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Emma @inneiennyfas.bsky.social · 4h

... pure hell in itself, and being disbelieved and neglected by healthcare and government certainly doesn't help. We desperately need a diagnostic test to escape the gaslighting -- and then we need a cure.

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Emma @inneiennyfas.bsky.social · 4h

... without suffering for it afterward. I still work part-time from my bed, but that's basically all I can manage, and with my health being so fragile, I live in constant fear of becoming even worse or losing my sick pay and not having the energy to fight for it. The disease is...

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Emma @inneiennyfas.bsky.social · 4h

Thank you so much for writing about this 🌸 I became ill in early 2020, and my life has been destroyed. I worked full-time
at the university, enjoyed my social life, did all kinds of sports, and had many other hobbies too. I'm housebound now, and can't even shower or walk around inside the house...

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Reposted by Emma

George Monbiot @georgemonbiot.bsky.social · 16h

ME/CFS is a devastating condition that has long been denied, dismissed, psychologised and underdiagnosed. Research is at last starting to catch up with it, with glimmers of hope for those who have been left untreated for so long.
There's a huge BUT coming ...🧵
www.theguardian.com/society/2025...

Scientists develop first ‘accurate blood test’ to detect chronic fatigue syndrome

Research could offer hope for ME patients – but some experts urge caution and say more studies needed

www.theguardian.com

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Emma @inneiennyfas.bsky.social · 2d

Always better to leave some room for doubt, right? We wouldn’t want people to start demanding clean air in schools or something.

Emma @inneiennyfas.bsky.social · 2d

“Study challenges notion that Covid is ‘mild’ for children.”

You mean, just like EVERY OTHER STUDY on Covid in children?

This shouldn’t be framed as a surprise, or even news, but as established fact. The real question is why we’re still not trying to stop it.
www.independent.co.uk/news/health/...

Study challenges notion that Covid is ‘mild’ for children

More than 6 million American children suffer from long Covid which can lead to life-threatening complications

www.independent.co.uk

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Emma @inneiennyfas.bsky.social · 2d

This week's must-read 👇

Julia Doubleday @juliadoubleday.bsky.social · 3d

Nobody has Long COVID, but everybody has brain fog, cognitive decline and memory loss. I talk about the overwhelming scientific evidence that COVID damages the brain, and the overwhelming social unwillingness to acknowledge it in my latest:

www.thegauntlet.news/p/when-will-...

When Will the Lion Concern Himself

Joking memes make light of the uncomfortable reality: everyone's got a little of that post-COVID brain damage these days

www.thegauntlet.news

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Emma @inneiennyfas.bsky.social · 4d

💕💪

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Emma @inneiennyfas.bsky.social · 10d

A presentation that lays out some of the harms associated with the BPS model and the psychologisation of ME, Long COVID, etc., and why criticism of it cannot be reduced to "patients just don't want to be associated with psychological illness".

ME/CFS Science @mecfsskeptic.bsky.social · 11d

1) This lecture by Prof dr Vivienne Matthies-Boon is a good introduction to the problems with the biopsychosocial (BPS) model and the harms it has caused in the ME/CFS community.

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Reposted by Emma

callforphaction.bsky.social @callforphaction.bsky.social · 11d

📢 #CallForPublicHealthAction
Acknowledging healthy indoor air as a human right is a huge step in the right direction! 🙏 Above this, we just need a few other things 😉👇

Demonstrating for:

1. Mandatory respiratory protection (FFP2/FFP3/N95/N99) in healthcare and social care to ensure patient safety for all.

2. High-quality air in all schools, other public buildings, and workplaces.

3. Full access to COVID-19 vaccines for all age groups for whom the vaccines are approved.

4. Adequate care and biomedical research for Long COVID, ME/CFS, and other infection-associated chronic conditions.

5. Honest, science-based public education about the short- and long-term risks of infection, and how to best protect each other.

Do you agree? Like, repost or quote-post, tagging #CallForPublicHealthAction

@callforphaction.bsky.social

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Emma @inneiennyfas.bsky.social · 14d

#VioletAffleck speaking at the UN meeting "Healthy Indoor Air: A Global Call to Action", saying all the things that need to be said. The knowledge, passion, brains and determination of this young woman are amazing. She should be put in charge of public health everywhere.

#CallForPublicHealthAction

Dr. Lucky Tran @luckytran.com · 15d

“We are told by leaders that we are the future. But when it comes to the ongoing pandemic, our present is being stolen right in front of our eyes.”

Incredible speech by Violet Affleck who warned about the ongoing dangers of COVID & Long Covid, & advocated for masks and clean air at the UN today!

