Lightnews — Scholar-powered news

Cystic Fibrosis Trust

@cysticfibrosis.org.uk

280 followers 33 following 49 posts

We're dedicated to uniting for a life unlimited for those living with cystic fibrosis. Our social & Helpline teams monitor our accounts between 9-5 weekdays. cysticfibrosis.org.uk

Posts Media Videos Starter Packs

Pinned

Cystic Fibrosis Trust @cysticfibrosis.org.uk · May 20

Hi! 👋🏻 We’re Cystic Fibrosis Trust, working to make sure everyone with CF can live a life unlimited.

We're new to Bluesky but you can expect stories, updates and ways to get involved 💛

To find out more head to our website or feel free to say hi!

➡️ www.cysticfibrosis.org.uk

Cystic Fibrosis Trust Homepage | CF Trust

www.cysticfibrosis.org.uk

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 13h

Last week saw scientists and clinicians come together for #UKCFC, the UK's biggest conference dedicated to CF research, from biomedical science to improving clinical care. 🔬

It was inspiring to see the research community uniting to bring us closer to a life unlimited for everyone with CF. 💛

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 5d

Are you looking for a rewarding new role, where you can work hard, have fun and really see the impact of your work?

We're currently recruiting for a new vacancy on a part time basis:

⭐ Information Officer

➡️ https://ow.ly/iNFM50W1vsg

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 6d

"Even with the huge advancements in recent decades with Kaftrio, it is reassuring to know that researchers are not stopping; if anything, they're pushing on faster and with more determination."

Lucy Baxter shares some of her key takeaways from day 1 of #UKCFC.

➡️ https://ow.ly/xRGI50X5KLS

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 6d

Thank you for joining us at UKCFC Peter!

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 7d

Dr Jamie Duckers shares his insights from day 1 of #UKCFC! We’ll be back here and over on our Instagram stories tomorrow to cover day 2! 🔬
#cysticfibrosis

1 2

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 7d

An insight from Professor Daniel Peckham on conference highlights so far! #UKCFC #cysticfibrosis

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 7d

"There's a clear call for CF-specific pregnancy guidance."

Dr Imogen Felton delivers a powerful presentation on the Matriarch study, which is answering questions on pregnancy, maternal and infant health for people with CF.

You can hear more in our CForYourself podcast episode on pregnancy and CF

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 7d

PhD student Jonathan, a researcher at our MAGNIFY Strategic Research Centre with his poster at #UKCFC, exploring the use of lung MRI in the management and monitoring of CF

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 7d

This morning we caught up with Lorna Allen, our Community Involvement and Engagement Manager, to find out about some of the research she’s most excited to hear about at #UKCFC this year!

Reposted by Cystic Fibrosis Trust

alexhorsley.bsky.social @alexhorsley.bsky.social · 7d

Great opening talk by Prof Gwyneth Davies of GOSH at #UKCFC highlighting the research goals and challenges for CF

1 3

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 7d

Welcome to day 1 of UKCFC 2025! 🔬

We have kicked off this year's conference with a Welcome an Introduction from conference chair, Dr Gwyneth Davies.

If you're attending in person or online, we'd love to hear from you!

Tag us in your stories on Instagram or here on Bluesky!

1 3

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 8d

Today marks the one year anniversary of our CF Lung Health Network 🎉

Find out more about this area of research on our website now!

➡️ https://ow.ly/zlz250X4nka

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 15d

Do you have a story about how antibiotics have made a difference in your lives or the lives of your loved ones?

Your story and photo could be up in lights at #PiccadillyCircus in London during #WAAW25.

Visit the Fleming Initiative to find out more.

➡️ www.fleminginitiative.org/thank-you-an...

1 1

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 19d

Together we’re moving closer to achieving a life unlimited for people with CF. 💛

Click the link to find out more about our research funding process.

➡️ www.cysticfibrosis.org.uk/research/sup...

