/injectables-...
#HIV
November 14, 2025 at 8:52 PM
We’re conducting a confidential survey to learn from people who use subcutaneous injections as part of their HIV treatment. Your experience can help researchers and healthcare providers better understand what matters most to patients.
Take the survey here:
ghlf.org/injectables-...
#HIV
Take the survey here:
ghlf.org/injectables-...
#HIV
OPPORTUNITY:
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
November 14, 2025 at 8:36 PM
OPPORTUNITY:
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
Are you currently taking a subcutaneous injection to treat cancer? We’re conducting a survey study to better understand what the experience of using injectable medication is like. Your input may help improve support for others.
Take the survey here:
ghlf.org/injectables-...
#cancer
LISTEN TO YOUR EYES. This week is Thyroid Eye Disease (TED) Awareness Week — November 10–16.
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
Thyroid Eye Disease | Information on Symptoms, Treatment, and Resources
Discover how Thyroid Eye Disease can affect you or your loved one and find information on signs and symptoms, treatment, and specialists.
www.thyroideyes.com
November 13, 2025 at 9:58 PM
LISTEN TO YOUR EYES. This week is Thyroid Eye Disease (TED) Awareness Week — November 10–16.
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
💙 Visit to learn more: www.thyroideyes.com
#ThyroidEyeDisease #TEDAwarenessWeek
@amgen.bsky.social
After 34 years living with lupus, Julie Norris found her strength through advocacy and hope. Her new treatment changed her life — and she’s using her voice to help others find theirs.
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
November 13, 2025 at 9:43 PM
After 34 years living with lupus, Julie Norris found her strength through advocacy and hope. Her new treatment changed her life — and she’s using her voice to help others find theirs.
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
“Knowledge is power”
Latest #PatientPrepRheum episode out now, tune in: creakyjoints.org.au/patientprepr...
#lupus
What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient: www.ophthalmologytimes.com/view/what-im...
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient | Ophthalmology Times - Clinical Insights for Eye Specialists
Ophthalmology Times connects eye care professionals with surgery, imaging, gene therapy, & diagnostic advances to enhance clinical and patient care.
www.ophthalmologytimes.com
November 12, 2025 at 9:47 AM
What ‘I’m Fine’ Really Means: An Open Letter from a Thyroid Eye Disease (TED) Patient: www.ophthalmologytimes.com/view/what-im...
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
#ThyroidEyeDisease #TEDAwarenessWeek #HealthcareAdvocacy #PatientVoices
Happy Veterans Day! We are grateful for your service and the sacrifices you've made. Thank you!
#VeteransDay
#VeteransDay
November 11, 2025 at 11:04 PM
Happy Veterans Day! We are grateful for your service and the sacrifices you've made. Thank you!
#VeteransDay
#VeteransDay
Do you or someone you know have eczema (atopic dermatitis)?
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
November 11, 2025 at 10:30 AM
Do you or someone you know have eczema (atopic dermatitis)?
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
Your experiences matter! Take our short survey to help researchers understand what life is really like for people living with this condition.
Get started: ghlf.org/inflammatory...
#EczemaAwareness #ChronicIllnessCommunity #PatientVoices
How inflammatory Arthritis can really affect marriage and relationships, according to 8 couples coping with it:
creakyjoints.org/support/how-...
#chronicillness #arthritis
creakyjoints.org/support/how-...
#chronicillness #arthritis
How Inflammatory Arthritis Can Really Affect Marriage and Relationships, According to 8 Couples Coping with It
Couples share candid thoughts about how having arthritis affects your relationship both negatively and positively.
creakyjoints.org
November 11, 2025 at 10:13 AM
How inflammatory Arthritis can really affect marriage and relationships, according to 8 couples coping with it:
creakyjoints.org/support/how-...
#chronicillness #arthritis
creakyjoints.org/support/how-...
#chronicillness #arthritis
Open enrollment for 2026 is underway — and for people living with chronic or rare diseases, choosing the right coverage matters more than ever.
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
November 9, 2025 at 12:20 AM
Open enrollment for 2026 is underway — and for people living with chronic or rare diseases, choosing the right coverage matters more than ever.
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
Steven Newmark explains what’s new this year and how to make informed decisions about your plan.
🎧 Tune in: ghlf.org/the-health-a...
COVID isn’t over — but your protection doesn’t have to be, either.
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
November 7, 2025 at 8:45 AM
COVID isn’t over — but your protection doesn’t have to be, either.
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
Everyone 6 months and older can get the new 2025–2026 COVID vaccine, available in mRNA and protein-based forms. Stay protected and help prevent long COVID this season.
Learn more: ghlf.org/vaccines/
#InformedImmunity #VaccinesWork
🌟 Call for Participants: Gout Patient Advisory Board 🌟
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
November 7, 2025 at 8:30 AM
🌟 Call for Participants: Gout Patient Advisory Board 🌟
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy
Do you live with gout? Help shape resources, education, and support programs that reflect the real experiences of people managing gout.
Visit www.research.net/r/goutadvisory to learn more and apply.
#GoutAwareness #PatientVoice #PatientAdvocacy