Dany Wan (she/her)
@danywan.bsky.social
Just trying to get my shit together.
Pinned
Hi semua. Dany here! I am a musician, writer and artist.
Also a MECFS/fibromyalgia warrior.
My chronic illness(es) are my full-time job.
Experienced in fields of chronic fatigue and pain, depression, panic disorder and complex PTSD- amongst others.
Watch me skrrt skrrt on my wheelchair yo👩🏼🦽
Also a MECFS/fibromyalgia warrior.
My chronic illness(es) are my full-time job.
Experienced in fields of chronic fatigue and pain, depression, panic disorder and complex PTSD- amongst others.
Watch me skrrt skrrt on my wheelchair yo👩🏼🦽
Tin: Hujan deras. Baru je berhenti.
Me: Oh ye ke
Tin: Tadi menyapu pakai payung
Me: Eh ye ke?
Tin: La iya la!
Me: Oh ye ke
Tin: Tadi menyapu pakai payung
Me: Eh ye ke?
Tin: La iya la!
February 6, 2026 at 2:10 AM
Tin: Hujan deras. Baru je berhenti.
Me: Oh ye ke
Tin: Tadi menyapu pakai payung
Me: Eh ye ke?
Tin: La iya la!
Me: Oh ye ke
Tin: Tadi menyapu pakai payung
Me: Eh ye ke?
Tin: La iya la!
Wow. I can't believe it's been almost a year since I last spoke to you. That tugs at my heart a little. Oof. Pedih.
January 22, 2026 at 5:49 AM
Wow. I can't believe it's been almost a year since I last spoke to you. That tugs at my heart a little. Oof. Pedih.
Tired. Sakit. Can I fast forward through the flare up and PEM and get to the better days again?
January 14, 2026 at 7:57 AM
Tired. Sakit. Can I fast forward through the flare up and PEM and get to the better days again?
Sometimes my brain replaces words with other words when I can't remember the words. Which is why I said Guatemala instead of Uluwatu. I think if I took a moment to think before blurting out the wrong word, it might help. But I might also forget what I was trying to remember
January 13, 2026 at 4:19 PM
Sometimes my brain replaces words with other words when I can't remember the words. Which is why I said Guatemala instead of Uluwatu. I think if I took a moment to think before blurting out the wrong word, it might help. But I might also forget what I was trying to remember
Part of my brain fog is misspelling and grammar mistakes. Perhaps I am paying for the sins of kid-me who was always a stuck up bitch about spelling and grammar :D
December 2, 2025 at 8:38 AM
Part of my brain fog is misspelling and grammar mistakes. Perhaps I am paying for the sins of kid-me who was always a stuck up bitch about spelling and grammar :D
Sometimes when giving feedback about things or when talking serious talk- the language I fall back to can sound quite curt. And harsh. And I think I've discovered why. It was definitely medical school related.
December 2, 2025 at 8:37 AM
Sometimes when giving feedback about things or when talking serious talk- the language I fall back to can sound quite curt. And harsh. And I think I've discovered why. It was definitely medical school related.
Pisces: stupidity runs the world
December 2, 2025 at 4:50 AM
Pisces: stupidity runs the world
There is a certain way I feel. When people touch me or my wheelchair while trying to help me. It feels... I feel exposed. Vulnerable. I think it's linked to how I was not asked for my consent. And like. I have a system! Sometimes I do need help though. But like. Is this the way?
November 29, 2025 at 5:14 PM
There is a certain way I feel. When people touch me or my wheelchair while trying to help me. It feels... I feel exposed. Vulnerable. I think it's linked to how I was not asked for my consent. And like. I have a system! Sometimes I do need help though. But like. Is this the way?
My sister posed a very interesting question to me today, after I asked her what was it like, having a disabled sister? (Me) I need to brain it.
November 27, 2025 at 5:48 AM
My sister posed a very interesting question to me today, after I asked her what was it like, having a disabled sister? (Me) I need to brain it.
My vivoactive 5 watch has been telling me for days that I am having high stress days. I do feel... Overwhelmed. And fatigued. And a bit stuck, a bit lost. Not quite sure what to do about it.
November 27, 2025 at 5:46 AM
My vivoactive 5 watch has been telling me for days that I am having high stress days. I do feel... Overwhelmed. And fatigued. And a bit stuck, a bit lost. Not quite sure what to do about it.
