Institute for Health and Disability Policy Studies
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ihdps.bsky.social
Institute for Health and Disability Policy Studies
@ihdps.bsky.social
120 followers 170 following 87 posts
To conduct timely and meaningful research and evaluation to inform health and disability policy, with the goal of improving access and quality of care for all people, particularly for those with disabilities and chronic illnesses.
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ihdps.bsky.social
New journal article from IHDPS explores whether having a proxy leads to people with disabilities being incorrectly represented in survey data.

Read the full article at: www.frontiersin.org/journals/res...

#DisabilityResearch #DisabilityData
Text: Does who responds matter?: exploring potential proxy response bias in the Washington Group Short Set disability estimates Aaron Beuoy & Kelsey Goddard Published in Frontiers in Research Metrics and Analytics DOI: 10.3389/frma.2025.1654769 Images: A black man using a wheelchair talks to a woman in a suit who holds a clipboard with information between them, KU The University of Kansas Institute for Health and Disability Policy Studies logo
November 4, 2025 at 9:03 PM
ihdps.bsky.social
Datasets from Transportation, Labor, and Commerce departments connect employers with talented Americans with disabilities.

#DisabilityData #ResearchMatters

(Links in comments) - Post 2 of 2
text: A nonprofit disability organization launches a small business accelerator when they learn from the Current Population Survey's disability labor force characteristics data that workers with disabilities are twice as likely to be self-employed than work for someone image: a woman sitting and drawing on an easel text: The bad news is all of these datasets are at risk. The good news resources like EssentialData.us help make the case for how federal datasets benefit American lives and livelihoods. text: learn more at EssentialData.us psst did you know? these graphics are made by a disabled designer heart kate text & images: image credits - man with bus - metropolitan transportation authority via Flickr, woman on couch - resume genius via Unsplash, woman drawing - European disability forum via Flickr, man with pig - U.S. department of Agriculture via Flickr
October 28, 2025 at 7:50 PM
ihdps.bsky.social
U.S. Chief Data Scientist @denicewross.bsky.social worked with the Disability Health Equity Research Network (DHERN) to show the connection between disability data to real outcomes for people with disabilities.

#DisabilityData #ResearchMatters

(Links in comments) - Post 1 of 2
text: federal datasets for national disability employment awareness month that keep disabled Americans going images: man with wheelchair entering bus, man with wheelchair feeding pig, Disability Health Equity Research Network logo, FAS federation of American scientists logo, America's Essential Data logo text: a wheelchair user has an easier commute to work thanks to expanded door-to-door transit services in response to the National Household Travel Survey showing the employment barriers faced by adults with travel-limiting disabilities image: man with wheelchair entering bus text: A cancer patient continues working during treatment because they find info about workplace accommodations that match their symptoms and job duties in the Job Accommodation Network Situations and Solutions finder database, from the Office of Disability Employment policy image: woman sits on couch using her laptop text: A farmworker paralyzed in a combine accident finds the right assistive tech to continue working with help from AgrAbility, a USDA-funded program that exists to serve the 2 in 10 farmers who are living with disabilities, a need made visible by American Survey Data image: a man with a wheelchair feeds a pig
October 28, 2025 at 7:48 PM
ihdps.bsky.social
We are at the last day of Center on KTDRR 's 2025 Virtual Knowledge Translation (KT) Conference this year, and are learning about lots of great KT resources!

One is a pilot project in Nigeria presented by Charles Chibuisi Ehiemere - Familia Solutions. More info in comments.
Website screenshot. Familia Supporting Maternal & Child Health Empowering women of reproductive age with digital health solutions for better maternal and child health outcomes
October 23, 2025 at 7:37 PM
ihdps.bsky.social
The new journal article from IHDPS shows a link between transportation access and better social connectivity and health for people with disabilities.

