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James Lind Alliance @jameslindalliance.bsky.social · 1d

📢 The second survey is now open for Metabolic Interventions for People with Severe Mental Illness (SMI) PSP.

Help to decide which questions researchers should focus on to improve the metabolic health of people living with SMI. Have your say: buff.ly/isjGdqQ

#JLA

James Lind Alliance @jameslindalliance.bsky.social · 2d

The JLA is excited to join the incredible lineup of speakers at the 2025 PeDRA Annual Conference in Minneapolis this October! We look forward to sharing the work of the JLA with the pediatric dermatology community.

📅 October 9-11, 2025
📍 Minneapolis, MN
🌐 Learn more: buff.ly/sKqzy7m

#PeDRA2025

James Lind Alliance @jameslindalliance.bsky.social · 6d

The Childhood Deafness and Hearing Loss PSP has published the top priorities for future research aimed at improving our understanding of childhood hearing loss.

➡️Top 10 priorities ranked by adults: buff.ly/GQq4qNB
➡️Top 10 priorities ranked by children: buff.ly/1hR5qEu

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James Lind Alliance @jameslindalliance.bsky.social · 7d

We are thrilled to share that the JLA will be speaking at the 2025 PeDRA Annual Conference this October in Minneapolis! We look forward to forming new connections and sharing the value of JLA Priority Setting Partnerships.

📅 October 9-11, 2025
📍 Minneapolis, MN
🌐 Learn more: buff.ly/sKqzy7m

James Lind Alliance @jameslindalliance.bsky.social · 16d

Help to identify which research areas matter most to the sickle cell community, ensuring that people directly affected are at the heart of future research decisions. Whether you have sickle cell, carry the trait, or are a loved one, or a clinician, your insights are vital.

➡️ buff.ly/f20QnEM

James Lind Alliance @jameslindalliance.bsky.social · 17d

📢PSP Shortlisting survey

The Stillbirth PSP is asking parents, professionals and anyone affected by stillbirth to prioritise the most urgent unanswered research questions. Your input will shape the future of research and care.

To take part in the survey, visit: buff.ly/jtffsUo

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James Lind Alliance @jameslindalliance.bsky.social · 21d

📢 PSP Initial survey:

You are invited to take part in a survey to help researchers understand what matters most to families and clinicians about Paediatric Sepsis. You do not need to be an expert, just share your thoughts and experiences.

👉Have your say - buff.ly/O3Vuspo

James Lind Alliance @jameslindalliance.bsky.social · 21d

📢 PSP Shortlisting survey:

The Forensic Mental Health and Neurodiversity Priority Setting Partnership would like to hear from you. What questions relating to offending behaviour and mental health/neurodiversity would you like research to answer?

🔗Have your say - buff.ly/ZvLGS7R

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James Lind Alliance @jameslindalliance.bsky.social · 24d

🌟 Behind every PSP's Top 10 is a robust, inclusive process!

The #JLA methodology ensures that priorities are identified and agreed in a way that is fair and transparent. A full list of PSP Top 10s can be found on the JLA website: buff.ly/tJpBWwt

#ResearchPriorities

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James Lind Alliance @jameslindalliance.bsky.social · 28d

Amplifying lived experience:
A project on the Isle of Wight has helped shape local priorities in schizophrenia research & services, building on the JLA PSP. Read more in our latest blog.

➡️ www.jla.nihr.ac.uk/news/shaping...

www.jla.nihr.ac.uk

James Lind Alliance @jameslindalliance.bsky.social · Sep 9

From the formation of the Steering Group to the final workshop, JLA PSPs are designed to ensure the voices of patients, carers and healthcare professionals remain at the heart of everything they do.

💬Below is feedback shared by a final workshop participant:

Reposted by James Lind Alliance

histon-mike.bsky.social @histon-mike.bsky.social · Sep 2

If you are living with MND/ALS, have a spinal cord injury or are a stroke survivor please help with our survey on Brain-Computer Interfaces. Survey link www.surveymonkey.com/r/65Q5C8K

@mndassoc.bsky.social @spinalinjuries.bsky.social @jameslindalliance.bsky.social

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James Lind Alliance @jameslindalliance.bsky.social · Sep 3

JLA final workshops are a collaborative space for patients, carers and healthcare professionals to agree on the research priorities that matter most to them.

