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@iamals.bsky.social

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I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.

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iamals.bsky.social @iamals.bsky.social · 24d

We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress

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iamals.bsky.social @iamals.bsky.social · 23h

Caregivers — we want to hear from you. How do you care for yourself? Tell us at bit.ly/careALS

iamals.bsky.social @iamals.bsky.social · 1d

After Julie’s diagnosis, she poured her time and energy into her friends, family, and loved ones. She used her story to educate others about ALS and made the most of every moment.

iamals.bsky.social @iamals.bsky.social · 1d

In honor of Hispanic Heritage Month (and with the generous assistance of volunteer Carmita Silva), several of our most popular ALS resources are now available in Spanish! Check out "¿Recientemente diagnosticado?" en español: https://bit.ly/4nHRfJJ

Colorful promotional graphic for Hispanic Heritage Month, announcing resources in Spanish for those recently diagnosed with ALS, by the organization I AM ALS.

iamals.bsky.social @iamals.bsky.social · 1d

Social Hour is back, and (of course) this month’s theme is Halloween! Come in costume bearing treats (or tricks) for your fellow attendees. Join us on October 21... if you dare! https://bit.ly/4jbhYuS

Promotional graphic for Social Hour, hosted by I AM ALS, featuring a festive Halloween theme with a smartphone displaying the event webpage. Details include the event time at 6pm ET on October 21, with RSVP link provided.

iamals.bsky.social @iamals.bsky.social · 1d

Juan Reyes is an Air Force Veteran, community member, and advocate fighting for better treatment opportunities and support for people impacted by ALS!

Thank you for all your amazing work, Juan!

iamals.bsky.social @iamals.bsky.social · 2d

November is National Family Caregiver Month, and we're looking forward to sharing incredible stories of resilience and courage from caregivers like you. Share your caregiver story today, and you might see it on our socials next month! https://bit.ly/4kOeH5B

Promotional image for I AM ALS, featuring two individuals at a table, one in a wheelchair, in an engaging conversation under text about celebrating caregiver stories.

iamals.bsky.social @iamals.bsky.social · 2d

What is the ALS Caucus? Why is it important? And how do I get my elected officials to join? Get the answers to all these questions and more at our ALS Caucus 101 webinar on October 15!
🗓️ RSVP today: https://bit.ly/3W33ILB

Promotional image for an "ALS Caucus 101" webinar hosted by the I AM ALS Legislative Affairs Team. Features an illustration of the Capitol Building. Event scheduled for Wednesday, October 15 at 5:30 PM ET. Includes graphic elements in orange and blue with text in white and blue.

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iamals.bsky.social @iamals.bsky.social · 7d

Music Fights ALS 2025 has officially begun! A $20 donation to I AM ALS = one raffle ticket for an amazing music photography prize of your choice, all throughout October. Check out some of this year's prizes and enter today at musicfightsals.com!

Promotional graphic for Music Fights ALS Year 5, featuring three stylized guitars in blue and orange against a sunset background. Text includes the event name and the website 'www.musicfightsals.com'.

Promotional image featuring musician Prince in 1980, sitting on a sofa. Photo by Deborah Feingold. Text overlay includes 'Win This!' and logos for I AM ALS and Music Fights ALS.

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iamals.bsky.social @iamals.bsky.social · 4d

Gill and his Veteran allies and friends are advocating hard for ALS funding and research. Together, they helped double funding for a DOD-led program from $10 to $20 million!

Join their fight TODAY by pushing for the reauthorization of the ACT for ALS @ bit.ly/fundALS

iamals.bsky.social @iamals.bsky.social · 5d

A WELL-DESERVED congratulations to Eric Dane for being recognized as ALS Advocate of the Year!

Eric has been working hard behind the scenes to push for real progress and a cure for ALS, and we couldn’t be prouder to have his support and partnership in this movement.

Congrats, Eric!

iamals.bsky.social @iamals.bsky.social · 5d

We know firsthand how isolating ALS can be.