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Emma @inneiennyfas.bsky.social · 23d

This! 👇
#CallForPublicHealthAction

Freulingskind @freulingskind.bsky.social · 23d

In times when profit outweighs humanity and politics protects power over people, it’s time to stand up - for science, for health, for those left behind, and for the future of us all.

Virtual Demonstration
📢 #CallForPublicHealthAction

#CovidIsNotOver
#CleanAir
#LongCovid
#MEcfs

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Reposted by Emma

nervbueddel @nervbueddel.bsky.social · 23d

📣 #callforpublichealthaction

Virtual demonstration for #cleanair + medical care for #PAIS + #ME/CFS!

week 4️⃣3️⃣

It is time for #PAIS and #ME/CFS to be discussed in the social sciences as well.

www.blaetter.de/ausgabe/2025...

Support us with Reskeet!

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Emma @inneiennyfas.bsky.social · 28d

Very good news! 🙏

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Emma @inneiennyfas.bsky.social · 29d

To me it looks like the fridge is ok with (or even likes?) hearing the sounds illustrated here -- but perhaps dislikes other sounds?

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Emma @inneiennyfas.bsky.social · Sep 1

📢 #CallForPublicHealthAction

I'm also demonstrating for the right to clean air, evidence-based infection control, public education on COVID-19, and care and biomedical research for LC & ME. Because #CovidIsNotOver and #CovidIsAirborne.

Freulingskind @freulingskind.bsky.social · Aug 31

📢 #CallForPublicHealthAction

I’m demonstrating virtually for the right to
- #CleanAir
- #InfectionControl
- adequate care & biomedical research for #LongCovid/#MECFS

#CovidIsNotOver
#MaskUp
#CovidCautious

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Emma @inneiennyfas.bsky.social · Aug 30

Actual public health messaging 👏🙏
It's always been this easy — most authorities just choose not to do it.
#MaskUp #COVIDIsntOver

California Department of Public Health @capublichealth.bsky.social · Aug 28

Traveling soon? Stay protected during the COVID-19 surge by wearing a high-quality mask in crowded or indoor spaces like an N95, KN95 or KF94. Learn more: www.cdph.ca.gov/Programs/CID...

Person wearing a mask sitting by an airplane window, using a smartphone, under a notice from CDPH recommending masks to reduce respiratory virus risk.

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Emma @inneiennyfas.bsky.social · Aug 23

Tack Kajsa!

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Reposted by Emma

Galina Esther Shubina, my coffee is my own @galsh.bsky.social · Aug 23

I really wish the Swedish press would understand how platforming or referring to Martin Kulldorff is something that only right wing nuts do in US. Yes, he's Swedish. He's also currently sitting in US government platforming RFK Jr's antivax agenda.

KajsaK🌻 @kajsaklein.bsky.social · Aug 23

www.dagensarena.se/opinion/bra-...

Bra att Gisslén slutar som statsepidemiolog | Dagens Arena

Nu kan Folkhälsomyndigheten på allvar börja luta sig mot forskningen.

www.dagensarena.se

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Emma @inneiennyfas.bsky.social · Aug 21

Exakt så! Fast jag har en liten from förhoppning om att ett ifrågasättande av den gängse patriotiska berättelsen pågår under ytan på myndigheten. Uppgiften att de håller på att utreda hur smittspridningen för streptokocker egentligen går till, t.ex..

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Emma @inneiennyfas.bsky.social · Aug 19

Hahaha 😄

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Emma @inneiennyfas.bsky.social · Aug 19

Jag tror inte att de är oroliga att "nya FoHM" inte skulle kunna stoppa nästa pandemi. Jag tror att de är oroliga för att de ska göra det -- med andra ord, införa smittskyddsåtgärder. Sånt vill folk i Sverige inte ha.

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Emma @inneiennyfas.bsky.social · Aug 18

Tack, då förstår jag! Kul att du är tillbaka, förresten :) Eller tillbaka vet jag ju inte -- du kanske har skrivit en massa utan att det dykt upp i mitt flöde?

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Emma @inneiennyfas.bsky.social · Aug 18

Det håller jag med dig om, men jag missar kopplingen till det jag skrev -- vill du förklara? 🙂

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Emma @inneiennyfas.bsky.social · Aug 18

Gisslén har ju stått bakom i princip allt som FHM gjort, och han tror på immunskuld och droppsmitta. Jag kan hålla med honom om att det är viktigt med ämneskompetens på en myndighet, men den sortens "kompetens" som Gisslén, Tegnell och Carlsson står för kan vi klara oss utan...

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