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Family Engagement in Research Training Program @ferprogram.bsky.social · Aug 18

Podcast, funding news, courses, jobs, events… it’s all in the newsletter.
Let's make space together—check it out!

myemail.constantcontact.com/FER-Communit...

FER Community Update | August 2025

Email from Making Space. 🌿🍃 Getting Ready for Fall. 🍂🍁 August, 2025 Happy August everyone! Making Space Is More Than Just Having A Seat At The Table So, you’ve invited a person with lived experien

myemail.constantcontact.com

Family Engagement in Research Training Program @ferprogram.bsky.social · Aug 18

Apply by Aug 27: Family Engagement Leadership Academy — earn a McMaster University Certificate (10–week program starting Sept 17; only 12 spots!)
New book alert: by Maude Champagne
Big News: U Calgary researchers awarded $2.5 M SSHRC grant supporting neurodivergent individuals and their families/2

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Family Engagement in Research Training Program @ferprogram.bsky.social · Aug 18

Making Space Takes More Than a Seat
This August, we're diving into "making space"—not just inviting family & lived-experience partners to the table, but empowering their voices to be heard and respected (and acted upon!). Plus:
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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 18

Real impact starts with real voices. Hear from a FER graduate about the power of meaningful collaboration.

👉Learn more: tr.ee/lKU4zw

@canchild.bsky.social @kidsbrainhealth.bsky.social
#FERCourse #FamilyEngagement

FAMILY ENGAGEMENT
IN RESEARCH
- TRAINING PROGRAM -

"The course was really structured to give you a lot of tools and
confidence
to be able to do family engagement."
- Researcher
CanChild
McMaster
University

CIHR IRSC
Canadian Institutes of
Instituts de recherche
kids
brain health network
réseau pour la santé du cerveau des enfants

FAMILY ENGAGEMENT
IN RESEARCH
- TRAINING PROGRAM -

"This course has been fulfilling in so many ways.
I have learned a lot, but it was the conversations and connections that ring true"
- Family Member
CanChild
McMaster
University

CIHR IRSC
Canadian Institutes of
Instituts de recherche
kids brain health network
réseau pour
la santé du cerveau des enfants

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 15

📰 Our July 2025 FER Community Update is live! Catch up on what’s new & what’s next in family engagement in research.
📖 Read: tinyurl.com/FERJuly2025

💬 What helped you feel more ready to engage in meaningful ways? Comment below—we’d love to hear!
#FERProgram #FamilyEngagement

FER Community Update
July 2025
8 tools that bring people with lived experience and researchers bring to research.
Plus: A recap of FER in Germany 2025
Congratulations to multiple FER grads in our community
Upcoming events
Our favourite readings and resources we saw this month

What helped you show up prepared, or made you fee more ready to engage in meaningful ways? Comment below!

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 14

🇩🇪 FER in Germany! So proud to see FER grads at #EACD2025 sharing how family voices shape care + research. From parenting to systems change, they’re leading the way. Want to join them? ➡️ ferprogram.ca #FERProgram #MedicalParent #DisabilityResearch #HealthEquity

Collage of attendees from the EACD conference who were also graduates of the course.

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 11

📣 Last day to apply!
Are you a parent or caregiver of a child with a disability or health condition? Join the 10-week FER Course to build research skills & connect with families & researchers.
🌍 Open to all
🔗 tr.ee/Z1Kj79
#momlife #Parenting

Last change to apply for the Fall 2025 FER Course!

Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 9

👉Learn more: tr.ee/lKU4zw
🔗Apply now: tr.ee/Z1Kj79

@canchild.bsky.social @kidsbrainhealth.bsky.social /2

#specialneeds #medicalmom #disability #parenting #momlife

Amazingly Simple Graphic Design Software – Canva

tr.ee

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 9

3 Things Parents Might Not Know About Partnering in Research
You can shape research, not just join it.
Your lived experience is expertise.
Research with parents hits closer to home for real families.
Applications are still open for the Family Engagement in Research Course! /1

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 9

If you are in the field of neurodevelopmental disability research, consider giving Kids Brain Health Network a follow!

Kids Brain Health Network @kidsbrainhealth.bsky.social · Jul 7

Are you working on an evidence-based solution for children with NDDs?Whether you’re in research, healthcare, or a nonprofit, KBHN's upcoming funding call may be for you.

📅 Info Session: July 17 | 11 AM MT
🎯 Learn how to qualify
👥 Lived/living experience is required on your team!

buff.ly/4wKmkuz

Info session poster with logos of Kids Brain Health Network and Brain Canada Foundation. Date: July 17, 2025. Two children smiling.

Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 3

Co-learning in the Family Engagement in Research course strengthens partnerships and builds real-world skills in family engagement.
🔍 Learn more: tr.ee/lKU4zw
📝 Apply now: tr.ee/Z1Kj79
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#specialneeds #medicalmom #disability #parenting #momlife
@canchild.bsky.social

Amazingly Simple Graphic Design Software – Canva

tr.ee

Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 3

When we take the time to listen, learn, and truly see their stories, we build a world that respects and includes every voice.
Whether you're a parent, a researcher, a clinician, or a community member, your role in that story matters too.