Read more in the Journals of Transport and Health:
doi.org/10.1016/j.jth.2025.102165

#DisabilityResearch #DisabilityHealth #DisabilityTransport
The moderating effects of perceived transportation access on health and social connectedness for people with disabilities Published in Journals of Transport & Health DOI: 10.1016/j.jth.2025.102165 Man using a wheelchair uses a lift to enter a van with assistance from another man KU The University of Kansas Institute for Health and Disability Policy Studies logo
October 14, 2025 at 7:50 PM
ihdps.bsky.social
Sign up for our newsletter at: tinyurl.com/ycxepyzk

#DisabilityResearch
A man in a wheelchair reads a newspaper. Text: Interested in disability research? Sign up for the IHDPS newsletter to learn more about the Data Analysis Team, ongoing research, and more! KU The University of Kansas Institute for Health and Disability Policy Studies logo
August 26, 2025 at 8:28 PM
ihdps.bsky.social
IHDPS is launching a newsletter!

Sign up at: tinyurl.com/ycxepyzk
Text: Sign up for the IHDPS newsletter to keep up on disability research news, resources, and other opportunities! Image: A woman with a prosthetic leg reads a newspaper KU The University of Kansas Institute for Health and Disability Policy Studies logo
August 21, 2025 at 8:25 PM
ihdps.bsky.social
NIDILRR funds disability research across the U.S., including many IHDPS projects!

Learn more about NIDILRR through @lurieinstitute.bsky.social 's explainer series: tinyurl.com/bdh5jsj7

#NIDILRR #DisabilityResearch
Text: NIDILRR funds #DisabilityResearch ! This includes IHDPS projects, like the National Survey on Health and Disability (NSHD)! Images: A group of people chatting around at table, including a young woman using a wheelchair. KU The University of Kansas Institute for Health and Disability Policy Studies
August 19, 2025 at 9:49 PM
ihdps.bsky.social
Researchers from Brown University have used data from the National Survey on Health and Disability (NSHD) to examine loneliness in adults with disabilities

Read the new article in the Annals of Internal Medicine: doi.org/10.7326/ANNA...

#DisabilityResearch
A person sits alone at the edge of a bench in a park Text: Disproportionate Loneliness Burden Demonstrated in Two National Samples of Working-Age Adults With Varied Disability Types Published in Annals of Internal Medicine DOI: 10.7326/ANNALS-25-00928
August 14, 2025 at 7:40 PM
ihdps.bsky.social
A new article from IHDPS and the Icahn School of Medicine at Mount Sinai reports that people with TBIs have poorer physical and mental health but were not more likely to be unemployed than their peers

Read more - links in comments.
Blue see-through brain with a red "injured" region Text: Traumatic brain injury in those with pre-existing disability: Prevalence, characteristics, and psychosocial function Published in Journal of Head Trauma Rehabilitation DOI: 10.1097/HTR.0000000000001080
August 12, 2025 at 8:37 PM
ihdps.bsky.social
Interested in disability research? Sign up for our newsletter to get disability research news, resources, and other opportunities!

Sign up at: tinyurl.com/ycxepyzk
A woman in a wheelchair using a laptop with data on the screen Text: Interested in disability research? Sign up for our newsletter!
August 7, 2025 at 8:10 PM
ihdps.bsky.social
The 2025 National Survey on Health and Disability (NSHD) is now closed!

