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Juvenile Arthritis Research

@jarproject.bsky.social

100 followers 93 following 250 posts

Juvenile Arthritis Research UK charity no. 1091620 The only UK-wide charity focusing solely on Juvenile Idiopathic Arthritis, bringing hope to those with #JIA. This account is not monitored. Please contact us via website. Visit www.jarproject.org

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Juvenile Arthritis Research @jarproject.bsky.social · May 14

We are a small charity making a big difference supporting those with Juvenile Idiopathic Arthritis (JIA) and their families. We're patient-and parent run and began changing the world for those with #JIA in 2018. Home of the #ThinkJIA campaign.

two children standing next to a Family support banner from Juvenile Arthritis Research charity ready for one of our family support events for children with Juvenile Arthritis and their siblings and families. The banner describes some of the support services that the charity offers to families affected by juvenile idiopathic arthritis.

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Juvenile Arthritis Research @jarproject.bsky.social · 11h

We'll be at stand F22 tomorrow and Friday at the Royal College of GPs annual conference.

If you are a #GP or medical student attending, please do come and say hello and find out more about our #ThinkJIA campaign #RCGPAC @rcgp.bsky.social

Juvenile Arthritis Research @jarproject.bsky.social · 19h

We'd like to say a very big thank you to Gareth for representing Juvenile Arthritis Research at the recent Reigate half-marathon. Gareth achieved a fantastic time at the event and there was a big shout out for Juvenile Arthritis Research as he came through the finish line.
#ThinkJIA #JIA

Juvenile Arthritis Research @jarproject.bsky.social · 2d

This week Polly's dad, Shaun is taking on the challenge of running 10k in the Chase the moon run at the Olympic park. Joined by Polly's uncle, Rob, they have both smashed their fundraising goals and already raised over £1,500 between them.

Good luck to you both!
#ThinkJIA #JIA

Juvenile Arthritis Research @jarproject.bsky.social · 3d

Just one week to go until our "Racing for a cure for JIA" event. We can't wait to meet everyone who has booked in. Those attending should have received emails from our volunteer Katherine confirming arrangements.
We're incredibly grateful to @NationwideUK.bsky.social - the key funder for this event

Juvenile Arthritis Research @jarproject.bsky.social · 4d

It's free UK P&P in the JAR shop this weekend until midnight Sunday.

We have so many incredible designs created by those with JIA and chronic conditions. Here are just a few. Do you have a favourite?

Shop now at www.jarproject.org/shop

#JIA #ThinkJIA #ArthritisAwareness

Juvenile Arthritis Research @jarproject.bsky.social · 6d

Today is #NationalPoetryDay and we wanted to use the opportunity to share about two amazing poetry books.

"Chronically Coping" can be purchased at www.jarproject.org/kyle and "Sky Surfing" can be purchased at dirigibleballoon.org/shopwith proceeds supporting our vital work.

#JIA #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 7d

Here's 5 year old Theo receiving his Little Box of Hope pack from Juvenile Arthritis Research.

His mum told us:
"Thank you so much for our Little Box of Hope, Theo was as excited about it as we were!.. This box of Hope has given Hope to us all..."
www.jarproject.org/hope
#JIA #ThinkJIA #arthritis

Juvenile Arthritis Research @jarproject.bsky.social · 8d

We'll be at the #RCGPAC next week in #Newport raising awareness of childhood #arthritis.
We know that delays in diagnosis are sometimes due to a lack of awareness amongst GPs of #JIA

We've been improving that with our dedicated #ThinkJIA awareness campaign and website at www.thinkjia.org

Juvenile Arthritis Research @jarproject.bsky.social · 12d

Here is 6 year old Ellie-mai receiving her Little Box of Hope pack from Juvenile Arthritis Research. We often hear from parents and carers about what a difference it makes to a child to know that they aren't alone and to learn more about their condition in a child-friendly way.
#ThinkJIA #JIA

Juvenile Arthritis Research @jarproject.bsky.social · 15d

Absolutely fantastic! And super choice of song too - one of our current favourites. We're bringing together families in the UK affected by JIA in 3 weeks time for an event so hoping it will be a fantastic experience for them too.

Reposted by Juvenile Arthritis Research

Steve May @stevemaythe1st.bsky.social · 19d

For #TalkLikeAPirate day an illustration I did for 'My Dad's A Pirate' by Jack Wheeler for 'Sky Surfing: Excellent Adventures in a Poetry Balloon' compiled by Jonathan Humble all proceeds going to @jarproject.bsky.social
www.jarproject.org/news/2025/sk...

