On World Duchenne Awareness Day 2025, I ask researchers to stop pasting DMD prognosis with colonised fatalistic & outdated statistical
lifespans in publications. Update to modern biology and thus unpredictable prognoses! #DMD #WDAD2025 #Duchenne

The Australian Consumer Partnerships in Research Aug 12, 2025 finalists showcase-Register to tune in wherever you are in the medical world.
ccrew.accesscr.com.au/cpir-2025/li...

#CPIR2025Awards #patientengagement #patientpartners #consumerpartnership #clinicalresearch

Check out our Australian Consumer Partnership in Research Awards showcase event in August 2025. Nominations are about to open but meanwhile we are looking for Judges and Sponsorship. Check out the event website for all the information. ccrew.accesscr.com.au/cpir-2025/

try to figure that out before we go any further. And let’s be clear: there is precedence for *not* trying to exercise through illness: if someone had Duchenne’s muscular dystrophy and told you they couldn’t walk to the bathroom easily anymore, you wouldn’t ask them to do that 18/

Enjoying the celebration of 10-years of the John Walton Muscular Dystrophy Research Centre @newcastleuni.bsky.social Amazing to see how colleagues contributed to neuromuscular disease research, diagnostics, therapy and international networking!

Regenxbio $RGNX says gene therapy strengthened boys with Duchenne muscular dystrophy

Pivotal study started, top-line data could come early 2026. FDA accelerated approval filing to follow.

www.statnews.com/2024/11/18/d... $SRPT

Differentiating Juvenile Dermatomyositis from Muscular Dystrophy

A diagnostic approach to sooner diagnosis in juvenile dermatomyositis

In Arthritis & Rheumatology
acrjournals.onlinelibrary.wiley.com/doi/abs/10.1...
#Medsky