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Reposted by Jack Nunn

scienceforall.bsky.social @scienceforall.bsky.social · 15h

Science for All are proud to have been involved in the project "Improving citizen science: Co-creating recommendations with researchers and the public"

As well as a pre-print below, you can read a STARDIT report about this work here:

stardit.wikimedia.org.au/wiki/0202407...

#openscience #citizen

Jack Nunn @jacknunn.bsky.social · 2d

"Improving citizen science: Co-creating recommendations with researchers and the public"

A pre-print about an exciting project with Science for All, supported by the Australian Citizen Science Association & the Australian Academy of Science

doi.org/10.1101/2025...
#citizenscience #public #science

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Jack Nunn @jacknunn.bsky.social · 2d

Congratulations Internet Archive and everyone involved. The most important site on the net

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Jack Nunn @jacknunn.bsky.social · 2d

"Improving citizen science: Co-creating recommendations with researchers and the public"

A pre-print about an exciting project with Science for All, supported by the Australian Citizen Science Association & the Australian Academy of Science

doi.org/10.1101/2025...
#citizenscience #public #science

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Jack Nunn @jacknunn.bsky.social · 14d

Here's a peer-reviewed article about this work: doi.org/10.1136/bmjo...

#health #dementia #involvement #dementiacare #qualitycare #stardit

Identification of core outcomes for quality in routine care provided to people living with dementia in Australia: a multilevel modified Delphi consensus study

Objective To co-design a core outcome set with people living with dementia and other stakeholders that can be used to measure the quality of dementia care in home care and residential settings. Desig...

doi.org

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Jack Nunn @jacknunn.bsky.social · 14d

I'll be facilitating, and we'll hear from people involved in the project.

Read more here: stardit.wikimedia.org.au/wiki/0202208...

0202208100258

stardit.wikimedia.org.au

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Jack Nunn @jacknunn.bsky.social · 14d

We're excited to share the details for the online launch of the Core Outcome Measures for Improving Care (COM-IC).

Join us online this Monday 29th September, 9am AEST:

uqz.zoom.us/j/82827279556

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Jack Nunn @jacknunn.bsky.social · Jun 20

Thank you - here's the correct link - I shared the wrong BMJ article!

doi.org/10.1136/bmjo...

Identification of core outcomes for quality in routine care provided to people living with dementia in Australia: a multilevel modified Delphi consensus study

Objective To co-design a core outcome set with people living with dementia and other stakeholders that can be used to measure the quality of dementia care in home care and residential settings. Desig...

doi.org

Jack Nunn @jacknunn.bsky.social · Jun 20

Proud to share this - Science for All has been working for years on this project help to involve people affected by dementia in co-designing outcome measures for dementia care

bmjopen.bmj.com/content/13/1...

We used STARDIT to report the whole process:

stardit.wikimedia.org.au/wiki/0202208...

Measuring the success of programmes of care for people living with dementia: a protocol for consensus building with consumers to develop a set of Core Outcome Measures for Improving Care (COM-IC)

Introduction The Core Outcome Measures for Improving Care (COM-IC) project aims to deliver practical recommendations on the selection and implementation of a suite of core outcomes to measure the effe...

bmjopen.bmj.com

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Jack Nunn @jacknunn.bsky.social · Apr 16

I'm pleased to share that I'm now a Co-Chair of the Cochrane Patient and Public Involvement Network Executive.

Cochrane will no longer use the term ‘consumer’ to represent patients and the public.

Learn more here:

www.cochrane.org/news/cochran...
#public #involvement #research #evidence

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Jack Nunn @jacknunn.bsky.social · Apr 3

Published today: "Understanding the Unmet Needs of People Living with Type 2 Diabetes in Self-Managing Their Condition"

Involvement of people with diabetes in the project was reported using Standardised Data on Initiatives (STARDIT).

Read more here
doi.org/10.3390/nu17...

