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hypaccess.bsky.social
Hyp+Access
@hypaccess.bsky.social
10 followers 2 following 9 posts
Care access 501(c)(3) for people with connective tissue disorders & overlapping conditions - including but not limited to "hypermobility" syndromes, dysautonomia, MCAS, fibromyalgia, ME/CFS, and Long Covid. Hyp+Care clinic opening in NYC in 2026.
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hypaccess.bsky.social
From this season on the Hyp+Access blog -
Response to the Norris Lab Survey: what we think the paper gets right and wrong
hypaccess.org/resources/ar...
“breaking it down with Hyp+Access Norris Lab Survey: what the paper gets right and wrong “Defining the Chronic Complexities of hEDS and HSD: A Global Survey of Diagnostic Challenges, Life-Long Comorbidities, and Unmet Needs” Daylor, V., Griggs, M., Weintraub, A., Byrd, R., Petrucci, T., Huff, M., Byerly, K., Fenner, R., Severance, S., Griggs, C., Sharma, A., Atwal, P., Kautz, S.A., Shapiro, S., Youkhana, K., Lavallee, M., Wilkerson, A., Nichols, M., Snyder, A., Eichinger, J.K., Patel, S., Maitland, A., Gensemer, C., & Norris, R.A. (2025)”
December 24, 2025 at 3:28 AM
hypaccess.bsky.social
Popping on Bluesky to update our feed for future folks who find us here!

What is connective tissue? Pretty much the whole body!

What impacts connective tissue? Pretty much everything we go through in life!

Sign up for our newsletter for learning & updates - hypaccess.org/sign-up-for-...
Graphic with a light grey background and plum, bright pink, lilac accents. Title text reads: “What impacts Connective Tissue?” Many irregular hexagons nestle into one another to resemble a cell with a nucleus and an outer ring. The center text reads: “Connective Tissue.” The outer text reads: “ligaments, blood, cartilage, fat, lymph, tendons, bones, faschia, types, epithelial tissue*”. Circles holding text with arrows pointing toward the cell read: “sports/athletics/stretching, viral, infection, bacterial infection, mold, puberty, physical & mental trauma, genetics & many more!” Small text at the bottom reads, “*Hyp+Access considers epithelial tissue to be a specialized form of Connective Tissue.” A bright pink asymmetrical rounded H-shape resembling the goopy structure of connective tissue, followed by rounded letters reading “hyp+access” appears in the bottom right corner.
December 24, 2025 at 3:19 AM
hypaccess.bsky.social
Diagnosis can be a lot like gender in that our experiences are restricted by narrow definitions. Our experiences are not identical, no two Hyps are alike!
A set of two identical memes with differing labels. The meme features two sequential images. The first shows an infomercial presenter excitedly looking at a large tank of water exploding out of a hole. The second image shows the presenter slapping a piece of tape over the hole, as if it could permanently prevent the leak. The leaking water tank is labeled, “the expanse of gender expression.” The piece of tape is labeled, “the gender binary.” A set of two identical memes with differing labels. The meme features two sequential images. The first shows an infomercial presenter excitedly looking at a large tank of water exploding out of a hole. The second image shows the presenter slapping a piece of tape over the hole, as if it could permanently prevent the leak. The leaking water tank is labeled, “expression of Connective Tissue variance.” The piece of tape is labeled, “a random diagnosis from whatever specialist you happen to see.”
June 24, 2025 at 6:35 PM
hypaccess.bsky.social
x is a beloved Black disabled member of our local community. This Juneteenth, show any and all support you can, including: likes, comments, saves, shares and contributions!

SUPPORT x –
VENMO: @ justx
CASHAPP: $Avignon999
ZELLE: DM @unicorntampon
Photo of x, an Afro-Asian agender person with blonde Bantu knots, blushed cheeks and nose, and glitter brows donning a golden pleated sleeveless turtleneck with black trousers. On a light purple background, a squiggly border made up of pink, red, and green centers the following text that reads: Black, disabled trans community member, x is seeking support for June rent! GOAL: $525 Venmo: @ justx CashApp: $Avignon999 Zelle: DM @unicorntampon. There are cartoon stars accenting the graphic.
June 19, 2025 at 11:51 AM
hypaccess.bsky.social
Jermaine is a beloved Black disabled member of our local community. This Juneteenth, show your support via likes, comments, saves, shares and contributions!

SUPPORT Jermaine –
VENMO: @jermaine-greaves
CASHAPP: @tretrully
PAYPAL: paypal.me/jermainegreaves
GOFUNDME: gofund.me/315d574c
June 19, 2025 at 11:50 AM
hypaccess.bsky.social
“My [other] specialist refused to move away from the benign category and never updated my chart even after receiving my official diagnosis.”. Community member, x, shares faer experiences with "benign" hypermobility in our latest: ow.ly/jnpJ50WatIY
June 17, 2025 at 12:55 PM
hypaccess.bsky.social
The current medical system fails people in ways that require us to advocate for ourselves. Community member, x, shares faer experiences in being diagnosed with “benign” hypermobility in our latest: hypaccess.org/news/testimo...
June 13, 2025 at 12:48 AM
hypaccess.bsky.social
New captioned event recording! Cannabis: Multi-System Care ft. Dr. June Chin of Leafwell

🎥 Watch on YouTube: www.youtube.com/watch?v=7swM...
June 5, 2025 at 4:01 PM
hypaccess.bsky.social
Hyp+Access is opening a clinic! We’re transforming care access for people with Connective Tissue disorders and overlapping conditions.

Read or listen more in our latest, an interview with Karina Sturm of Chronic Pain Partners EDSA: www.chronicpainpartners.com/hypcare-a-ne...
Hyp+Care: A New Clinic for Chronic Conditions including EDS In New York & Beyond – EDSAwareness.com
Finding medical support - whether that is from a doctor, a physical therapist or other experts - when living with Ehlers-Danlos syndrome and comorbid conditions is incredibly challenging. Often, patie...
www.chronicpainpartners.com
June 5, 2025 at 2:14 AM