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dawnrichards.bsky.social
Dawn Richards, PhD
@dawnrichards.bsky.social
690 followers 840 following 160 posts
Living life with #Arthritis along for the ride. Posting & passionate about #Research, arthritis, #PatientEngagement, #PPI. Opinions my own.
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dawnrichards.bsky.social
Dawn Richards, PhD @dawnrichards.bsky.social · Jan 22
Not everyone is convinced about #PatientEngagement in research - I get that. I wrote a letter to those folks to challenge some of their thoughts and in hopes of getting them to reflect on these a bit more - www.bmj.com/content/388/.... Thanks to @bmj.com for publishing.
Dear sceptics of patient engagement in research
Dawn P Richards challenges some of the common objections to patient engagement in research I have been in a lot of spaces over the years where people were not convinced about patient engagement in re...
www.bmj.com
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Reposted by Dawn Richards, PhD
capa-aca.bsky.social
CAPA @capa-aca.bsky.social · 2d
Today is the last day to complete our survey about living with polymyalgia rheumatica (PMR)! This is your chance to share your experience and help shape access to treatment.

Learn more + add your voice: buff.ly/2LUuZry

#PMR #Kevzara #PatientInput #PatientVoice
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Reposted by Dawn Richards, PhD
ivacheung.com
🎃 Iva Cheung 🍗 @ivacheung.com · 8d
I made a li'l cookbook! *After the Feast* suggests ways to use up leftovers from your big turkey dinners.

The PDF is FREE. If you buy a print copy, $2 will support food security initiatives through the Qajuqturvik Community Food Centre.

Please spread the word! 🍗

ivacheung.com/2025/09/afte...
After the Feast: A Turkey Leftovers Cookbooklet - Iva Cheung
After a couple decades of editing and indexing cookbooks, I took a stab at writing (a small!) one. After the Feast brings together 25-ish of my favourite ways to use up the leftovers from big turkey d...
ivacheung.com
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Reposted by Dawn Richards, PhD
msmacrophage.bsky.social
Dr. Dawn Bowdish @msmacrophage.bsky.social · 18d
Hello #HamOnt! On Oct 16th I'll be at the @hamiltonlibrary.bsky.social talking about fascinating research on how vaccinations protect the aging brain. It's free, it's fun, and I would love to see you all there. Register below. @miramcmaster.bsky.social
Bites & Insights: Is dementia a vaccine-preventable condition? - MIRA
Register here
mira.mcmaster.ca
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Reposted by Dawn Richards, PhD
madhupai.bsky.social
Madhu Pai, MD, PhD @madhupai.bsky.social · 18d
In need of some inspiration this weekend?

