@iamals.bsky.social
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
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iamals.bsky.social
@iamals.bsky.social
· Sep 15
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
Need ALS resources? We got you! Visit our Online Resource Center for FREE guides, FAQs, and ways to plug in to the ALS community.
February 13, 2026 at 2:45 PM
Need ALS resources? We got you! Visit our Online Resource Center for FREE guides, FAQs, and ways to plug in to the ALS community.
Our volunteers are the backbone of all of our work here at I AM ALS! 2026 is a BIG year with ACT for ALS expiring soon, and we need as many hands as we can get! JOIN the movement TODAY at bit.ly/vol4ALS
February 13, 2026 at 2:11 PM
Our volunteers are the backbone of all of our work here at I AM ALS! 2026 is a BIG year with ACT for ALS expiring soon, and we need as many hands as we can get! JOIN the movement TODAY at bit.ly/vol4ALS
If you liked Will's POWERFUL story, you'll LOVE this article. Check it out at bit.ly/WillNews1
February 12, 2026 at 8:10 PM
If you liked Will's POWERFUL story, you'll LOVE this article. Check it out at bit.ly/WillNews1
Wilbert's POWERFUL story takes us through his and his dad's journey of breaking generational norms by learning to ask for help. Wilbert is also a VERY poetic writer. Trust us—you don't want to miss his story. Check it out at bit.ly/AFHWilbert
February 12, 2026 at 4:50 PM
Wilbert's POWERFUL story takes us through his and his dad's journey of breaking generational norms by learning to ask for help. Wilbert is also a VERY poetic writer. Trust us—you don't want to miss his story. Check it out at bit.ly/AFHWilbert
Unfortunately, stories like Vanessa's are all too common. Black people living with ALS face longer diagnosis delays & less access to palliative care. That's why we're pushing to build a robust research ecosystem—to better understand ALS & find therapies that EVERYONE can access.
February 12, 2026 at 3:11 PM
Unfortunately, stories like Vanessa's are all too common. Black people living with ALS face longer diagnosis delays & less access to palliative care. That's why we're pushing to build a robust research ecosystem—to better understand ALS & find therapies that EVERYONE can access.
ACT for ALS passed in 2021 with STRONG bipartisan support—thanks to your advocacy! But it expires in just a few months if we don't redouble our efforts. PUSH for reauthorization TODAY @ bit.ly/fundALS
February 12, 2026 at 1:46 PM
ACT for ALS passed in 2021 with STRONG bipartisan support—thanks to your advocacy! But it expires in just a few months if we don't redouble our efforts. PUSH for reauthorization TODAY @ bit.ly/fundALS
Many Shades of ALS has dispelled misconceptions, raised awareness, and increased diversity and representation within the ALS community. Learn more at tinyurl.com/MSOATeam
February 11, 2026 at 5:13 PM
Many Shades of ALS has dispelled misconceptions, raised awareness, and increased diversity and representation within the ALS community. Learn more at tinyurl.com/MSOATeam
The GAO's report on ACT for ALS confirmed two things (among MANY!) that we already knew—EAPs increase access to investigational therapies AND help us better understand ALS. KEEP pushing for more progress at bit.ly/fundALS
February 11, 2026 at 5:10 PM
The GAO's report on ACT for ALS confirmed two things (among MANY!) that we already knew—EAPs increase access to investigational therapies AND help us better understand ALS. KEEP pushing for more progress at bit.ly/fundALS
Thanks to your hard work and dedicated advocacy, we secured an unprecendented $313 million in ALS federal funding in this year's budget! Let's keep this progress going. HELP the Leg Team @ bit.ly/LegTeam
February 11, 2026 at 4:12 PM
Thanks to your hard work and dedicated advocacy, we secured an unprecendented $313 million in ALS federal funding in this year's budget! Let's keep this progress going. HELP the Leg Team @ bit.ly/LegTeam
We all know caregivers carry too much on their own—mentally, physically, and even financially. If passed, the Credit for Caring Act of 2025 would provide relief through a $5,000 tax credit. Ask your senators and reps to cosponsor the bill at bit.ly/credit4care
February 11, 2026 at 3:51 PM
We all know caregivers carry too much on their own—mentally, physically, and even financially. If passed, the Credit for Caring Act of 2025 would provide relief through a $5,000 tax credit. Ask your senators and reps to cosponsor the bill at bit.ly/credit4care
ACT for ALS doesn't just expand access to promising therapies now. It also fast-tracks FDA approval for these therapies. Check out the full video to learn more at bit.ly/A4AWebinar
February 11, 2026 at 3:12 PM
ACT for ALS doesn't just expand access to promising therapies now. It also fast-tracks FDA approval for these therapies. Check out the full video to learn more at bit.ly/A4AWebinar
Dr. Sean Smith, ALS Clinic Director at WashU Medicine, is often praised by his patients for his kind, compassionate care and manner. Thank you for everything you do, Dr. Smith!
February 10, 2026 at 5:08 PM
Dr. Sean Smith, ALS Clinic Director at WashU Medicine, is often praised by his patients for his kind, compassionate care and manner. Thank you for everything you do, Dr. Smith!