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Juvenile Arthritis Research @jarproject.bsky.social · 16d

Good luck to the Barclays Business Thames Valley Team who are doing a walking marathon this week in aid of Juvenile Arthritis Research who they have chosen as their team charity for 2025.

You can read more on their Just Giving page at www.justgiving.com/team/bb-tham...

#JIA #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 20d

LAST CHANCE to sign up for our new young people's group for those aged 18-30 which starts next Tuesday.

The first meeting for Joint Voices is happening online on Tuesday 23 September from 7pm so if you are aged 18 to 30 and have a diagnosis of JIA, do sign up now at www.jarproject.org/jointvoices

Juvenile Arthritis Research @jarproject.bsky.social · 21d

We love seeing photos of children and young people receiving our Little Box of Hope support packs. They've been designed by those with JIA to contain lots of helpful information for those who are newly diagnosed with #JIA.
Find out more at www.jarproject.org/alittleboxofhope

#arthritis #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 22d

Esmé and Leo have been busy over the summer fundraising for Juvenile Arthritis Research. They made these fabulous bracelets and have raised over £50 towards our vital work. Thank you!
Inspired to fundraise for us? Request a free fundraising pack at www.jarproject.org/fundraising
#ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 23d

"Life is different, challenging, and sometimes painful, but it’s also taught me resilience, patience, and the importance of self-advocacy." 19 year old Jess shares her story on our website at www.jarproject.org/stories/jess

#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 24d

This week is #RememberACharityWeek and we are so grateful to anyone considering leaving a gift, of any size, to Juvenile Arthritis Research.
You can request a copy of our new leaflet using the 'Contact Us' form on our website.
By remembering us in your will, you will have a lasting impact.
#JIA

Juvenile Arthritis Research @jarproject.bsky.social · 25d

One of the biggest sources of support for families when their child receives a diagnosis of JIA is receiving a Little Box of Hope pack that our volunteers put together and send out.
Here's 8 year old Leo receiving his box.

#JIA #JuvenileArthritis #JuvenileIdiopathicArthritis #ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 26d

This week is #RememberACharityWeek
Did you know that you can leave a gift in your will to support our vital work? You can help future generations of families affected by #JIA and help us get closer to a cure.
Please use the form on our website to find out more www.jarproject.org/contact-us
#ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · 27d

Thanks to funding received from @nationwideuk.bsky.social we have been able to update and improve our #School Toolkit packs.
They can be requested by schools/education settings in the UK at www.jarproject.org/schools helping to improve the lives of those with #JIA

#ThinkJIA #arthritis

Juvenile Arthritis Research @jarproject.bsky.social · 28d

Ellie is 11 years old and is friends with 3 year old Tobyn who has #JIA. Ellie is an incredible runner and wanted to do something to support Juvenile Arthritis Research so chose to run the Junior Great North Run last weekend to fundraise to support our vital work.

Well done Ellie!

Juvenile Arthritis Research @jarproject.bsky.social · 29d

We are excited to announce the launch of Joint Voices - designed to support and empower young adults (18 - 30) living with #JIA.
This young people’s group has been developed by young people with JIA for young people with JIA. Sign up at www.jarproject.org/jointvoices to join us for our 1st meeting!

Juvenile Arthritis Research @jarproject.bsky.social · Sep 8

A HUGE well done to Debbie and Dan who ran the Norwich 10k race yesterday to support Juvenile Arthritis Research. They've raised very close to £1,000 and you can read about why they have chosen to support Juvenile Arthritis Research on their JustGiving page at
www.justgiving.com/page/deborah...

Juvenile Arthritis Research @jarproject.bsky.social · Sep 7

We'd like to wish Deborah lots of luck for running the Norwich 10K today!

Deborah says:
"I am so grateful for all the support we have been given through the Juvenile Arthritis Research charity."

Read more of Deborah's story on her Just Giving page at www.justgiving.com/page/deborah...
#ThinkJIA

Juvenile Arthritis Research @jarproject.bsky.social · Sep 6

It's been incredible seeing so many people joining in the Juvenile Arthritis Research Bookshare initiative this summer - A way of raising awareness that children get #arthritis too whilst spreading a little joy by leaving a pre-loved book for someone to find.
Visit www.jarproject.org/bookshare
#JIA