Feedback from participants highlights how valuable this process can be for individuals, and for shaping future research.

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Reposted by James Lind Alliance

Niro Siriwardena @nsiriwardena.bsky.social · Sep 1

🚨 Help Shape the future of Same day & urgent care workforce research! 🚨
We're working with @jameslindalliance.bsky.social to set research priorities and we want to hear from you.
💬 Got 2 minutes? You can even send us a WhatsApp to take part quickly.
🔗 Take part at surgeworkforce.uk/priority-set...

Welcome to the project page for the same day and urgent care workforce priority setting partnership | SURGE Workforce Partnership

surgeworkforce.uk

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Reposted by James Lind Alliance

SURGE Workforce Research Partnership @surgeworkforce.bsky.social · Sep 1

🚨 Help Shape the future of Same day & urgent care workforce research! 🚨
We're working with @jameslindalliance.bsky.social to set research priorities and we want to hear from you.

💬 Got 2 minutes? You can even send us a WhatsApp to take part quickly.
🔗 Take part at surgeworkforce.uk/priority-set...

Welcome to the project page for the same day and urgent care workforce priority setting partnership | SURGE Workforce Partnership

surgeworkforce.uk

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James Lind Alliance @jameslindalliance.bsky.social · Aug 28

James Lind Alliance (JLA) final workshops are where everything comes together for Priority Setting Partnerships (PSPs). Patients, carers and healthcare professionals work together to agree the Top 10 priorities for future research.

The impact is clear from participant feedback:

James Lind Alliance @jameslindalliance.bsky.social · Aug 25

At JLA final workshops, patients, carers & clinicians work together to agree the Top 10 research priorities.

🗣️Here’s what a participant had to say about the process:

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James Lind Alliance @jameslindalliance.bsky.social · Aug 22

All PSPs receive expert support from JLA Advisers, who are trained in the JLA methodology. These Advisers help PSPs navigate the process with confidence, ensuring they remain inclusive, transparent, and aligned with the JLA method.

➡️ Meet our JLA Advisers here: buff.ly/nxZTukI

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James Lind Alliance @jameslindalliance.bsky.social · Aug 21

📢New Top 10!

The Long Term Care Residents with Severe Mental Illness (Saskatchewan, Canada) PSP brought together long-term care residents, their caregivers, and care professionals to identify the top priorities for future research.

Check out the Top 10 here: buff.ly/CPX0kPH

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James Lind Alliance @jameslindalliance.bsky.social · Aug 20

📢 The Lung Transplantation (Canada) PSP has completed its final workshop!

The Top 10 priorities for future research into lung transplantation surgery are now available on the JLA website: buff.ly/4xlwHk6

For more information about the PSP, check out their latest journal article: buff.ly/wdYIbii

James Lind Alliance @jameslindalliance.bsky.social · Aug 15

📢 New Top 10!

The Bone Marrow Transplantation in Paediatrics PSP worked with patients, families, and healthcare professionals to identify the top unanswered questions about bone marrow transplants and related complications.

🔗Explore the PSP's Top 10 priorities: buff.ly/4EnkAKF

James Lind Alliance @jameslindalliance.bsky.social · Aug 14

📢New Top 10!

The top priorities for future research relating to childhood and adolescence cancer in Australia have been published.

Here's what patients, their families and the healthcare professionals that support them thought were the most important unanswered questions: buff.ly/bOqZtsf

James Lind Alliance @jameslindalliance.bsky.social · Aug 13

Feedback from a Steering Group member involved in a recent PSP highlights the value of the JLA initiative.

By bringing people with lived and/or professional experience together as equal partners, JLA PSPs ensure research priorities reflect the needs of those most impacted by the research.

James Lind Alliance @jameslindalliance.bsky.social · Aug 12

The Pregnancy and Childbirth (Uganda) PSP has had a letter published in The Lancet, Obstetrics, Gynaecology, & Women's Health about how JLA methods were adapted for a rural community in Africa.

📝Read here: buff.ly/XN5UIkW
🌐Find out more about the PSP here: buff.ly/BOKm5v5

James Lind Alliance @jameslindalliance.bsky.social · Aug 8

🗣 Have your say in shaping the future of health research by taking part in a James Lind Alliance Priority Setting Partnership survey.

All open PSP surveys are available on our website - have your views heard: buff.ly/ZFihRLJ

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