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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · 22d

While the exact cause of #LungFibrosis isn't fully understood, risk factors increase the likelihood:
– Smoking
- Environmental/Occupational Exposure
– Conditions like GORD
– Genetic links
Knowing the risks can help you get diagnosed earlier

#PFAwareness #EveryBreathMatters #PulmonaryFibrosis

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · 23d

We are honoured to have the support of Rory and his family. Rory, Jamie and Ben are raising funds in memory of their beloved father, Michael McNeill, who passed away after a long battle with #IPF. The brothers are running the Paris-Versailles race on 28 Sept 2025. www.justgiving.com/page/michael...

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · 25d

Diagnosing #LungFibrosis isn't always straightforward but timely and accurate testing helps.
Combining diagnostic tools and evaluation methods give clinicians a clearer picture, and a clearer picture means better care.

#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Sep 8

Navigating a new lung fibrosis diagnosis can be overwhelming, but you're not alone.

ILFA has lots of resources available on our website: www.ilfa.ie. Just one quick reference: ilfa.ie/wp-content/u...

#LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis #LungFibrosis

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Sep 4

For today's post, one of our wonderful patient advocates, Lorcan McMahon, describes his journey with #lungfibrosis www.independent.ie/regionals/wi... #LFAwarenessMonth.
#PFAwareness #EveryBreathMatters #PulmonaryFibrosis

‘I’m now on 10 litres of oxygen a day’ – Wicklow man describes living with lung fibrosis

A former Wicklow Fine Gael local election candidate, who was hugely active in almost every sphere of community life, has described having to cope with “frightening” moments every day, due to a life-li...

www.independent.ie

Reposted by Irish Lung Fibrosis Association

JAMA @jama.com · Sep 1

Interstitial lung disease is a group of conditions that cause inflammation and scarring in the lungs.

This JAMA Patient Page describes types and causes of interstitial lung disease as well as its diagnosis, treatment, and prognosis.

ja.ma/47mj7hg

Illustration comparing healthy lungs to lungs with interstitial lung disease, which shows inflammation and scarring. Text lists causes, including idiopathic pulmonary fibrosis, connective tissue diseases, and infections like COVID-19.

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Sep 2

ILFA is fighting for "Equitable Care" where every patient gets the care they need in the community where they live. Today, care varies widely depending on how close you are to an ILD specialist centre.

Patients shouldn't have to travel to receive great care. #PFAwarenessMonth #EveryBreathMatters

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Sep 1

ilfa.ie/lung-fibrosi... Today is the start of Lung Fibrosis Awareness Month 2025. Our #EveryBreathMatters campaign will highlight the everyday realities faced by lung fibrosis patients and caregivers. We hope you'll share our content and help us reach 1 million people! #PFMonth #LungFibrosis

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 27

Free #solar installs for the medically vulnerable - help us spread the word! ilfa.ie/blog/free-so...

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 17

We're celebrating the enactment of the Human Tissue Bill effective from today! This landmark legislation brings into effect a much‑anticipated “soft opt‑out” organ donation system, a milestone we've long supported.

More information here: ilfa.ie/blog/ilfa-we...

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 13

Thanks to @irishmedicaltimes.bsky.social for helping us get the word out about #lungfibrosis! www.imt.ie/news/lung-fi...

Lung Fibrosis patients demand urgent reform amid growing crisis in care

Lung Fibrosis is a progressive, life-limiting condition that causes scarring of the lungs, making breathing increasingly difficult

www.imt.ie

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 13

We've been very busy advocating for better #lungfibrosis care this week! ilfa.ie/blog/an-advo...

An Advocacy Update from our CEO - Irish Lung Fibrosis Association

It’s been a very busy week for lung fibrosis! Pictured(left to right) K McVicker, MD […]

ilfa.ie

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

ILFA Board member and CEO of EU PFF at the ERS Prevention Summit discussing lived experiences and pragmatic solutions to the challenges faced in pulmonary conditions.

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

The advantages of the clinical programme. In Ireland , the respiratory programme unfortunately excludes lung fibrosis. The advantages of community care completely lost on our patients.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

A new way of looking at prevention. Considering the person at the centre…a systems approach. By doing this to reshape society, a population based approach, behaviour change is more successful and the interventions are more cost effective.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

7 billion…the cost of reducing pollution vs 940 billion…the cost of the health impacts of pollution. Cleaning up pollution seems like an easy investment to make.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

For every euro invested in prevention, there can be a 14 euro return and yet, Ireland invests just .3% of GDP in preventing chronic lung diseases. We’re in the bottom third of OECD countries.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

It’s cheaper to avoid disease than it is to treat it.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 12

“Prevention is a form of social justice.” Wise words from ERS President Silke Ryan at the ERS Presidential Summit on disease prevention.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 11

Thanks so much to Rob Hurley and Sean O’Shea for supporting the launch of our new strategy for equitable care for lung fibrosis this morning at Leinster House. (pictured with Maureen O’Donnell, ILFA CEO)

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · Jun 11

Delighted to be launching our strategy today at Leinster House! Eqitable care for lung fibrsis patients ilfa.ie/blog/strateg...

Strategy Launch - Equitable Care for Lung Fibrosis Patients - Irish Lung Fibrosis Association

The Irish Lung Fibrosis Association have today launched a new strategy calling for a radical […]

ilfa.ie

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · May 28

Here at the Wheel Summit 2025 and no surprise, multi-annual funding is the most urgent priority for the 500 or so charities here in the room.

Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · May 27

Just a few weeks away from the Human Tissue Bill coming into effect. Let's hope it results in more lung transplants! www.gov.ie/en/departmen...

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · May 26

One week to go until the 2025 Vhi Women's Mini Marathon and the excitement is building !!! Are you running for #TeamILFA? If so, we'd love it if you'd meet us for a group photo outside The Mont Hotel, Merrion Street Lower, at 11.15 am. Looking forward to seeing you there!

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Irish Lung Fibrosis Association @ilfa-ireland.bsky.social · May 22

Our friends at @actionpfcharity.bsky.social did a great job explaining the results of the @boehringerglobal.bsky.social #FIBRONEER trials announced earlier this week. It looks very promising for patients! www.actionpf.org/news/landmar...

Landmark Clinical Trial Offers New Hope for People Living with Pulmonary Fibrosis – Action for Pulmonary Fibrosis

Landmark clinical trial offers new hope for people living with pulmonary fibrosis. Results from the FIBRONEER-IPF and FIBRONEER-ILD clinical trials.

www.actionpf.org

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