But the good news is, you don’t have to go it alone! Head over to bit.ly/IAACalendar to find events, build community, and make lifelong friends!

iamals.bsky.social @iamals.bsky.social · 5d

ACT for ALS, if reauthorized and fully funded, can potentially provide THOUSANDS of people living with ALS with more access to treatments. That’s why we’re partnering with Eric Dane to push for its reauthorization next year.

Join our fight TODAY @ bit.ly/fundALS

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iamals.bsky.social @iamals.bsky.social · 5d

Born & raised in Puerto Rico, Troy Fields is a patient rep, community leader, Bad Bunny fan, & friend helping reform EAPs for people living with ALS.

THANK YOU for everything you do for I AM ALS, Troy, & Happy Hispanic Heritage Month!

Are YOU also a Bad Bunny fan? Comment a 🐰!

iamals.bsky.social @iamals.bsky.social · 5d

If you are or a loved one is living with ALS, just know you are not alone. Julie, Nicky, Perfecto, Walter, Margarita, and thousands of community members are in this with you.

iamals.bsky.social @iamals.bsky.social · 6d

Looking for an easy—and fun—way to #PushforProgress? Host an Empathy Dinner!

VISIT bit.ly/empathydinner for a toolkit TODAY!

iamals.bsky.social @iamals.bsky.social · 7d

When someone you love has ALS, what’s precious to them becomes precious to you. After her dad’s diagnosis, Nicky found comfort in baseball.

If you are or a loved one is living with ALS, do your best to carve out time for things that bring you joy.

iamals.bsky.social @iamals.bsky.social · 7d

🗓️ Medicare Open Enrollment is coming!
Join us TODAY, October 1, at 2pm ET for a free webinar on how to choose the best coverage for you or a loved one.
📲 Sign up here: https://bit.ly/46QqpYx

iamals.bsky.social @iamals.bsky.social · 7d

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iamals.bsky.social @iamals.bsky.social · 8d

Confused about Medicare open enrollment? We’ll help you:
✔️ Understand your options
✔️ Weigh Advantage vs. Traditional Medicare
✔️ Plan for 2026 changes

✨ Free virtual event, TOMORROW October 1 ✨
🔗 Register now: https://bit.ly/46QqpYx

iamals.bsky.social @iamals.bsky.social · 8d

The ALS Caucus is our first line of champions on Capitol Hill, which is why it's so important to recruit new members of Congress to join. Learn more about the Caucus and get tips on how to ask your members to join at our ALS Caucus 101 webinar! RSVP today: https://bit.ly/3W33ILB

Promotional image for an ALS Caucus 101 webinar hosted by I AM ALS Legislative Affairs Team. The event is scheduled for Wednesday, October 15 at 5:30 PM ET. Features an illustration of the Capitol Building at the top.

iamals.bsky.social @iamals.bsky.social · 8d

September has been HUGE at I AM ALS. THANK YOU for being part of our success!

But our work isn’t over yet, and we’re SO CLOSE to finding real treatments for ALS. Head over to bit.ly/fundALS to help get us there!

iamals.bsky.social @iamals.bsky.social · 8d

Next stop: all smiles with Senator Tammy Baldwin! Join Eric Dane to advocate for the future of federally funded ALS research. Help us reauthorize ACT for ALS. https://bit.ly/4mlLjo7

iamals.bsky.social @iamals.bsky.social · 8d

We're back on Capitol Hill with Eric Dane! I AM ALS staff, board member Dan Tate, and Legislative Affairs Team co-chair Jack Silva joined Eric in a meeting with ALS champion Rep. Frank Pallone. Advocate alongside Eric by asking your elected officials to support ACT for ALS: https://bit.ly/4mlLjo7

iamals.bsky.social @iamals.bsky.social · 9d

Curious about clinical trial options for ALS? Check out ALS Signal! Our clinical research dashboard has info on trials from all over, and you can filter by things like location and eligibility requirements. There's even a special section for Expanded Access! Check it out: https://bit.ly/43Obk9A

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iamals.bsky.social @iamals.bsky.social · 9d

Today is World Heart Day! ALS is so often misdiagnosed because we don’t fully understand the symptoms.

ALS cardiac symptoms show up in the early stages and can include palpitations, dizziness, and shortness of breath. Hit share to spread awareness!