Three years today.
Grief doesn’t get smaller—you just learn how to carry it.
There’s no “getting over it,” just learning to live beside it.
If you’ve lost someone you love… how do you honor them?
I’m holding space for all of us who are carrying the weight today.

Part of the 50501 wave—50 protests, 50 states, one day—calling out Trump’s harmful policies.
We protect disabled lives.
We fight for our kids.
Were you there too? Tag your protest buddy or drop your city.
#50501protest #DisabilityRights #Resist #April19 #CaregiverVoice #SouthBendProtests

Not the conference, but a Day of Dravet—regional events held in between conference years. If you’ve ever wondered what it’s like to connect with the Dravet community, here’s your peek inside.”

#DravetSyndrome #DayOfDravet #RareDiseaseCommunity #RosiesDravetJourney #CureDravet

For my fellow medically complex families 💜 wishing you all a peaceful holiday season 🥂

Woke up to this! Loving the snow ❄️☃️

I voted for her rights