Lily K
@elilykelsey.bsky.social
Doxie Mom, Proudly Autistic, Disney lover, pin collector
Ugh. Trump sucks so much cutting off funding where non profits are struggling so much that our major conference that has over flowing attendance is freaking online, is 2 half days instead of 2 full days plus a half day for autistics. I don’t even want to attend it sounds dreadful.
January 2, 2026 at 1:42 PM
Ugh. Trump sucks so much cutting off funding where non profits are struggling so much that our major conference that has over flowing attendance is freaking online, is 2 half days instead of 2 full days plus a half day for autistics. I don’t even want to attend it sounds dreadful.
Having a heart rate tracker is kind of entertaining. It hit 162 today….im not surprised it did actually. The data hasn’t dumped to larger format yet so I can’t break it down yet.
December 31, 2025 at 4:44 AM
Having a heart rate tracker is kind of entertaining. It hit 162 today….im not surprised it did actually. The data hasn’t dumped to larger format yet so I can’t break it down yet.
Autistic elopement in adults. A good infographic to find during one of the most overwhelming transition periods of the year. As for all of these things that present in adults, I’ve done them all many times over as well as other things that seemed more literal too.
December 28, 2025 at 8:09 AM
Autistic elopement in adults. A good infographic to find during one of the most overwhelming transition periods of the year. As for all of these things that present in adults, I’ve done them all many times over as well as other things that seemed more literal too.
In positive news, the Miss doxie girl made it through today and was back to her standard morning/evening doses of meds instead of the 3x a day we’ve had to do for literal months. I don’t know how long this will hold but to even have a day of 2x a day meds is a miracle. She didn’t
December 24, 2025 at 4:29 AM
In positive news, the Miss doxie girl made it through today and was back to her standard morning/evening doses of meds instead of the 3x a day we’ve had to do for literal months. I don’t know how long this will hold but to even have a day of 2x a day meds is a miracle. She didn’t
In a state of shock, the last of my waiver items were approved. Except of course, they’re making me pick things, and then trying to argue my tactile wall hanging is too close to other things. It’s still annoying that a committee of people, whom I’m not even disclosed the identities of, get to have
December 24, 2025 at 3:51 AM
In a state of shock, the last of my waiver items were approved. Except of course, they’re making me pick things, and then trying to argue my tactile wall hanging is too close to other things. It’s still annoying that a committee of people, whom I’m not even disclosed the identities of, get to have
Ugh, the fatigue is crippling lately. And there’s so much other stuff and things. Glad doxie girl is being compliant cuz she’s gotta keep chill for her back.
December 23, 2025 at 6:55 PM
Ugh, the fatigue is crippling lately. And there’s so much other stuff and things. Glad doxie girl is being compliant cuz she’s gotta keep chill for her back.
Vocal stim trend…are these actually vocal stims? Or just people quoting things? I mean…I guess they can be stims. Ironically, I don’t have any of the trendy ones. But my internalized echolalia won’t stop screaming “Sausage Roll! I love being a sausage dog!” 🤣🤣 gotta love special interests.
December 21, 2025 at 2:03 AM
Vocal stim trend…are these actually vocal stims? Or just people quoting things? I mean…I guess they can be stims. Ironically, I don’t have any of the trendy ones. But my internalized echolalia won’t stop screaming “Sausage Roll! I love being a sausage dog!” 🤣🤣 gotta love special interests.
Phone call struggles for autistics explained by someone that isn’t me (then add the communication disorders…yea, there are reasons why I legit have anxiety, panic, nightmares, insomnia, and dread for DAYS around phone calls).
December 14, 2025 at 10:14 PM
Phone call struggles for autistics explained by someone that isn’t me (then add the communication disorders…yea, there are reasons why I legit have anxiety, panic, nightmares, insomnia, and dread for DAYS around phone calls).
I don’t get to choose what my brain fixates on and somehow it got on “Bless the Broken Road”. This song makes little sense for me in so many ways. I’m not necessarily a romantic, if I get married & do anything nearly remotely typical it’s probably gonna be when I’m in a nursing home, also I’m
December 13, 2025 at 6:23 AM
I don’t get to choose what my brain fixates on and somehow it got on “Bless the Broken Road”. This song makes little sense for me in so many ways. I’m not necessarily a romantic, if I get married & do anything nearly remotely typical it’s probably gonna be when I’m in a nursing home, also I’m
Oh wow, I never knew. Tragedy, begets tragedy, begets tragedy. The person who set the fire they suspect was the wife of a man ☠️ in SF. It’s tragic what happened to her years after what happened to him and all of this was a situation I knew well b/c
www.santafenewmexican.com/news/local_n...
www.santafenewmexican.com/news/local_n...
