Funded by the European Union.
ERN-EuroBloodNet & @radeep.bsky.social are proud to launch a 2-minute animated video co-created with youth living with #SickleCell.
📺 YouTube playlist: bit.ly/40dkz0P
#SickleCellDisease #WSCD25 #TransitionOfCare #PatientVoices #ERN @mmanupe.bsky.social
2026 marks a defining moment for rare disease policy in Europe. Five years after #Rare2030 and midway to the WHO 2028 target, #ECRD gathers the community to support the co-development of an EU Action Plan.
👉 Register now: https://www.rare-diseases.eu/register/
2026 marks a defining moment for rare disease policy in Europe. Five years after #Rare2030 and midway to the WHO 2028 target, #ECRD gathers the community to support the co-development of an EU Action Plan.
👉 Register now: https://www.rare-diseases.eu/register/
🛠️ Medical Device Shortages & Regulatory Constraints
🗓️ Wed 21 Jan @ 18:00 CET
🎙️ With clinicians, regulators & industry experts
🔗 Register: events.zoom.us/ev/AvVY1AZbs...
#EUfunded #HealthUnion #RareDisease #ERNs
🛠️ Medical Device Shortages & Regulatory Constraints
🗓️ Wed 21 Jan @ 18:00 CET
🎙️ With clinicians, regulators & industry experts
🔗 Register: events.zoom.us/ev/AvVY1AZbs...
#EUfunded #HealthUnion #RareDisease #ERNs
The article was recently published in HemaSphere Journal, the official open-access journal of the European Hematology Association (EHA).
eurobloodnet.eu/news/699/new...
The article was recently published in HemaSphere Journal, the official open-access journal of the European Hematology Association (EHA).
eurobloodnet.eu/news/699/new...
📝Secure your place with early-bird registration: eurobloodnet.eu/news/698/reg...
#ERNs #ERNeu
📝Secure your place with early-bird registration: eurobloodnet.eu/news/698/reg...
#ERNs #ERNeu
The program is coordinated by ERN-EuroBloodNet together with the umbrella patient organisation @EHC_Haemophilia
📝Registrations: bit.ly/4phwowL
The program is coordinated by ERN-EuroBloodNet together with the umbrella patient organisation @EHC_Haemophilia
📝Registrations: bit.ly/4phwowL
2025 has been a very active year for ERN-EuroBloodNet, with key achievements in education, clinical care, research, data and health policy across Europe. We’re proud of the collective work of our network.
eurobloodnet.eu/news/694/hap...
2025 has been a very active year for ERN-EuroBloodNet, with key achievements in education, clinical care, research, data and health policy across Europe. We’re proud of the collective work of our network.
eurobloodnet.eu/news/694/hap...
Register now for the full program! eurobloodnet.eu/education-2/...
Register now for the full program! eurobloodnet.eu/education-2/...
🗣️Speaker: Paolo Gresele
🕓 17/12/2025 at 17:00
ℹ️More details and registrations: eurobloodnet.eu/education/to...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
🗣️Speaker: Paolo Gresele
🕓 17/12/2025 at 17:00
ℹ️More details and registrations: eurobloodnet.eu/education/to...
#ERNeu #ERNs #HealthUnion #EU4Health #ShareCareCure
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
✨@erneurobloodnet.bsky.social improves care for rare and complex hematological diseases across Europe. It covers 450+ rare hematological disorders, uniting 90 members across 18 Member States, 7 affiliated partners in 6 MS and 11 ePAGs.
🔗https://eurobloodnet.eu
Discover the webinars scheduled for December and stay up to date with the latest news. Subscribe to our Newsletter here: eurobloodnet.eu/edu-blood-ac...
#ERNeu #ERNs #HealthUnion
Discover the webinars scheduled for December and stay up to date with the latest news. Subscribe to our Newsletter here: eurobloodnet.eu/edu-blood-ac...
#ERNeu #ERNs #HealthUnion
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
The #ThursdaysWebinars series is an accredited European online educational program, certified by EBAH.
🎙️Speaker: Olivier Hermine
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
Meet Mak, Linges, Micah, Ayça & Burak, our heroes showing what life is like for the 300M people living with a rare disease.
Full video 🎥 youtu.be/7J1oTfoIOGw
Let’s bring about equity in more ways than even we can imagine!
#ShareYourColours
We are pleased to announce the second webinar of the program “EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with Sickle Cell Disease.”
👉Register now!
eurobloodnet.eu/education-2/...
We are pleased to announce the second webinar of the program “EDITSCD & ERN-EuroBloodNet: Focus on Genetic Therapy for People Living with Sickle Cell Disease.”
👉Register now!
eurobloodnet.eu/education-2/...
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
24 ERNs help share knowledge, improve diagnosis & treatment, and strengthen healthcare systems.
Learn more jardin-ern.eu/european-ref...
#EU4Health #HealthUnion
synthema.eu
synthema.eu
The #ThursdaysWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
The #ThursdaysWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology
👉Don’t miss it, secure your spot today! eurobloodnet.eu/education/th...
🎙️Listen to the full episode here:
www.youtube.com/watch?v=OwIe...
🎙️Listen to the full episode here:
www.youtube.com/watch?v=OwIe...
🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network
📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social
🤝Partnership with Flower - open-source federated learning for privacy-preserving AI
🩺 @erneurobloodnet.bsky.social – Europe’s rare haematology network
📊Contributions to ENROL, EU RD Platform, and
@radeep.bsky.social
🤝Partnership with Flower - open-source federated learning for privacy-preserving AI
How can we ensure that young people living with rare diseases move safely from paediatric to adult care without losing access, confidence, or hope?
🎬Watch now: youtu.be/POEBC0YEMgM?...
#ERNs #ERNeu
How can we ensure that young people living with rare diseases move safely from paediatric to adult care without losing access, confidence, or hope?
🎬Watch now: youtu.be/POEBC0YEMgM?...
#ERNs #ERNeu
The #ThursdayWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH).
👉 Register here: lnkd.in/dFCJVT2R
#ERNeu #ERNs #hematology
The #ThursdayWebinars are an accredited European online educational program, certified by the European Board for Accreditation in Hematology (EBAH).
👉 Register here: lnkd.in/dFCJVT2R
#ERNeu #ERNs #hematology
A collective policy framework developed with clinicians, patients, and experts across Europe to strengthen continuity of care between pediatric and adult services.
🔗https://bit.ly/4qk0npD
A collective policy framework developed with clinicians, patients, and experts across Europe to strengthen continuity of care between pediatric and adult services.
🔗https://bit.ly/4qk0npD
🗓 Thursday, 6th November | 💻 Online
Take a look at the provisional agenda and register here: eurobloodnet.eu/news/678/ern...
#ERNeu #ERNs #HealthUnion #EU4Health
🗓 Thursday, 6th November | 💻 Online
Take a look at the provisional agenda and register here: eurobloodnet.eu/news/678/ern...
#ERNeu #ERNs #HealthUnion #EU4Health
Your role:
✅Ensure smooth communication across teams and stakeholders;
✅Oversee documentation and data management;
✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators.
🔗 jobs.vhir.org/jobs/6487424...
Your role:
✅Ensure smooth communication across teams and stakeholders;
✅Oversee documentation and data management;
✅Act as a bridge between the RADeep coordinating team, data providers, and external collaborators.
🔗 jobs.vhir.org/jobs/6487424...