@iamals.bsky.social
I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS. We’re fueled by urgency to find a cure and a track record of real impact.
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iamals.bsky.social
@iamals.bsky.social
· Sep 15
We're launching our Push for Progress campaign to accelerate ALS research, expand treatment access, & secure $1BN in federal funding over 3 years. ALS is at a tipping point CLOSE to new treatments, but thousands will lose access unless we TAKE ACTION @ iamals.org/progress
We're partnering with Broth Agency to bring awareness and find answers to two major questions: why are Veterans more than two times as likely to be diagnosed with ALS, and how can we change that? This is Operation: END ALS. JOIN US TODAY @ operationendals.org
November 27, 2025 at 8:06 PM
We're partnering with Broth Agency to bring awareness and find answers to two major questions: why are Veterans more than two times as likely to be diagnosed with ALS, and how can we change that? This is Operation: END ALS. JOIN US TODAY @ operationendals.org
Community, Happy Thanksgiving! What's your favorite Thanksgiving dish? Tell us in the comments below! 👇
November 27, 2025 at 1:52 PM
Community, Happy Thanksgiving! What's your favorite Thanksgiving dish? Tell us in the comments below! 👇
Introducing OPERATION: END ALS. We're working with Broth Agency to raise awareness about the elevated ALS risk among Veterans and push for answers. JOIN US NOW @ bit.ly/op-endALS
November 26, 2025 at 3:54 PM
Introducing OPERATION: END ALS. We're working with Broth Agency to raise awareness about the elevated ALS risk among Veterans and push for answers. JOIN US NOW @ bit.ly/op-endALS
The average family caregiver spends $7,242 or 26% of their annual income caring for their family member.
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
November 26, 2025 at 2:06 PM
The average family caregiver spends $7,242 or 26% of their annual income caring for their family member.
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
For ALS caregivers, that number skyrockets to $85,000 to $250,000 a year.
Caregivers need more support, now. #ProgressisPersonal
Any parents who are also ALS caregivers can relate to Allie's heartbreaking story. To anyone who can relate—we see you, we hear you, and we're honoring YOU this month. #ProgressisPersonal
November 25, 2025 at 4:14 PM
Any parents who are also ALS caregivers can relate to Allie's heartbreaking story. To anyone who can relate—we see you, we hear you, and we're honoring YOU this month. #ProgressisPersonal
THANK YOU to everyone who participated in this big moment with us! And perhaps most of all: thank you Eric for sharing your story with the world. ❤️
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
November 25, 2025 at 3:46 PM
THANK YOU to everyone who participated in this big moment with us! And perhaps most of all: thank you Eric for sharing your story with the world. ❤️
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
Did you watch "Brilliant Minds" last night? If so, share your thoughts below!
Meet Allie! She's an artist, mother, caregiver, and a fierce online advocate for ALS research and funding. We can't wait to share her story with you. #ProgressisPersonal
November 25, 2025 at 1:51 PM
Meet Allie! She's an artist, mother, caregiver, and a fierce online advocate for ALS research and funding. We can't wait to share her story with you. #ProgressisPersonal
Tonight's #BrilliantMinds with @realericdane on @nbc shines a light on the stark realities of ALS. We're working to change that reality and end ALS. Give NOW to help—every $1 you donate tonight will be matched by +$2! Donate at https://bit.ly/3Xg2pty.
November 25, 2025 at 3:06 AM
Tonight's #BrilliantMinds with @realericdane on @nbc shines a light on the stark realities of ALS. We're working to change that reality and end ALS. Give NOW to help—every $1 you donate tonight will be matched by +$2! Donate at https://bit.ly/3Xg2pty.
WE REACHED OUR $10K MATCH! Thank you so much to everyone who donated to help us get there. But we're not done yet! More amazing donors have stepped forward, pledging a $2 match for every $1 donated for the rest of today up to $10,000. Give now to TRIPLE your impact! https://bit.ly/3Xg2pty
November 24, 2025 at 10:00 PM
WE REACHED OUR $10K MATCH! Thank you so much to everyone who donated to help us get there. But we're not done yet! More amazing donors have stepped forward, pledging a $2 match for every $1 donated for the rest of today up to $10,000. Give now to TRIPLE your impact! https://bit.ly/3Xg2pty
We are SO CLOSE to fully funding the $10K match that our beloved board member Dan Tate pledged today. Can you help us get there? Donate $7 NOW to help us get to $10K raised before 4pm ET!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
November 24, 2025 at 8:36 PM
We are SO CLOSE to fully funding the $10K match that our beloved board member Dan Tate pledged today. Can you help us get there? Donate $7 NOW to help us get to $10K raised before 4pm ET!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
Click to give: https://bit.ly/3KiV0Xk
And TUNE IN tonight at 10pm ET to NBC!
