Spent the weekend at my friend's for a con- my friend was spectacular and v helpful but the con itself was awful. Not accessible at ALL and security was obnoxious. I was in pain all weekend and I never been shoved so often in my life

Out for the day, and I forgot all my pain meds
Today's gonna suck

The insides of my hands hurt

Another bad day
Why on earth do my limbs just hurt
I spent a good hour just laying on my floor to try to feel better, but now I need to get up and deal with a spiking heart rate for a while

I'm genuinely so tired. The health system in Canada is free, but in shambles. Its taken years to get any answers, and all the answers had to be -handed- to doctors.
I still don't have the help I need.
Maybe someday I'll be in less pain

I recently read somewhere that someone described hEDS pain like having a meat tenderizer taken to you.
Not enough to break bone, but enough to bruise you really thoroughly.
It's a pretty good description.