While we look at the information people have shared, we invite you to sign up for our newsletter to stay in the loop about disability research news, resources, and other opportunities: tinyurl.com/ycxepyzk
Text: Thank you to everyone who participated in the National Survey on Health and Disability (NSHD) by contributing your voice, sharing the survey with the disability community, or conducting research that guides disability policy. Without your efforts, our work would not succeed! Image: A large diverse group of people, including people with disabilities
August 5, 2025 at 8:47 PM
ihdps.bsky.social
The National Survey on Health and Disability closes today - share your voice before it's too late!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A man in a wheelchair holding a megaphone points at the closing message Text: The NSHD closes today - July 31. Share your voice now! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 31, 2025 at 6:00 PM
ihdps.bsky.social
The NSHD closes soon - share your voice before it's too late!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A man using a power wheelchair watches as his service dog pulls a door closed Text: The NSHD closes July 31. Share your voice now! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 29, 2025 at 8:17 PM
ihdps.bsky.social
There is still time during Disability Pride Month to share your story by taking the NSHD!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice #DisabilityPrideMonth
A woman with a developmental disability flexes her arms Text: It’s Disability Pride Month - share your disability story! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 24, 2025 at 7:01 PM
ihdps.bsky.social
There is still time during Disability Pride Month to share your story by taking the NSHD!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice #DisabilityPrideMonth
A woman using a wheelchair lifts a weight - her socks are brightly colored. Text: It’s Disability Pride Month - share your disability story! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 22, 2025 at 7:30 PM
ihdps.bsky.social
The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A man with a disability rides a recumbent tri-wheel handcycle on a brick path Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 17, 2025 at 8:06 PM
ihdps.bsky.social
The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A man with a beard using a wheelchair talks on a cellphone while looking at his wristwatch Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 15, 2025 at 8:25 PM
ihdps.bsky.social
Two articles from former IHDPS Director Jean Hall and fellow disability researchers dive into how we count people with disabilities in the U.S.

Published by @healthaffairs.bsky.social

Links in comments below

#DisabilityResearch
A white woman with one arm holds up one finger Text: The disability mismatch: The case for a comprehensive disability status measure & In measuring disability, do not abandon US standards Published by HealthAffairs
July 14, 2025 at 8:08 PM
ihdps.bsky.social
The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A black man wearing headphones and sitting on a couch uses his tablet Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 10, 2025 at 9:52 PM
ihdps.bsky.social
The NSHD is closing soon - but there is still time to share your voice!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A woman with a prosthetic leg sitting down while looking at her wristwatch Text: There is still time to take the NSHD! Share your voice today! 2025 National Survey on Health and Disability (NSHD) kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 8, 2025 at 8:35 PM
ihdps.bsky.social
Interested in findings from the National Survey on Health and Disability kuhealthsurvey.org ?

Read about differences in care and insurance access for adults with I/DD: tinyurl.com/56dkkfbk
Woman with developmental disability wearing a medical mask waits on the phone Text: Differences in Demographics and Access to Care by Source of Health Coverage for Adults with Intellectual and Developmental Disabilities Published by MACPAC
July 3, 2025 at 10:04 PM
ihdps.bsky.social
We need adults of all genders to take the NSHD - but we are especially lacking men's voices!

Do you know disability advocates? Tell them about our survey!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
An older black man with glasses stands using a walker Text: We need more men to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
July 1, 2025 at 8:16 PM
ihdps.bsky.social
Interested in research from the National Survey on Health and Disability kuhealthsurvey.org ?

Read about how some counting methods may be missing people with mental illness in a new paper -

tinyurl.com/55nvpdkz
Graphic - Pie chart made out of cartoon people standing, with a slice separated from the rest Undercounts of people with serious mental illness using the Washington Group Short Set questions Published in Frontiers in Psychiatry www.frontiersin.org/journals/psychiatry/articles/10.3389/fpsyt.2025.1606154/full
June 30, 2025 at 7:30 PM
ihdps.bsky.social
We need adults of all ages to take the NSHD - but we are especially lacking voices from people under 35!

Please tell disability advocates you know about the NSHD!

Take the NSHD online: kuhealthsurvey.org
or call: 1 855 556 6328

#DisabilityResearch #ShareYourVoice
A young woman with a prosthetic leg wearing glasses sits on a couch Text: We need more people under 35 to share their voice in the NSHD kuhealthsurvey.org Phone: 1 855 556 6328 Email: healthsurvey@ku.edu The University of Kansas Institute for Health and Disability Policy Studies
June 27, 2025 at 7:58 PM