Eric Dane delivers a powerhouse performance in this week’s Brilliant Minds as Matthew, a firefighter confronting ALS with courage, heart, and authenticity. Don’t miss it! Tune in TODAY on NBC as we shine a light on ALS and the hope driving I AM ALS' #PushForProgress.
November 24, 2025 at 4:14 PM
Eric Dane delivers a powerhouse performance in this week’s Brilliant Minds as Matthew, a firefighter confronting ALS with courage, heart, and authenticity. Don’t miss it! Tune in TODAY on NBC as we shine a light on ALS and the hope driving I AM ALS' #PushForProgress.
Mike & Linda Buhr are partners in more ways than one.
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
November 24, 2025 at 12:11 AM
Mike & Linda Buhr are partners in more ways than one.
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
Together, they have advocated for more treatments and a cure for ALS, and on top of his caregiving duties, Mike is co-chair of the Clinical Trials Team.
For Mike, caregiving and advocacy go hand in hand. #ProgressisPersonal
Whether virtually or in person, engaging with this community has always been the highlight of our work.
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
November 23, 2025 at 11:50 PM
Whether virtually or in person, engaging with this community has always been the highlight of our work.
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
Whether you’ve been a part of the I AM ALS community for years, weeks, or hours, what’s your favorite thing about the ALS community?
Tell us in the comments! 👇
We know Veterans are more than two times as likely to be diagnosed with ALS, and their experiences with the disease are unique.
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
November 22, 2025 at 7:49 PM
We know Veterans are more than two times as likely to be diagnosed with ALS, and their experiences with the disease are unique.
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
If you’re a Veteran living with ALS, we have a space just for you.
JOIN TODAY @ bit.ly/ALSgroups
Community, meet Mike! He is a loving husband, caregiver, volunteer, father, and VERY active within the ALS community.
Stay tuned for Mike’s story! #ProgressisPersonal
Stay tuned for Mike’s story! #ProgressisPersonal
November 22, 2025 at 7:49 PM
Community, meet Mike! He is a loving husband, caregiver, volunteer, father, and VERY active within the ALS community.
Stay tuned for Mike’s story! #ProgressisPersonal
Stay tuned for Mike’s story! #ProgressisPersonal
📺 DON’T MISS IT— Eric Dane on Brilliant Minds NBC on Monday 11/24 @ 10pm EST/9pm CST playing a firefighter struggling to share his ALS diagnosis with his family!
November 21, 2025 at 10:47 PM
📺 DON’T MISS IT— Eric Dane on Brilliant Minds NBC on Monday 11/24 @ 10pm EST/9pm CST playing a firefighter struggling to share his ALS diagnosis with his family!
The Tim Lowrey ALS Panel Series is making headlines! Huge thanks to Juliet Taylor for covering this program and its impressive growth. If your classroom, workplace, or organization could benefit from hearing from people impacted by ALS, request a panel: https://bit.ly/481WJIA
ALS panel series shares information, insight, and hope
Columnist Juliet Taylor discusses the Tim Lowrey ALS Panel Series, which has provided tailored information to 1,500 people this year alone.
bit.ly
November 21, 2025 at 9:13 PM
The Tim Lowrey ALS Panel Series is making headlines! Huge thanks to Juliet Taylor for covering this program and its impressive growth. If your classroom, workplace, or organization could benefit from hearing from people impacted by ALS, request a panel: https://bit.ly/481WJIA
Community, THANK YOU. We’re closer than ever to reauthorizing ACT for ALS, and we would not have come this far without you.
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
November 21, 2025 at 4:09 PM
Community, THANK YOU. We’re closer than ever to reauthorizing ACT for ALS, and we would not have come this far without you.
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
But our work isn’t done yet. JOIN US TODAY @ bit.ly/fundALS to keep this critical ALS research funding in place!
Real talk—caregiving is HARD, and we all need space to process our feelings. 📖
That's why our friend and ally Maria is giving away five FREE copies of "In My Own Words: A Journal for Caregivers". COMMENT "care" below for a chance to win a copy! 👇👇
That's why our friend and ally Maria is giving away five FREE copies of "In My Own Words: A Journal for Caregivers". COMMENT "care" below for a chance to win a copy! 👇👇
November 21, 2025 at 3:54 PM
Real talk—caregiving is HARD, and we all need space to process our feelings. 📖
That's why our friend and ally Maria is giving away five FREE copies of "In My Own Words: A Journal for Caregivers". COMMENT "care" below for a chance to win a copy! 👇👇
That's why our friend and ally Maria is giving away five FREE copies of "In My Own Words: A Journal for Caregivers". COMMENT "care" below for a chance to win a copy! 👇👇
Denise’s day-to-day is a masterclass in balance—while juggling full-time work and caregiving, she finds time for connection with her family AND self-care. How? Community.