Started singing lessons again. With my teacher who helped shape me into the singer I am today. Showed him an original song I wrote, a song I wrote in the pits of my depression several years ago
November 27, 2025 at 5:44 AM
Started singing lessons again. With my teacher who helped shape me into the singer I am today. Showed him an original song I wrote, a song I wrote in the pits of my depression several years ago
Who would have thought that I was such a free spirit? Though I do remember mama telling me that when I was a kid, she and dad thought I would be a hippy.
November 24, 2025 at 11:47 AM
Who would have thought that I was such a free spirit? Though I do remember mama telling me that when I was a kid, she and dad thought I would be a hippy.
Refilling my medication box like it's a game of congkak
November 9, 2025 at 3:16 PM
Refilling my medication box like it's a game of congkak
Reposted by Dany Wan (she/her)
Every now & again I really wish I could have a strong drink.
I can’t ‘cause I like that my meds work & have no desire to screw with that, but every now & again I just have
One
Of
Those
Days
I can’t ‘cause I like that my meds work & have no desire to screw with that, but every now & again I just have
One
Of
Those
Days
November 5, 2025 at 1:58 AM
Every now & again I really wish I could have a strong drink.
I can’t ‘cause I like that my meds work & have no desire to screw with that, but every now & again I just have
One
Of
Those
Days
I can’t ‘cause I like that my meds work & have no desire to screw with that, but every now & again I just have
One
Of
Those
Days
Le Partner is deep sleep snoring and while it is very loud, I feel quite privileged to be able to experience this
November 5, 2025 at 4:04 PM
Le Partner is deep sleep snoring and while it is very loud, I feel quite privileged to be able to experience this
Too many books too little time
November 5, 2025 at 4:03 PM
Too many books too little time
Me: I'm gonna be a grandma prankster
Sastera: you can be half of that. Grandma.
Sastera: you can be half of that. Grandma.
October 29, 2025 at 6:41 AM
Me: I'm gonna be a grandma prankster
Sastera: you can be half of that. Grandma.
Sastera: you can be half of that. Grandma.
Me: the only think I'll break-
Sisters: O_O
Me: -is da rulez
Sastera: I thought she was gonna say "it down"
Pisces: I thought she was gonna say "dance"
Sisters: O_O
Me: -is da rulez
Sastera: I thought she was gonna say "it down"
Pisces: I thought she was gonna say "dance"
October 28, 2025 at 1:50 PM
Me: the only think I'll break-
Sisters: O_O
Me: -is da rulez
Sastera: I thought she was gonna say "it down"
Pisces: I thought she was gonna say "dance"
Sisters: O_O
Me: -is da rulez
Sastera: I thought she was gonna say "it down"
Pisces: I thought she was gonna say "dance"
Me: I miss cheese
Sastera: Who the shit is cheese
Me: THE FOOD
Sastera: Who the shit is cheese
Me: THE FOOD
October 26, 2025 at 1:28 PM
Me: I miss cheese
Sastera: Who the shit is cheese
Me: THE FOOD
Sastera: Who the shit is cheese
Me: THE FOOD
Coming to terms with the fact that I am sick and have been for a while and will be for a while... Is always hard. I'm so tired. A moment when radical acceptance has to take a back seat to resting.
October 13, 2025 at 4:18 AM
Coming to terms with the fact that I am sick and have been for a while and will be for a while... Is always hard. I'm so tired. A moment when radical acceptance has to take a back seat to resting.
When one has a chronic illness, it's important to know that we have good days and bad days. Sometimes, within a day, we have good and bad moments. The bad moments or bad days are usually what we call flare ups.
October 7, 2025 at 7:25 AM
When one has a chronic illness, it's important to know that we have good days and bad days. Sometimes, within a day, we have good and bad moments. The bad moments or bad days are usually what we call flare ups.
Sometimes, loss is just another reminder to live.
September 29, 2025 at 11:17 AM
Sometimes, loss is just another reminder to live.
Pisces: Kakak how do you stop your mind from going blank?
Me: I don't
Me: I don't
September 23, 2025 at 7:44 AM
Pisces: Kakak how do you stop your mind from going blank?
Me: I don't
Me: I don't
Sastera: (Dungeons and dragons can be fun with the right people). Kakak for example, likes to give her characters accents
Mama: what's new?
Me: *shooketh
Mama: what's new?
Me: *shooketh
September 23, 2025 at 7:42 AM
Sastera: (Dungeons and dragons can be fun with the right people). Kakak for example, likes to give her characters accents
Mama: what's new?
Me: *shooketh
Mama: what's new?
Me: *shooketh