Residents displaced by fatal Santa Fe fire try to recover
Santa Fe police have said they suspect 59-year-old Gloria Lucero Buschman, who died in the blaze, ignited it in her apartment.
www.santafenewmexican.com
December 8, 2025 at 3:49 AM
Oh wow, I never knew. Tragedy, begets tragedy, begets tragedy. The person who set the fire they suspect was the wife of a man ☠️ in SF. It’s tragic what happened to her years after what happened to him and all of this was a situation I knew well b/c
www.santafenewmexican.com/news/local_n...
www.santafenewmexican.com/news/local_n...
I think I’ve fixed the squeaking issue to be the least it could be at this point. Involved tightening everything a lot. The bottom pieces came so loose it was kind of freaky.
December 7, 2025 at 4:56 PM
I think I’ve fixed the squeaking issue to be the least it could be at this point. Involved tightening everything a lot. The bottom pieces came so loose it was kind of freaky.
My sensory swing stand has started making a horrendous creaking noise. Since the attachment point was metal on metal, I used white lightening bike grease, and it was like it did nothing. My swing came with straps that you would use for like a tree or something that didn’t have attachments so, I
December 7, 2025 at 5:33 AM
My sensory swing stand has started making a horrendous creaking noise. Since the attachment point was metal on metal, I used white lightening bike grease, and it was like it did nothing. My swing came with straps that you would use for like a tree or something that didn’t have attachments so, I
Oh, I was also craving spaghetti & I risked cooking again. I made gluten free spaghetti. Ultimately, I had edible food. And two meals additional. BUT it was a bit of a sh*t show. I kind of kept having moments where I was like “did I nearly risk starting a fire?” Or “yea, I escaped a burn there” so…
December 5, 2025 at 3:59 AM
Oh, I was also craving spaghetti & I risked cooking again. I made gluten free spaghetti. Ultimately, I had edible food. And two meals additional. BUT it was a bit of a sh*t show. I kind of kept having moments where I was like “did I nearly risk starting a fire?” Or “yea, I escaped a burn there” so…
Today I discovered there is a squishmallow hug mees version of Snickers from Bluey. Why is this exciting? Because Snickers is a black and tan doxie! Now to hope Paw Patrol answers back and makes a Liberty! Those particular style are really nice neck pillows! My OT brought her vibration plate over
December 5, 2025 at 3:54 AM
Today I discovered there is a squishmallow hug mees version of Snickers from Bluey. Why is this exciting? Because Snickers is a black and tan doxie! Now to hope Paw Patrol answers back and makes a Liberty! Those particular style are really nice neck pillows! My OT brought her vibration plate over
Not much of an update. Thanksgiving was good. Ate so much good food, which so glad I don’t have food aversions to Thanksgiving food now. My dessert turned out well, but definitely the pre-made crust was meh, so GF Oreos might be next in a 9in pan and then a higher quality chocolate. I think
November 29, 2025 at 5:54 PM
Not much of an update. Thanksgiving was good. Ate so much good food, which so glad I don’t have food aversions to Thanksgiving food now. My dessert turned out well, but definitely the pre-made crust was meh, so GF Oreos might be next in a 9in pan and then a higher quality chocolate. I think
Thanksgiving…
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
November 27, 2025 at 8:53 PM
Thanksgiving…
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Cultural implications cannot be ignored. It’s a day of remembering & grief for Indigenous Americans. We cannot forget that. It’s a struggle day for many autistics. Personally I like the food, but I don’t think I always did.
Sleep is difficult again. Part of that was Miss Weenie shaking and poking me awake at 11pm. She was not due for pain meds for hours. I’m hoping it was the wind because I did get her to sleep on the couch again but was up at like 3am with pretty intermittent sleep. Yesterday was not a great day.