Let’s partner in research that reflects real lives.
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Amazingly Simple Graphic Design Software – Canva

tr.ee

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 3

Good news! The deadline to apply for the next Family Engagement in Research (FER) Course has been extended!

Behind every child is a story that matters…

Every child’s journey is unique, shaped by their dreams, challenges, and the people who walk beside them. /1
#patientengagement

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 3

Co-learning in this course strengthens partnerships and builds real-world skills in family engagement.
🔍 Learn more: tr.ee/lKU4zw
📝 Apply now: tr.ee/Z1Kj79
@canchild.bsky.social
#research #researcher #healthcare #pediatrics /2

Amazingly Simple Graphic Design Software – Canva

tr.ee

Family Engagement in Research Training Program @ferprogram.bsky.social · Jul 3

Good news! The deadline to apply for the next Family Engagement in Research (FER) Course has been extended!
Whether you've already applied or still thinking about it, researchers, now’s a great time to reach out to your current patient or community partner and apply together. /1 #patientengagement

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Reposted by Family Engagement in Research Training Program

Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 20

Ready to join a growing community of researchers and families working together?

🎉 Applications are OPEN for the Family Engagement in Research Course! 
🗓️ Fall 2025: Sept 15 – Nov 23 
🗓️ Winter 2026: Jan 19 – Mar 29 
💻 All online.
👉Learn more: tr.ee/lKU4zw
🔗Apply now: tr.ee/Z1Kj79
#PatientEngagement

participants rated their overall course satisfaction on a scale of 1 to 10, with an average score of 8.6.

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 26

It’s a candid, encouraging read for anyone committed to more equitable and impactful research partnerships. /3
open.substack.com/pub/familyen...
open.substack.com/pub/familyen...

Reflecting on our experience of partnering in research: Youth and trainee perspectives.

By Brian Xiao, Danielle DuPlessis, Josh Shore

open.substack.com

Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 26

to navigating real‑world challenges and hard‑won insights. Along the way, they highlight what worked (and what didn’t), the value of mutual respect, and key lessons about how to make family–researcher collaborations truly meaningful. /2

Reflecting on our experience of partnering in research: Youth and trainee perspectives.

By Brian Xiao, Danielle DuPlessis, Josh Shore

open.substack.com

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 26

Reflecting on partnership in research
In this thoughtful blog post from members and partners from Bloorview Research Institute at Holland Bloorview, they share their journey of collaborating with a research team, from gaining the opportunity to partner, /1
#PatientEngagement

Reflecting on our experience of partnering in research: Youth and trainee perspectives.

By Brian Xiao, Danielle DuPlessis, Josh Shore

open.substack.com

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 20

Ready to join a growing community of researchers and families working together?

🎉 Applications are OPEN for the Family Engagement in Research Course! 
🗓️ Fall 2025: Sept 15 – Nov 23 
🗓️ Winter 2026: Jan 19 – Mar 29 
💻 All online.
👉Learn more: tr.ee/lKU4zw
🔗Apply now: tr.ee/Z1Kj79
#PatientEngagement

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 16

From course highlights to community celebrations, resources, and upcoming opportunities—there’s something for everyone.
📬 Read it here: myemail.constantcontact.com/FER-Communit...
🔗 Learn more about our program at ferprogram.ca /2

FER Community Update | June 2025

Email from CanChild Centre for Childhood Disability Research Communicating Summer Goals June, 2025 Happy June everyone! This is that time of year where I always hear as a part of general small talk, "

myemail.constantcontact.com

Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 16

📰 Hot off the press!
Check out the June 2025 FER Community Update to see what’s new in the world of family engagement in research! /1
#patientengagement

FER Community Update | June 2025

Email from CanChild Centre for Childhood Disability Research Communicating Summer Goals June, 2025 Happy June everyone! This is that time of year where I always hear as a part of general small talk, "

myemail.constantcontact.com

1

Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 16

🎉 Applications are OPEN for the Family Engagement in Research Course! 

🗓️ Fall 2025: Sept 15 – Nov 23 
🗓️ Winter 2026: Jan 19 – Mar 29 
💻 All online.
👉Link in bio for more information /2
@canchild.bsky.social

#parenting

Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 16

At the Family Engagement in Research (FER) Course, our work is grounded in four core values:

💛Authenticity
🌍Inclusivity
👥Collaboration
🙌🏽Mutual Respect

Do these resonate with you? Come join us! /1
#PatientEngagement #ConsumerInvolvement

Our values
Authenticity: We build and foster trusting relationships
Inclusivity: We foster co-learning in supportive environments
Collaboration: We effectively work together
for change
Mutual Respect: We celebrate all knowing and experience

At the Family Engagement in Research (FER) Course, our work is grounded in four core values:

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Family Engagement in Research Training Program @ferprogram.bsky.social · Jun 13

🗓️ Fall 2025: Sept 15 – Nov 23 
🗓️ Winter 2026: Jan 19 – Mar 29 
💻 All online.
👉Link in bio for more information
#education #thesis #science #dissertation #university
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