Savannah is still not receiving proper pain control. She is beyond exhausted, being starved,and in relentless pain.
CALL TO ACTION: Please email Lewisham and Greenwich NHS Trust Chief Executive Ben Travis [email protected] with just the title “Restore pain relief to Savannah NOW”

Thank you @tessamunt.bsky.social for raising what's happening to Savannah in Parliament today and asking what is being done to prevent unnecessary deaths from #severeME

www.change.org/p/save-karen...

This #WorldMEDay, we're supporting the World ME Alliance in debunking 6 common myths about ME & sharing the facts that everyone should know

Join us as we challenge these misconceptions & raise awareness of the realities of living with #ME/CFS

More info 👇

worldmealliance.org/2025/04/worl...

On #WorldMEDay the UK ME community faces a twofold threat: the loss of critical welfare benefits, and a lack of meaningful treatments to pave their way back to work.

This must change.

We’re asking the government to back the new ME Delivery Plan with the resources it deserves.