@flyersgirlsd.bsky.social
Reposted
@wowamerica24.bsky.social
@rosieric.bsky.social
@cqwnurs.bsky.social
@insulinjunkee.bsky.social
@sassy0210.bsky.social
@ericjdaza.com
@jackandbane.bsky.social
@swillia.bsky.social
@happysnarkygal.bsky.social
@debkass.bsky.social
@coko.bsky.social
@mojochefjeff.bsky.social
@rosieric.bsky.social
@cqwnurs.bsky.social
@insulinjunkee.bsky.social
@sassy0210.bsky.social
@ericjdaza.com
@jackandbane.bsky.social
@swillia.bsky.social
@happysnarkygal.bsky.social
@debkass.bsky.social
@coko.bsky.social
@mojochefjeff.bsky.social
a cat in a witch hat holds a slice of pepperoni pizza
ALT: a cat in a witch hat holds a slice of pepperoni pizza
media.tenor.com
June 27, 2025 at 11:17 PM
Reposted
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
June 23, 2025 at 9:21 PM
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
Reposted
This is Hope.
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
June 23, 2025 at 9:21 PM
This is Hope.
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
Hope was born with an ultra-rare genetic disorder called MLS syndrome.
She is deaf and blind.
She also has a heart condition called cardiomyopathy, which makes it difficult for her heart to pump blood.
Reposted
Please read this and share. Thank you.
I rarely post personal things. But I need to talk about my 4-year-old niece, Hope.
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
She has a rare disease. A drug called elamipretide has helped her survive.
But the FDA recently denied its approval.
Now, her health hangs in the balance.
Please share her story & urge the FDA to reconsider. 🧵
June 23, 2025 at 10:06 PM
Please read this and share. Thank you.