s
@dicentraformosa00.bsky.social
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Oregon rare disease havers and allies! Check out this urgent action item that needs to be submitted by Saturday at 3pm! Help make this bill more patient-centered. Another thread with talking points to include: bsky.app/profile/rare...
#DisabilityCommunity
You have until 3:00PM on the 1st of Feb to submit testimony on HB2457 (Rare Disease Advisory Council for Oregon).
Oregon needs an RDAC but the bill is unacceptable as submitted. You can submit testimony here:
olis.oregonlegislature.gov/liz/2025R1/T...
#NEISVoid #CripTheVote
You have until 3:00PM on the 1st of Feb to submit testimony on HB2457 (Rare Disease Advisory Council for Oregon).
Oregon needs an RDAC but the bill is unacceptable as submitted. You can submit testimony here:
olis.oregonlegislature.gov/liz/2025R1/T...
#NEISVoid #CripTheVote
Oregon Legislative Information System
olis.oregonlegislature.gov
January 31, 2025 at 5:25 AM
Oregon rare disease havers and allies! Check out this urgent action item that needs to be submitted by Saturday at 3pm! Help make this bill more patient-centered. Another thread with talking points to include: bsky.app/profile/rare...