Andrés Lessing ⭐️ ⭐️ ⭐️
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drezboston.bsky.social
Andrés Lessing ⭐️ ⭐️ ⭐️
@drezboston.bsky.social
🇦🇷🇺🇲 Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
Pinned
testing neurofibromatosis NFBot
December 24, 2025 at 9:50 PM
Neurofibromatosis bot broke. Hoping code changes fixed the problem.
December 21, 2025 at 1:00 AM
Why do carbon monoxide/smoke detectors announce that battery is low extremely late at night, or the middle of the night?
December 17, 2025 at 2:39 AM
Can anyone confirm if the $900B defense bill passed in house fully restores #CDMRP funding? And if programs are to be restarted such at the #NFRP for #neurofibromatosis research? That would be good news.
December 11, 2025 at 3:23 AM
Can we please do something to standardize headlight rules so they are not as bright as are properly mounted pointing down?
November 6, 2025 at 10:30 PM
I wonder what this movie theater was thinking when putting this up
November 1, 2025 at 11:57 AM
Fire him before the game ends!

@nerevolution.bsky.social: #FirePorter already!
September 7, 2025 at 1:21 AM
Reposted by Andrés Lessing ⭐️ ⭐️ ⭐️
August 31, 2025 at 2:43 AM
August 31, 2025 at 2:43 AM
Reposted by Andrés Lessing ⭐️ ⭐️ ⭐️
Thrilled to share my latest cover profile for BostonMan Magazine on #RedSox legend Dwight Evans. Dewey gave me more than an hour of his time in a conversation about his career, his sons' battle against #neurofibromatosis, and more. bostonmanmagazine.com/undeniably-i...
Undeniably, Indisputably 'DEWEY' - BostonMan Magazine
Red Sox legend Dwight Evans is one of a kind. He talks about 19 seasons in Boston, the teammates who helped make him great, and his sons’ quiet battle against a rare genetic disorder.   “I loved comin...
bostonmanmagazine.com
July 30, 2025 at 6:07 PM
Dear @nerevolution.bsky.social Why is Coach Porter not fired yet?
July 26, 2025 at 2:49 PM
Reposted by Andrés Lessing ⭐️ ⭐️ ⭐️
Berry, Watson et al revealed in a recent @cp-cellreports.bsky.social paper why tumors with mutations in the RAS GTPase-activating protein NF1 are highly susceptible to anti-PD1 pathway immunotherapy

www.cell.com/cell-reports...
The NF1 tumor suppressor regulates PD-L1 and immune evasion in melanoma
Berry et al. report a RAS-independent role of the NF1 tumor suppressor in regulating the immune checkpoint protein PD-L1. Their results may explain, in part, the higher response rates of patients with...
www.cell.com
July 15, 2025 at 4:17 PM
Vamos vamos @nerevolution.bsky.social !

Let's take a shot at goal for once!
June 25, 2025 at 10:54 PM
Enjoying the start of second day at #NFSummit working to further Neurofibromatosis and Schwannomatosis research supporting patients and their families.

#EndNF #Neurofibromatosis #Schwannomatosis

Comment if you are here.
June 20, 2025 at 12:31 PM
Cantalo conmigo, Gol!!!
@nerevolution.bsky.social 2 a 0 a los 22
May 25, 2025 at 1:05 AM
Grande Chanca! @nerevolution.bsky.social
1 - 0
May 25, 2025 at 12:56 AM
May 20, 2025 at 10:58 PM
@nerevolution.bsky.social so nice seeing former teammates saying hi to each other at today's game vs @sanjoseearthquakes.bsky.social

Vamos Revolution!
May 17, 2025 at 10:57 PM
Reposted by Andrés Lessing ⭐️ ⭐️ ⭐️
May 8, 2025 at 6:44 PM
Great movie, and Great reminder for us all of what's to come!
April 4, 2025 at 12:49 AM
Hey Senate! Do your job and stop this nonsense!
April 3, 2025 at 7:06 PM
Reposted by Andrés Lessing ⭐️ ⭐️ ⭐️
March 31, 2025 at 8:24 PM
Reposted by Andrés Lessing ⭐️ ⭐️ ⭐️
When the Obama Presidential Center opens next year, we’ll be highlighting the advocates and everyday Americans from across the country whose stories helped make the Affordable Care Act a reality. Take a listen to some of those stories:
March 23, 2025 at 4:02 PM
March 14, 2025 at 8:27 PM
March 14, 2025 at 8:24 PM