November 26, 2025 at 1:37 PM
Sleep is difficult again. Part of that was Miss Weenie shaking and poking me awake at 11pm. She was not due for pain meds for hours. I’m hoping it was the wind because I did get her to sleep on the couch again but was up at like 3am with pretty intermittent sleep. Yesterday was not a great day.
Last thoughts for the day…1) it was good while it lasted. Headaches are back. Symptoms are back. Inflammation is back. 2) I finished the laundry at least today. One task I don’t enjoy that I 95% out of the way. 3) doggo sleeping in a small pile of laundry I couldn’t get folded fast enough…
November 25, 2025 at 4:23 AM
Last thoughts for the day…1) it was good while it lasted. Headaches are back. Symptoms are back. Inflammation is back. 2) I finished the laundry at least today. One task I don’t enjoy that I 95% out of the way. 3) doggo sleeping in a small pile of laundry I couldn’t get folded fast enough…
A week without headaches was nice. It’s back… still gotta try to finish tasks.
November 24, 2025 at 7:04 PM
A week without headaches was nice. It’s back… still gotta try to finish tasks.
This this this this this!! Holy wow, they did amazing a putting together a full on about the whole “profound autism” thing and the parents who are “grieving” autism & and the ugly realities behind it.
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Grievance Parents Are Autism's MAGA Movement — THINKING PERSON'S GUIDE TO AUTISM
Horrified by the misinformation peddled by MAGA truthers? You should be just as concerned about grievance-based autism parent orgs.
thinkingautismguide.com
November 24, 2025 at 3:57 PM
This this this this this!! Holy wow, they did amazing a putting together a full on about the whole “profound autism” thing and the parents who are “grieving” autism & and the ugly realities behind it.
thinkingautismguide.com/2022/11/grie...
thinkingautismguide.com/2022/11/grie...
Back pain & hip pain are returning. Day 5 of steroids I definitely noticed the potential for the negative side effects to start. It was nice to have the inflammation alleviated for a hot minute though. My OT is going to bring her vibration plate for me to try some time, which might be a way to
November 24, 2025 at 3:03 PM
Back pain & hip pain are returning. Day 5 of steroids I definitely noticed the potential for the negative side effects to start. It was nice to have the inflammation alleviated for a hot minute though. My OT is going to bring her vibration plate for me to try some time, which might be a way to
I made nachos! This is a major executive function win. Like, my brain wanted nachos, it realized I could try to make them, made a list of what was needed, was able to get the ingredients on a quick get them post laser therapy for Weenie, and then assembled a lunch, refrigerated left overs.
November 21, 2025 at 7:02 PM
I made nachos! This is a major executive function win. Like, my brain wanted nachos, it realized I could try to make them, made a list of what was needed, was able to get the ingredients on a quick get them post laser therapy for Weenie, and then assembled a lunch, refrigerated left overs.
In personal news…as I guess I choose dissociation or whatever since there’s a whole life of chronic illness that demands a lot out of me. 5 day course of steroids has actually been fine. It tends to be like this with the non-dose pack course. That tends to be less harsh for me. Actually getting
November 21, 2025 at 3:45 AM
In personal news…as I guess I choose dissociation or whatever since there’s a whole life of chronic illness that demands a lot out of me. 5 day course of steroids has actually been fine. It tends to be like this with the non-dose pack course. That tends to be less harsh for me. Actually getting
Today’s US news cycle 😬😬. Another day of something literally outrageous happening, but the needle has incrementally moved toward tolerance of this rhetoric. It happened in the past in…
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
November 21, 2025 at 3:40 AM
Today’s US news cycle 😬😬. Another day of something literally outrageous happening, but the needle has incrementally moved toward tolerance of this rhetoric. It happened in the past in…
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
It’s still wild we watch this stuff regularly & I cycle between many states of being over it.
Ah the joy of prednisone. It’s helping the sinus inflammation but aggravating the sleep issues. And having the hiccups for 45 mins didn’t help. Outcome of PCP appt was to do a course of steroids to knock down sinus inflammation to keep anything from turning to a bacterial sinus infection if possible
November 19, 2025 at 6:25 AM
Ah the joy of prednisone. It’s helping the sinus inflammation but aggravating the sleep issues. And having the hiccups for 45 mins didn’t help. Outcome of PCP appt was to do a course of steroids to knock down sinus inflammation to keep anything from turning to a bacterial sinus infection if possible