I use these inspirational quotes in my global health courses
3 quotes with images of the authors: "The truth is, no one of us can be free until everybody is free" - Maya Angelou "My religion is very simple. My religion is kindness" - Dalai Lama "I tell my students, 'When you get these jobs that you have been so brilliantly trained for, just remember that your real job is that if you are free, you need to free somebody else. If you have some power, then your job is to empower somebody else" - Toni Morrison
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dawnrichards.bsky.social
Dawn Richards, PhD @dawnrichards.bsky.social · 18d
Thank you for sharing these🙏
Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“What we bring to the community and decision makers is that breadth of lived experience. Researchers want to partner with us because we have knowledge, experiences, and values that they don’t have.” - Neil Bertelsen #PxP25
“What we bring to the community and decision makers is that breadth of lived experience. Researchers want to partner with us because we have knowledge, experiences, and values that they don’t have.” - Neil Bertelsen
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“Like the idea of us as a global patient movement identifying institutions that claim to be doing health equity work and holding them accountable to these claims.” - Kwanele Asante #PxP25
“Like the idea of us as a global patient movement identifying institutions that claim to be doing health equity work and holding them accountable to these claims.” - Kwanele Asante #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“Expertise makes the distinction between our experience and our expertise like others on the team (e.g. a biostatistician).” - Greg Merritt
“Expertise makes the distinction between our experience and our expertise like others on the team (e.g. a biostatistician).” - Greg Merritt
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“With each passing involvement, my confidence grows in my ability and my place in the process….Crucially I can say no to project that don’t feel right, feel tokenistic, or not right for my family.” - Joel Nelson #PxP25
“With each passing involvement, my confidence grows in my ability and my place in the process….Crucially I can say no to project that don’t feel right, feel tokenistic, or not right for my family.” - Joel Nelson #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“Even though we may all live with the same disease, doctors need to know that our experiences are all different. We’re not just numbers.” - Marquetta Frost #PxP25
“Even though we may all live with the same disease, doctors need to know that our experiences are all different. We’re not just numbers.” - Marquetta Frost #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25
“You have power, you have expertise, it’s valued by lots of people. If that situation isn’t right, you can walk away and you will be valued somewhere else.” - Simon Stones #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“One voice is not enough. We need many patient voices- loud, clear, and informed, at every decision-making table.” - Josef de Guzman #PxP25
“One voice is not enough. We need many patient voices- loud, clear, and informed, at every decision-making table.” - Josef de Guzman #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“Patience, grace, and understanding that changing culture takes time. Patient engagement is fairly new and people are learning together.” - Cheslie Johnston
“Patience, grace, and understanding that changing culture takes time. Patient engagement is fairly new and people are learning together.” - Cheslie Johnston
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“A paper that sits locked on a shelf is like a locked medicine cabinet. The medicine is there, but it doesn’t reach the people who need it.” - Marie Ennis-O'Connor
“A paper that sits locked on a shelf is like a locked medicine cabinet. The medicine is there, but it doesn’t reach the people who need it.” - Marie Ennis-O'Connor
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“The problem is that doctors think they know what patients want”- “how do patients assert their authority and voice, and make doctors and researchers understand more about this?” - Nikhil Jayswal #PxP25
“The problem is that doctors think they know what patients want”- “how do patients assert their authority and voice, and make doctors and researchers understand more about this?” - Nikhil Jayswal #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“Engagement moves at the speed of trust. If you have no trust, you’ll never have engagement.” - Jeff Ordway #PxP25
“Engagement moves at the speed of trust. If you have no trust, you’ll never have engagement.” - Jeff Ordway
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“Trust is important. When you build that trust, you get to the point of being a partner.” - Joab Wako #PxP25
“Trust is important. When you build that trust, you get to the point of being a partner.” - Joab Wako #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
“There are no silly questions, patients ask questions that others on the team don’t.” - Dominique Hamerlijnck #PxP25
“There are no silly questions, patients ask questions that others on the team don’t.” - Dominique Hamerlijnck #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
💚In the thread below, we share a selection of our favourite quotes from today which you can scroll through. Please add your own quotes or reflections too! #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 29d
💜A big shout out to Joab Wako for hosting our first day of the 2025 conference and to all the speakers who made today possible 👏. Thank you for giving your time, energy and passion - we have learnt so much from you.
Day 1: what's happening and what's possible. PxP 2025 logo and grid of photos from day 1 speakers.
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 28d
“Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25
“Academia is not conducive to the kinds of relationships we need to create and the safety we need to create for patient engagement. I have started to build in longer deadlines, especially at the start of the research project.” - Michelle Phoenix #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 28d
“I’ve learned to not assume what people [patient partners] might be interested in or helping out with. We try to keep the door open in terms of what they would like to contribute to a project.” - Manoj Lalu #PxP25
“I’ve learned to not assume what people [patient partners] might be interested in or helping out with. We try to keep the door open in terms of what they would like to contribute to a project.” - Manoj Lalu #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 28d
“As a patient partner, in projects where there have been longer timelines, that has helped a lot. Having a bit more time to meaningfully participate is so helpful.” - Anna Samson #PxP25
“As a patient partner, in projects where there have been longer timelines, that has helped a lot. Having a bit more time to meaningfully participate is so helpful.” - Anna Samson #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 28d
“When we shift towards inclusion, we include people’s experiences and improve the research.” - BC Pomeroy #PxP25
“When we shift towards inclusion, we include people’s experiences and improve the research.” - BC Pomeroy #PxP25
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Reposted by Dawn Richards, PhD
pxphub.bsky.social
PxP (For Patients, By Patients) @pxphub.bsky.social · 28d
“Evidence-based advocacy helps understand patient needs in a systematic manner … and it generally has a greater impact.” “You can point to national and global disparities using evidence-based advocacy.” - Rachel Giles #PxP25
“Evidence-based advocacy helps understand patient needs in a systematic manner … and it generally has a greater impact.” “You can point to national and global disparities using evidence-based advocacy.” - Rachel Giles #PxP25
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