#peerreviewweek #prw2025 #cftrust #cysticfibrosis

(3/3)

Our funding process and governance - Cystic Fibrosis Trust

Information on our funding process and governance for applications for research funding from the Cystic Fibrosis Trust.

www.cysticfibrosis.org.uk

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 19d

This week is #peerreviewweek – a good time to say a HUGE thank you to all of the #researchers who have kindly given up their time and shared their expertise with us. There were over 50 in the last year alone!

(2/3)

Our funding process and governance - Cystic Fibrosis Trust

Information on our funding process and governance for applications for research funding from the Cystic Fibrosis Trust.

www.cysticfibrosis.org.uk

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 19d

Every time a #researcher applies to the Trust for money, or shares a report for a grant that is in progress, three or four other researchers working in a similar area review their applications or reports.

It’s a process that is known as #peerreview. And it is all done on a voluntary basis.

(1/3)

Cystic Fibrosis Trust @cysticfibrosis.org.uk · 28d

In 2017, we established the Clinical Trials Accelerator Platform to support the delivery of a wide range of CF clinical research studies across the UK.

If you are curious to know more about how CTAP helps people to take part in research, check out our 2025 Impact Report.

➡️ ow.ly/yvZe50WU0Ox

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Sep 3

Do you have questions about your career in research? Want tips and advice from others who work in this area?

Why not sign up to attend the latest in our Coffee and Careers webinar series on Wednesday 10 September.

➡️ ow.ly/Zwze50WNHCp

#cysticfibrosis #cftrust #researchwednesday #researcher

1 2

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Aug 14

Our Coffee and Careers webinars are a chance to listen to conversations with researchers sharing tips, advice, and anecdotes about following a career in research.

Join us on Wednesday 10 September for a conversation with Dr Guy Moss, Associate Professor in Neuroscience

➡️ ow.ly/b25w50WG1C8

1 1

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Aug 13

We will work together to find out more about future health challenges that people with CF might face, and how we might tackle them.

Click the link to read the announcement in full.

➡️ www.cysticfibrosis.org.uk/news/cystic-...

Cystic Fibrosis Trust partners with The British Society for Research on Ageing

As people with CF live longer, we have partnered with The British Society for Research on Ageing (BSRA) to help us achieve our research goal to enable people with CF to live longer, healthier lives.

www.cysticfibrosis.org.uk

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Aug 13

Building effective research partnerships is vital to help us achieve a life unlimited for people with CF.

This #ResearchWednesday we’re announcing a new partnership with The British Society for Research on Ageing @bsrageing.bsky.social

A quote from Claire Walter, Patient and Public Involvement and Engagement Partnership Manager at Cystic Fibrosis Trust: "We’re delighted to have formed a new partnership with The British Society for Research on Ageing. Research into growing older and ageing with CF is a top research priority for people living with CF and we’re keen to work with other organisations to help us address it."

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Jul 28

Want to find out what's new in #cysticfibrosis research? Join us and your peers at UK Cystic Fibrosis Conference in London on 1–2 October 2025.

Our early bird rate ends soon, so make sure you book before 5pm on 31 July to secure your place!

➡️ www.cysticfibrosis.org.uk/about-us/con...

Reposted by Cystic Fibrosis Trust

Dr Rebecca Spencer @rebecca-spencer.bsky.social · Jul 9

*Research opportunity*

Are you an adult with cystic fibrosis who has had cancer?

If so, please consider taking part in a research interview about your experiences of getting a cancer diagnosis and any cancer treatment that you had or are having. Thank you.

1 3

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Jul 9

Over the next 5 years, our Translational Innovation Hub Network will address challenges around finding new lung infection treatment options, detecting and treating flare-ups, and developing new ways to diagnose infections.

➡️ cysticfibrosis.org.uk/innovation-hub-network

#cysticfibrosis #cftrust

1 3 5

Cystic Fibrosis Trust @cysticfibrosis.org.uk · Jun 25

"I’m not thinking about where I could be limited by CF. For the first time, challenges are logistical, rather than health-based."

We spoke to Declan about running an ultra-marathon, being a science teacher, and changes in his life since taking Kaftrio.

➡️ ow.ly/VshL50WfWf3

#cysticfibrosis #cftrust

1 1