Studies—and community stories—have shown that asking for help can bring us closer to each other. So tell us, community: How has asking for and receiving help changed YOUR relationships? Drop a comment below! ↓
February 10, 2026 at 3:55 PM
Studies—and community stories—have shown that asking for help can bring us closer to each other. So tell us, community: How has asking for and receiving help changed YOUR relationships? Drop a comment below! ↓
Our support groups are safe spaces for connection and community, created by AND for people impacted by ALS. Join TODAY @ bit.ly/ALSgroups
February 10, 2026 at 3:48 PM
Our support groups are safe spaces for connection and community, created by AND for people impacted by ALS. Join TODAY @ bit.ly/ALSgroups
Check out I AM ALS Peer Mentor Juan Reyes' "The ALS Express: Expressive Reflections on Living With ALS" for a raw, unfiltered glimpse into the reality of living with ALS! Grab YOUR copy → bit.ly/ALSExpress
February 9, 2026 at 5:09 PM
Check out I AM ALS Peer Mentor Juan Reyes' "The ALS Express: Expressive Reflections on Living With ALS" for a raw, unfiltered glimpse into the reality of living with ALS! Grab YOUR copy → bit.ly/ALSExpress
Tim Lowrey began this panel series to educate more people about ALS through their schools or places of work. We miss him very dearly, and we're upholding his legacy by continuing to offer his virtual panel discussions. Request a panel @ bit.ly/ALSPanel
February 9, 2026 at 4:12 PM
Tim Lowrey began this panel series to educate more people about ALS through their schools or places of work. We miss him very dearly, and we're upholding his legacy by continuing to offer his virtual panel discussions. Request a panel @ bit.ly/ALSPanel
The ALS Caucus has made many of our wins possible—ACT for ALS, historic ALS funding, and promising therapies. But we'll lose 13% of the caucus this year without action. Ask your legislator to join TODAY → bit.ly/ALSviewer
February 9, 2026 at 4:12 PM
The ALS Caucus has made many of our wins possible—ACT for ALS, historic ALS funding, and promising therapies. But we'll lose 13% of the caucus this year without action. Ask your legislator to join TODAY → bit.ly/ALSviewer
Margit found strength in her Crossfit community—but not how you'd think. She asked for help, and they responded with an outpouring of love and support. Full story @ bit.ly/AFHMargit
February 8, 2026 at 4:53 PM
Margit found strength in her Crossfit community—but not how you'd think. She asked for help, and they responded with an outpouring of love and support. Full story @ bit.ly/AFHMargit
Finding specialized ALS care is one of the hardest parts of navigating this disease. That's why we put this resource together for you! Check it out at bit.ly/myALSclinic
February 8, 2026 at 4:05 PM
Finding specialized ALS care is one of the hardest parts of navigating this disease. That's why we put this resource together for you! Check it out at bit.ly/myALSclinic
Community keeps us ALL going. If you're impacted by ALS, get 1:1 virtual ALS support from our trained Peer Mentors. They see you. They get it. And they're here to help :) SIGN UP TODAY at bit.ly/ALSpeers
February 8, 2026 at 2:52 PM
Community keeps us ALL going. If you're impacted by ALS, get 1:1 virtual ALS support from our trained Peer Mentors. They see you. They get it. And they're here to help :) SIGN UP TODAY at bit.ly/ALSpeers
Thank you to all who joined our ACT for ALS Webinar last month! In case you missed it, you can catch the full video on YouTube at bit.ly/A4AWebinar
February 7, 2026 at 9:11 PM
Thank you to all who joined our ACT for ALS Webinar last month! In case you missed it, you can catch the full video on YouTube at bit.ly/A4AWebinar
Announcing the I AM ALS Storytelling Crew! If you're impacted by ALS, join us for a six-week workshop to build confidence and connection through storytelling. JOIN TODAY @ bit.ly/StorytellingCrew
February 7, 2026 at 8:12 PM
Announcing the I AM ALS Storytelling Crew! If you're impacted by ALS, join us for a six-week workshop to build confidence and connection through storytelling. JOIN TODAY @ bit.ly/StorytellingCrew
Kendra Womack's dedicated efforts as co-chair of Many Shades of ALS have helped make the ALS community more responsive to people of color living with ALS. Drop a "Thank you, Kendra! 🧡" in the comments below!
February 7, 2026 at 3:05 PM
Kendra Womack's dedicated efforts as co-chair of Many Shades of ALS have helped make the ALS community more responsive to people of color living with ALS. Drop a "Thank you, Kendra! 🧡" in the comments below!
Follow the Cures Collective TODAY for opportunities to advocate for ALL neurodegenerative diseases: IG: @curescollective | LinkedIn: Cures Collective | Updates: bit.ly/CuresUpdates
February 6, 2026 at 3:12 PM
Follow the Cures Collective TODAY for opportunities to advocate for ALL neurodegenerative diseases: IG: @curescollective | LinkedIn: Cures Collective | Updates: bit.ly/CuresUpdates
Find your tribe and join a Community Team TODAY @ bit.ly/vol4ALS
February 6, 2026 at 2:13 PM
Find your tribe and join a Community Team TODAY @ bit.ly/vol4ALS