A really excellent day.

Any mistakes in this thread are the responsibility of @lordsedge.bsky.social

We'll see you at @rcpch.bsky.social Conference next year, and then in Edinburgh for our next DSMIG Winter meeting ❤️

#dsmig

Dr (Ms?) Cloke just far too fast for me to type everything pertinent they are saying, but it's a great talk!

#dsmig

Women with high risk of CHD should avoid COCP.

Epilepsy is more common in Down Syndrome and seizures can be worse premenstrually. Oestrogen and lamotrigine may interact

VALPROATE REQUIRES EFFECTIVE CONTRACEPTION: see @mhragovuk.bsky.social

#dsmig

@britspag.bsky.social have a great leafl about periods and LD:

britspag.org/wp-content/u...

#DSMIG

Treatment:
Mild: TXA
Mod: hormones
Severe: higher doses of both

#dsmig

1st Yr after menarche only 15% of girls are ovulating regularly

By 6th Yr 90% are ovulatory

#dsmig

History of menstrual problems needs to be thorough and enough time given per consultation

Most girls can cope independently

Period pants really help

Use a period bag

Practice

Visual supports

Track periods with an app

#dsmig

Young people with LD have the right to:
Understand puberty
Understand menstruation
Understand implications of any conditions
Understand their sexuality

(lots more in this slide but I cannot type quickly enough)

#dsmig

In Down Syndrome
No increased risk of uterine anomalies, precocious puberty or vulvovaginal issues

Possible earlier menarche

Females may be subfertile

#dsmig

Last, but definitely not least, Dr Brianna Cloke talking about Menstruation in girls and women with Down Syndrome

#dsmig

Consider looking at the wonderful @dsa-uk.bsky.social DSEngage programme

#dsmig

What the MDT can do:

#dsmig

Physio goals here are to maintain safe and meaningful mobility
To reduce falls risk
To support better posture
Support carers

Overall aim is to enhance quality of life, comfort and participation ❤️

#dsmig

In adulthood, maintaining health and social connection through movement and support is crucial.

In older age, due to premature ageing, dementia and physical needs, there is increased risk of falls, worsening hearing/vision and emotional needs

#dsmig

In adolescence we are looking at embedding habits for adult life.

Periods of activity may dip at this time, weight may increase, education demands increase.

Include movement in transition plans

#dsmig