#diabetes

doi.org

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Jack Nunn @jacknunn.bsky.social · Mar 3

"you have to show that the preservation of the planet and of life is not a frantic duty. It’s a pleasure"

Alan Watts

www.organism.earth/library/docu...

#environment #politics #conservation #preservation #AlanWatts

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Jack Nunn @jacknunn.bsky.social · Feb 11

I'm involved with some research exploring the priorities and concerns of Australian people in relation to DNA testing.

There's still time to share your views as part of a survey:
bit.ly/4aAOSRu

Learn more about this project here: stardit.wikimedia.org.au/wiki/0202407...

#genomics #dna #testing

CaPPRe Survey

bit.ly

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Jack Nunn @jacknunn.bsky.social · Dec 23

I guess I mean some of the issues you're talking about would be caused by people who are buying things who are not aware of what is happening - how can we, as a species, do better sharing this kind of data? I'm probably a bit more articulate here about this:

wikimedia.org.au/wiki/STARDIT...

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Jack Nunn @jacknunn.bsky.social · Dec 22

Brilliant research and journalism. Would love to hear any ideas you have for sharing this kind of data so it's more accessible to people - could this be used? STARDIT.wikimedia.org.au

STARDIT

STARDIT.wikimedia.org.au

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Jack Nunn @jacknunn.bsky.social · Dec 5

Now I can tag you @fionarusso.bsky.social

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Jack Nunn @jacknunn.bsky.social · Dec 5

Great to hear Dr Fiona Russo present about involvement in research, including the Involve Australia Guidelines for Community Involvement in Genomic Research:

www.australiangenomics.org.au/projects/inv...

STARDIT is suggested by these guidelines:

stardit.wikimedia.org.au/wiki/0202312...

#HSR24

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Jack Nunn @jacknunn.bsky.social · Dec 5

Great to hear Dr Fiona Russo present about involvement in research, including the Involve Australia Guidelines for Community Involvement in Genomic Research.

www.australiangenomics.org.au/projects/inv...

STARDIT is suggested by these guidelines:

stardit.wikimedia.org.au/wiki/0202312...
#HSR24

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Jack Nunn @jacknunn.bsky.social · Dec 4

Thank you for the photos and would love to connect :)

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Jack Nunn @jacknunn.bsky.social · Dec 3

Excited to be presenting today about a project to improve the lives of people living with dementia by involving them and other stakeholders in developing outcome measures for care.

STARDIT report here:
stardit.wikimedia.org.au/wiki/0202208...

@scienceforall.bsky.social
@hsraanz.bsky.social
#HSR24

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Jack Nunn @jacknunn.bsky.social · Nov 29

I'm proud to have worked with an inspiring team exploring public perspectives on involvement in health-related research activities in this new peer-reviewed article:

doi.org/10.1186/s409...

STARDIT report about the Australian Genomics project:

stardit.wikimedia.org.au/wiki/0202312...

“I just don’t know enough”: Australian perspectives on community involvement in health and medical research - Research Involvement and Engagement

Background There is increasing global support from governments and other funding bodies for community involvement in research, alongside a scientific and moral imperative for responsible and ethical r...

doi.org

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Jack Nunn @jacknunn.bsky.social · Jul 19

Humanity faces multiple simultaneous crises.

"To understand these crises, we need reliable and trusted information"

Read more in our 'World Evidence Based Healthcare Day' blog:

worldebhcday.org/blog/2024/wh...

#research #evidence #WorldEBHCDay #scienceforall

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Reposted by Jack Nunn

Thijs @thijsvv.bsky.social · Feb 9

STARDIT - the first open access web-based data-sharing system which standardises the way that information about initiatives is reported across diverse fields and disciplines, including information about which tasks were done by which stakeholders researchinvolvement.biomedcentral.com/articles/10....

Standardised data on initiatives—STARDIT: Beta version - Research Involvement and Engagement

Background and objective There is currently no standardised way to share information across disciplines about initiatives, including fields such as health, environment, basic science, manufacturing, m...

researchinvolvement.biomedcentral.com

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