If you know a caregiver, visit them, offer to help for a few, or call them for 5 minutes. Trust us, it makes a HUGE difference!
If you know a caregiver, visit them, offer to help for a few, or call them for 5 minutes. Trust us, it makes a HUGE difference!
November 21, 2025 at 2:11 PM
Denise’s day-to-day is a masterclass in balance—while juggling full-time work and caregiving, she finds time for connection with her family AND self-care. How? Community.
If you know a caregiver, visit them, offer to help for a few, or call them for 5 minutes. Trust us, it makes a HUGE difference!
If you know a caregiver, visit them, offer to help for a few, or call them for 5 minutes. Trust us, it makes a HUGE difference!
Denise Nakakihara is a wife, mother, and caregiver whose duties require meticulous planning—her days are planned down to the minute.
We can’t wait to share her story with you. If you’re a caregiver to someone living with ALS, share YOUR story @ bit.ly/careALS
We can’t wait to share her story with you. If you’re a caregiver to someone living with ALS, share YOUR story @ bit.ly/careALS
November 20, 2025 at 4:06 PM
Denise Nakakihara is a wife, mother, and caregiver whose duties require meticulous planning—her days are planned down to the minute.
We can’t wait to share her story with you. If you’re a caregiver to someone living with ALS, share YOUR story @ bit.ly/careALS
We can’t wait to share her story with you. If you’re a caregiver to someone living with ALS, share YOUR story @ bit.ly/careALS
We all have our reasons for joining this movement. For Eric Dane, he wants to be around to watch his daughters grow.
But our goal is the same—a world without ALS.
Help us get there TODAY @ bit.ly/fundALS
But our goal is the same—a world without ALS.
Help us get there TODAY @ bit.ly/fundALS
November 20, 2025 at 1:49 PM
We all have our reasons for joining this movement. For Eric Dane, he wants to be around to watch his daughters grow.
But our goal is the same—a world without ALS.
Help us get there TODAY @ bit.ly/fundALS
But our goal is the same—a world without ALS.
Help us get there TODAY @ bit.ly/fundALS
Dr. Bedlack is back! This time, he’s joining our push to pass The CONNECT Act.
The CONNECT Act would expand care access for anyone living ALS, NO MATTER where they live.
Help lighten the load for people living with ALS & caregivers. Support CONNECT @ bit.ly/CONNECT4health
The CONNECT Act would expand care access for anyone living ALS, NO MATTER where they live.
Help lighten the load for people living with ALS & caregivers. Support CONNECT @ bit.ly/CONNECT4health
November 19, 2025 at 3:54 PM
Dr. Bedlack is back! This time, he’s joining our push to pass The CONNECT Act.
The CONNECT Act would expand care access for anyone living ALS, NO MATTER where they live.
Help lighten the load for people living with ALS & caregivers. Support CONNECT @ bit.ly/CONNECT4health
The CONNECT Act would expand care access for anyone living ALS, NO MATTER where they live.
Help lighten the load for people living with ALS & caregivers. Support CONNECT @ bit.ly/CONNECT4health
Holidays can be stressful for everyone, but caregivers may find them particularly challenging.
Caregivers—here are some ways you can care for and celebrate YOURSELF this holiday season, courtesy of @familycaregiver.bsky.social
Caregivers—here are some ways you can care for and celebrate YOURSELF this holiday season, courtesy of @familycaregiver.bsky.social
November 19, 2025 at 2:12 PM
Holidays can be stressful for everyone, but caregivers may find them particularly challenging.
Caregivers—here are some ways you can care for and celebrate YOURSELF this holiday season, courtesy of @familycaregiver.bsky.social
Caregivers—here are some ways you can care for and celebrate YOURSELF this holiday season, courtesy of @familycaregiver.bsky.social
Caring for Erin brings gratitude, grief, and moments of joy into Lily’s life.
Lily wants to see more and improved support for caregivers, including therapy, subsidies, and financial support.
Lily wants to see more and improved support for caregivers, including therapy, subsidies, and financial support.
November 18, 2025 at 4:11 PM
Caring for Erin brings gratitude, grief, and moments of joy into Lily’s life.
Lily wants to see more and improved support for caregivers, including therapy, subsidies, and financial support.
Lily wants to see more and improved support for caregivers, including therapy, subsidies, and financial support.