Deborah Brian
@deborahbrian.bsky.social
Recovering academic, research manager, #POTS, #ChronicIllness, etc. Opinions my own; fools not suffered. Meeanjin. she/her
Yes, by some. But you'll find both terms in use around the world right now — sometimes used to mean the same thing, sometimes not.
October 9, 2025 at 9:19 AM
Yes, by some. But you'll find both terms in use around the world right now — sometimes used to mean the same thing, sometimes not.
Chronic fatigue is a symptom of; Chronic Fatigue Syndrome is (usually) a synonym for Myalgic Encephalomyelitis, although some doctors differentiate them, based on the presence or absence of non-fatigue symptoms, like PEM, pain, etc.
October 5, 2025 at 12:42 PM
Chronic fatigue is a symptom of; Chronic Fatigue Syndrome is (usually) a synonym for Myalgic Encephalomyelitis, although some doctors differentiate them, based on the presence or absence of non-fatigue symptoms, like PEM, pain, etc.
Oh, sorry, you said "chronic fatigue" but I don’t know if you meant ME/CFS or chronic fatigue as a symptom of something else?
September 29, 2025 at 8:34 AM
Oh, sorry, you said "chronic fatigue" but I don’t know if you meant ME/CFS or chronic fatigue as a symptom of something else?
Stimulants can be a real problem for pwME, giving you a sense of false energy that results in overexertion and more PEM. Please be careful. If you have orthostatic intolerance or MCAS, as many do, treating those can help a lot. 🤞
September 29, 2025 at 8:33 AM
Stimulants can be a real problem for pwME, giving you a sense of false energy that results in overexertion and more PEM. Please be careful. If you have orthostatic intolerance or MCAS, as many do, treating those can help a lot. 🤞
Just for clarity, Myalgic Encephalomyelitis or ME is often called ME/CFS to embrace one of the older terms still used by some doctors. The abbreviation CF is usually used for cystic fibrosis, a completely different condition.
September 27, 2025 at 4:15 PM
Just for clarity, Myalgic Encephalomyelitis or ME is often called ME/CFS to embrace one of the older terms still used by some doctors. The abbreviation CF is usually used for cystic fibrosis, a completely different condition.
Masking *is* adaptation.
September 25, 2025 at 1:26 PM
Masking *is* adaptation.
Be right there! 😋
September 19, 2025 at 3:16 AM
Be right there! 😋
Murder-chicken in my part of the woods…
August 25, 2025 at 7:54 AM
Murder-chicken in my part of the woods…
And then they recommend exercise!? You know what’s a risk factor in Long Covid? EXERCISE!! 🤦♀️
August 14, 2025 at 4:58 AM
And then they recommend exercise!? You know what’s a risk factor in Long Covid? EXERCISE!! 🤦♀️
That sounds about my pace, too — ok if I follow both? Thanks for the recs, @onesickvet.bsky.social ☺️
July 23, 2025 at 12:17 PM
That sounds about my pace, too — ok if I follow both? Thanks for the recs, @onesickvet.bsky.social ☺️
Reposted by Deborah Brian
Please wear a mask in public spaces as it’s one of the easiest ways to show you’re against mask bans & to show support & solidarity with #immunocompromised / disabled / chronically ill people.
Link to IG post: www.instagram.com/p/DIBDr6NPYs...
🧵 2/2
#StopMaskBans #MasksSaveLives #COVIDisNotOver
Link to IG post: www.instagram.com/p/DIBDr6NPYs...
🧵 2/2
#StopMaskBans #MasksSaveLives #COVIDisNotOver
April 5, 2025 at 2:31 PM
Please wear a mask in public spaces as it’s one of the easiest ways to show you’re against mask bans & to show support & solidarity with #immunocompromised / disabled / chronically ill people.
Link to IG post: www.instagram.com/p/DIBDr6NPYs...
🧵 2/2
#StopMaskBans #MasksSaveLives #COVIDisNotOver
Link to IG post: www.instagram.com/p/DIBDr6NPYs...
🧵 2/2
#StopMaskBans #MasksSaveLives #COVIDisNotOver
Winthrop? I was channeling John Bunyan :)
April 3, 2025 at 2:22 PM
Winthrop? I was channeling John Bunyan :)
Definitely nothing lawful about it…
April 3, 2025 at 2:21 PM
Definitely nothing lawful about it…
Well, that would only be a problem if it were happening outside of your imagination. If you actually gave a damn about women ("little" or otherwise), and weren’t just being a performative schmuck, you'd worry about the >1000 women killed as a result of intimate partner violence in the US every year.
April 2, 2025 at 2:16 PM
Well, that would only be a problem if it were happening outside of your imagination. If you actually gave a damn about women ("little" or otherwise), and weren’t just being a performative schmuck, you'd worry about the >1000 women killed as a result of intimate partner violence in the US every year.
When other dictators do it, we call it being "disappeared" — I think that’s pretty powerful? Unlawfully detained? Sure. Renditioned? Yeah, that too.
April 2, 2025 at 2:10 PM
When other dictators do it, we call it being "disappeared" — I think that’s pretty powerful? Unlawfully detained? Sure. Renditioned? Yeah, that too.
This is the point, I guess. And all the people "self-deporting", not just because they’re worried they'll be disappeared by Kristi Noem — though that’s definitely a concern — but also because the US is no longer the Celestial City they were promised…
April 2, 2025 at 2:08 PM
This is the point, I guess. And all the people "self-deporting", not just because they’re worried they'll be disappeared by Kristi Noem — though that’s definitely a concern — but also because the US is no longer the Celestial City they were promised…
That’s a hard watch…
April 2, 2025 at 1:57 PM
That’s a hard watch…
I think we could all name quite a few people over 40 who do not have the necessary maturity or judgment … and they are currently running the country.
February 15, 2025 at 4:51 PM
I think we could all name quite a few people over 40 who do not have the necessary maturity or judgment … and they are currently running the country.
We just had a relatively (compared to this) minor fuckup that stopped benefit payments to vulnerable people (flagged as vulnerable in the system, but still victimised by the system) — a number of deaths resulted 😔
February 15, 2025 at 4:50 PM
We just had a relatively (compared to this) minor fuckup that stopped benefit payments to vulnerable people (flagged as vulnerable in the system, but still victimised by the system) — a number of deaths resulted 😔
Move fast and break things is the most destructive, wasteful, infantile strategy ever…
They are breaking people’s lives and democratic institutions built on the blood, sweat, and tears, the courage and the sacrifice of generations…
They are breaking people’s lives and democratic institutions built on the blood, sweat, and tears, the courage and the sacrifice of generations…
February 15, 2025 at 4:45 PM
Move fast and break things is the most destructive, wasteful, infantile strategy ever…
They are breaking people’s lives and democratic institutions built on the blood, sweat, and tears, the courage and the sacrifice of generations…
They are breaking people’s lives and democratic institutions built on the blood, sweat, and tears, the courage and the sacrifice of generations…
Oh shit, NASA runs on Fortran… 🫢
February 14, 2025 at 2:24 PM
Oh shit, NASA runs on Fortran… 🫢