Freya Johnson
@freyarjohnson.bsky.social
Making Biomedical Science accessible
#ME/CFS #EDS #Connectivetissuedisorders
#ME/CFS #EDS #Connectivetissuedisorders
Hello! I am a Biomedical Science communicator working with charities to focus on connective tissue disorders, ME/CFS (measussex.org.uk/2022-survey-... published 2024), and relevant conditions. I am keen to join the Science feed to share my findings and build professional connections. Thank you
2022 Survey of Patient-Reported Experience Receiving Help for ME/CFS - Sussex & Kent ME/CFS Society
Freya R. Johnson, BSc Biomedical Sciences, Volunteer Writer In 2022 Sussex & Kent ME/CFS Society ran a survey, collecting information about the experiences of receiving help for Myalgic Encephalomyeli...
measussex.org.uk
February 20, 2025 at 11:45 AM
Hello! I am a Biomedical Science communicator working with charities to focus on connective tissue disorders, ME/CFS (measussex.org.uk/2022-survey-... published 2024), and relevant conditions. I am keen to join the Science feed to share my findings and build professional connections. Thank you
Denu, M.K.I., Revoori, R., Eghan, C. et al. Association between chronic fatigue syndrome/myalgic encephalomyelitis and cardiovascular disease. Sci Rep 15, 2294 (2025). doi.org/10.1038/s415...
doi.org
February 18, 2025 at 5:22 PM
Denu, M.K.I., Revoori, R., Eghan, C. et al. Association between chronic fatigue syndrome/myalgic encephalomyelitis and cardiovascular disease. Sci Rep 15, 2294 (2025). doi.org/10.1038/s415...
Hello! I am a Biomedical Science communicator working with charities to focus on connective tissue disorders, ME/CFS (measussex.org.uk/2022-survey-... published 2024), and relevant conditions. I am keen to join the Science feed to share my findings and build professional connections.
Thank you
Thank you
2022 Survey of Patient-Reported Experience Receiving Help for ME/CFS - Sussex & Kent ME/CFS Society
Freya R. Johnson, BSc Biomedical Sciences, Volunteer Writer In 2022 Sussex & Kent ME/CFS Society ran a survey, collecting information about the experiences of receiving help for Myalgic Encephalomyeli...
measussex.org.uk
February 18, 2025 at 5:18 PM
Hello! I am a Biomedical Science communicator working with charities to focus on connective tissue disorders, ME/CFS (measussex.org.uk/2022-survey-... published 2024), and relevant conditions. I am keen to join the Science feed to share my findings and build professional connections.
Thank you
Thank you
2. Vernon, SD., Zheng, T., Do, H. et al. Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study. J Gen Intern Med. (2025)
doi.org/10.1007/s116...
doi.org/10.1007/s116...
Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study - Journal of General Internal Medicine
Background Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) may occur after infection. How often people develop ME/CFS after SARS-CoV-2 infection is unknown. Objective To determine the inci...
doi.org
February 18, 2025 at 4:51 PM
2. Vernon, SD., Zheng, T., Do, H. et al. Incidence and Prevalence of Post-COVID-19 Myalgic Encephalomyelitis: A Report from the Observational RECOVER-Adult Study. J Gen Intern Med. (2025)
doi.org/10.1007/s116...
doi.org/10.1007/s116...
The cause of ME remains to be determined (sources below)
1. Hwang, JH., Lee, JS., Oh, HM. et al. Evaluation of viral infection as an etiology of ME/CFS: a systematic review and meta-analysis. J Transl Med 21, 763 (2023). doi.org/10.1186/s129...
1. Hwang, JH., Lee, JS., Oh, HM. et al. Evaluation of viral infection as an etiology of ME/CFS: a systematic review and meta-analysis. J Transl Med 21, 763 (2023). doi.org/10.1186/s129...
February 18, 2025 at 4:51 PM
The cause of ME remains to be determined (sources below)
1. Hwang, JH., Lee, JS., Oh, HM. et al. Evaluation of viral infection as an etiology of ME/CFS: a systematic review and meta-analysis. J Transl Med 21, 763 (2023). doi.org/10.1186/s129...
1. Hwang, JH., Lee, JS., Oh, HM. et al. Evaluation of viral infection as an etiology of ME/CFS: a systematic review and meta-analysis. J Transl Med 21, 763 (2023). doi.org/10.1186/s129...
Pacing was rated beneficial by 96.34% of patients, followed by lifestyle management programmes (including NHS and Expert Patient Programmes) at 90.24%. Diet management came third, with 83.33% patients rating this as helpful to their experience of ME/CFS over a 5-year period.
February 4, 2025 at 4:23 PM
Pacing was rated beneficial by 96.34% of patients, followed by lifestyle management programmes (including NHS and Expert Patient Programmes) at 90.24%. Diet management came third, with 83.33% patients rating this as helpful to their experience of ME/CFS over a 5-year period.
...Pacing refers to the individual pacing themselves. Pacing aims to maintain energy conservation by planning ahead, being attentive to cues of symptom flare up, and allowing
rest. EPP introduces a course similarly teaching patients self-management and includes good sleeping habits and exercise."
rest. EPP introduces a course similarly teaching patients self-management and includes good sleeping habits and exercise."
February 2, 2025 at 11:51 AM
...Pacing refers to the individual pacing themselves. Pacing aims to maintain energy conservation by planning ahead, being attentive to cues of symptom flare up, and allowing
rest. EPP introduces a course similarly teaching patients self-management and includes good sleeping habits and exercise."
rest. EPP introduces a course similarly teaching patients self-management and includes good sleeping habits and exercise."
From the report: "For 2022, 'Pacing' stands out among those who tried it, as one of the most helpful (96%) management methods alongside lifestyle courses run by the NHS centres and EPP (Expert Patient Programmes) (90%)...
February 2, 2025 at 11:51 AM
From the report: "For 2022, 'Pacing' stands out among those who tried it, as one of the most helpful (96%) management methods alongside lifestyle courses run by the NHS centres and EPP (Expert Patient Programmes) (90%)...
Pacing and lifestyle management courses (NHS or other) were rated highest (96% and 90%, respectively) among those that tried them.
Diet adjustments were third most helpful (83%). Medications for migraines (81%), pain (77%) and irritable bowel syndrome (76%) were also rated highly.
Diet adjustments were third most helpful (83%). Medications for migraines (81%), pain (77%) and irritable bowel syndrome (76%) were also rated highly.
February 2, 2025 at 11:51 AM
Pacing and lifestyle management courses (NHS or other) were rated highest (96% and 90%, respectively) among those that tried them.
Diet adjustments were third most helpful (83%). Medications for migraines (81%), pain (77%) and irritable bowel syndrome (76%) were also rated highly.
Diet adjustments were third most helpful (83%). Medications for migraines (81%), pain (77%) and irritable bowel syndrome (76%) were also rated highly.
Please DM for full article or contact Sussex & Kent ME/CFS Society
February 1, 2025 at 5:44 PM
Please DM for full article or contact Sussex & Kent ME/CFS Society