“Being a patient is a job - it’s like a full time job.” “It’s possible to be an insider and an outsider [if you’re a patient and a researcher].” - Zahra Sherwani #PxP25

“When we look back at this time, I hope we look back and think about how bizarre it was that patient partners weren’t part of all research.” - Knoll Larkin #PxP25

“Find your own voice and make it as quiet or as loud as you want it to be.” - Rita Schriemer #PxP25

2/ Maalvika is also leading the first ever PxP India virtual session on August 30th 7:00 PM - 8:30 PM IST. More info and register: pxphub.org/event/pxp-in...

@dawnrichards.bsky.social @profkarimkhan.bsky.social @proulxlaurie.bsky.social

With thanks to Kelly Ho, Shatha Atieth, Linda Niksic and Angela Woollam for leading the event, and to Erin Beattie and James Davis at @nmd4c.ca for supporting the session.

- Engaging and co-creating with patient partners from the start of a project makes research better throughout the research process. This includes working in a collaborative and bi-directional way on clear/plain language writing.

We discussed:
- Clear/plain language is about levelling the playing field and reducing power imbalances for all members of the research community.
- Everyone on the research team has a responsibility to communicate clearly and make intentional language choices.

@alexhaagaard.bsky.social

Thanks Dawn! Excited to see how things evolve on this platform!