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International Journal of MS Care @ijmsc.bsky.social · 17h

"This qualitative descriptive pilot study explores the feasibility and outcomes of a #virtual support group for #YAs with #MultipleSclerosis receiving care from an adult MS center."
doi.org/10.7224/1537...

Developing and Piloting a Dedicated Support Group for Young Adults With Multiple Sclerosis

doi.org

International Journal of MS Care @ijmsc.bsky.social · 1d

"The MSDA test uses #NfL &17 other #proteins to create algorithm of [ #MS] disease activity that controls for age & sex....[It's] multiprotein panel outperformed NfL in terms of identifying risk of developing Gd+ lesions, new & enlarging T2 lesions & active vs stable status." doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 2d

"Qualitative studies exploring #pregnancy & #motherhood in [Pw] #MS highlight information gaps & need for holistic, multidisciplinary care. Uncertainty impacts mental health.... Our aim is to explore pregnancy experiences to identify opportunities to improve clinical care." doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 5d

#Science #Openness #Courage
#NeuroArtFriday

Saganism @sagan.bsky.social · 15d

"Science is based on experiment, on a willingness to challenge old dogma, on an openness to see the universe as it really is. Accordingly, science sometimes requires courage - at the very least the courage to question the conventional wisdom."
-Carl Sagan

International Journal of MS Care @ijmsc.bsky.social · 6d

Will you share your opinion with us? #AI is here and we want to know how you are using it and what you think its future is in #MultipleSclerosis care.
www.ijmsc.org/view/ijmsc-i...

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International Journal of MS Care @ijmsc.bsky.social · 7d

"I have become convinced that medical treatment alone is not enough. Many people had to cope with uncertainty, loss of independence & emotional difficulties that required more than clinical care. This led me to explore the potential of" #TherapeuticPatientEducation."
www.ijmsc.org/view/ijmsc-a...

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International Journal of MS Care @ijmsc.bsky.social · 9d

Primary hypothesis: "(1) poorer self-reported #sleep quality (in line with prior research) and (2) a greater degree of dysfunctional sleep beliefs would be significantly associated with worse #MultipleSclerosis -related HRQOL/F."
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 12d

#NeuroArtFriday #poetry

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International Journal of MS Care @ijmsc.bsky.social · 13d

Literature review "of #psychosocial impact of having parent with #MultipleSclerosis on #children & adolescents. Most of 28 studies reported negative impact, but there is also evidence for positive associations as well as studies claiming no association...."
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 14d

"All 6 individuals with #MultipleSclerosis had severe #incontinence that had been refractory to therapies that included medications & pelvic floor physical therapy.... Each patient was successfully treated with" #SacralNeuromodulation.
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 15d

"There is urgent need to introduce #MusicTherapy, either alone or in combination with #PhysicalTherapy, into clinical practice to achieve synergy with [DMTs]. A holistic approach to rehabilitation for [Pw #MultipleSclerosis] may mitigate symptoms & reduce polypharmacy..."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 16d

"This qualitative study examines how much group of health care professionals ( #HCPs) knows about #osteoporosis as #MultipleSclerosis comorbidity, as well as current practices, barriers to effective #BoneHealth management in people with MS & recommendations for improvement." doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 19d

#NeuroArtFriday #BrainArt

Batool Rizvi @neurobatool.bsky.social · Jul 8

I forget to post (sometimes) my brain art on bluesky, but feel free to find my art Instagram too! 🥰 🎨 (IG: @batool.neuroart)

Cacti with a blend of colors in the background.

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International Journal of MS Care @ijmsc.bsky.social · 20d

2024 #McDonald criteria
1)Optic nerve increases diagnostic sensitivity
2)Move toward biological approach
3)Diagnosis of exclusion: always consider new data
4)Reconsider dissemination in time for oligoclonal bands
5)Single disease continuum
6)Age: misdiagnosis esp children
doi.org/10.1016/S147...

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International Journal of MS Care @ijmsc.bsky.social · 21d

"This project creates an online #caregiver #resource that will benefit caregivers, enable #MultipleSclerosis clinicians to offer caregivers the support and resources they need in a timely and time-efficient way, and thereby benefit individuals with MS as well."
doi.org/10.7224/1537...

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International Journal of MS Care @ijmsc.bsky.social · 22d

Study's hypothesis: people "with #MultipleSclerosis in the #CBT group, relative to...MS-related education [grp], would demonstrate significant improvements in pain severity, with secondary improvements in #pain interference &depressive symptom severity."
doi.org/10.7224/1537...
#PainAwarenessMonth

International Journal of MS Care @ijmsc.bsky.social · 23d

"This study aimed to use a combination of qualitative and quantitative methods to compare #physician and #computer-based identification of new/enlarging brain T2 #lesions obtained during a clinical trial."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 26d

#NeuroArtFriday #Results

ErrantScience @errantscience.com · Jul 29

In the Venn diagram of results, my results never seem to overlap with sense

International Journal of MS Care @ijmsc.bsky.social · 27d

"...health care providers should consider how clinical factors (eg, disability level) and psychological factors (eg, coping skills, social support) can affect the #MentalHealth and well-being of #parents with" #MultipleSclerosis.
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 28d

"[N]o study has characterized extent to which physical, emotional & cognitive variation are independently associated with multiple operational definitions of #PhysicalActivity in [Pw]MS.... [W]e present...cross-sectional investigation of...[Pw #MS] & 3 definitions of" PA.
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · 29d

"Our secondary analysis affords the opportunity to investigate a potential neural mechanism of the effect of aerobic walking #exercise on depressive symptoms in individuals with" #MultipleSclerosis.

doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · Sep 8

"The purpose of this study was to compare #walking distance in uncooled (control) and cooled conditions in a sample of people with [ #MultipleSclerosis]. We hypothesized that participants would walk greater distances on a timed walking test after" #cooling intervention.

doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · Sep 5

is it this or that?
my left brain and right #brain
always disagree

#NeuroArtFriday #poetry

mark r meyer / 3dotstudio @markrmeyer.bsky.social · Sep 2

"Janus v4" acrylic gouache, ink, collage, and mixed media on paper (12"x9"; 1999/2025) #art #drawing #painting #abstract #Ekphrastic #senryu

ekphrasis:

is it this or that?
my left brain and right brain
always disagree

International Journal of MS Care @ijmsc.bsky.social · Sep 4

"Up to 50% of individuals with #MultipleSclerosis who are prescribed... #DMTs do not take them as advised.... The current paper describes the development of an #intervention aimed at improving #adherence to DMTs..."
doi.org/10.7224/1537...

International Journal of MS Care @ijmsc.bsky.social · Sep 3

Regarding participants' "motivations for #CAM use, 3 main themes emerged: (1) #SelfReliance is essential in disease management, (2) conventional health care lacks a #holistic approach, and (3) personal #experience is the primary guide."

doi.org/10.7224/1537...
#MultipleSclerosis