Jenny
@jennywithra.bsky.social
Hello, welcome to my life talking about rheumatoid arthritis (RA) and my health in general. I was officially diagnosed with RA back in June 2025.
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Jenny
@jennywithra.bsky.social
· Aug 27
Hello. I just started a (new) BlueSky account to talk about my life living with rheumatoid arthritis.
I wrote a little story talking about how I was officially diagnosed since I thought that may be a good way to start.
Other than that, welcome to me rambling about my health (problems). 😅
I wrote a little story talking about how I was officially diagnosed since I thought that may be a good way to start.
Other than that, welcome to me rambling about my health (problems). 😅
Good news: my latest blood show my inflammation went down.
Not so good news: I still have inflammation in my left elbow, but it's a lot less than before.
In other news: I was prescribed with hydroxychloroquine to hopefully reduce my inflammation further.
It's another part of the journey.
Not so good news: I still have inflammation in my left elbow, but it's a lot less than before.
In other news: I was prescribed with hydroxychloroquine to hopefully reduce my inflammation further.
It's another part of the journey.
January 7, 2026 at 10:37 PM
Good news: my latest blood show my inflammation went down.
Not so good news: I still have inflammation in my left elbow, but it's a lot less than before.
In other news: I was prescribed with hydroxychloroquine to hopefully reduce my inflammation further.
It's another part of the journey.
Not so good news: I still have inflammation in my left elbow, but it's a lot less than before.
In other news: I was prescribed with hydroxychloroquine to hopefully reduce my inflammation further.
It's another part of the journey.
Lately:
- I'm surprised that my rheumatologist office is open on Christmas Eve since they actually called me back when I called in yesterday for a prior authorization approval. That's pretty cool.
- I hope the prior authorization goes through, but I'm sure it'll go slowly with the holidays...
- I'm surprised that my rheumatologist office is open on Christmas Eve since they actually called me back when I called in yesterday for a prior authorization approval. That's pretty cool.
- I hope the prior authorization goes through, but I'm sure it'll go slowly with the holidays...
December 24, 2025 at 9:16 PM
Lately:
- I'm surprised that my rheumatologist office is open on Christmas Eve since they actually called me back when I called in yesterday for a prior authorization approval. That's pretty cool.
- I hope the prior authorization goes through, but I'm sure it'll go slowly with the holidays...
- I'm surprised that my rheumatologist office is open on Christmas Eve since they actually called me back when I called in yesterday for a prior authorization approval. That's pretty cool.
- I hope the prior authorization goes through, but I'm sure it'll go slowly with the holidays...
It's 1am now. Sleep for real. 😭😭
December 6, 2025 at 9:00 AM
It's 1am now. Sleep for real. 😭😭
I did take a nap when I got home from work. When Tom got home, he helped me with my 10th injection. I bled a little bit, but nothing too crazy. I feel okay despite having period again and just worried about that??
I should go sleep now since it's 12:30am. I'm kind of having fun doom scrolling...
I should go sleep now since it's 12:30am. I'm kind of having fun doom scrolling...
December 6, 2025 at 8:30 AM
I did take a nap when I got home from work. When Tom got home, he helped me with my 10th injection. I bled a little bit, but nothing too crazy. I feel okay despite having period again and just worried about that??
I should go sleep now since it's 12:30am. I'm kind of having fun doom scrolling...
I should go sleep now since it's 12:30am. I'm kind of having fun doom scrolling...
50 minutes left. I want to go home and sleep. I know I said this already, but... that's how much I want to do that...
December 6, 2025 at 12:09 AM
50 minutes left. I want to go home and sleep. I know I said this already, but... that's how much I want to do that...
Sooooo... I think I went to walk outside for at least 15 minutes. That was relatively nice since I got some "fresh" air. It was fun to poke some cow0rkers about what they are going to wear to the holiday party tomorrow (and man, hearing some drama as usual).
December 5, 2025 at 11:45 PM
Sooooo... I think I went to walk outside for at least 15 minutes. That was relatively nice since I got some "fresh" air. It was fun to poke some cow0rkers about what they are going to wear to the holiday party tomorrow (and man, hearing some drama as usual).
Oh yeah, I'm getting my 10th injection today as well. Ahhhh.
December 5, 2025 at 10:41 PM
Oh yeah, I'm getting my 10th injection today as well. Ahhhh.
My period started again after two weeks, which is what I'm concerned about actually. I'm going to my OBGYN for a pap smear on Thursday, so I can also ask about this.
It's also the end of the week, which means my fatigue is in an all time high. It's only 2:40 ish, and I want to go home and sleep.
It's also the end of the week, which means my fatigue is in an all time high. It's only 2:40 ish, and I want to go home and sleep.
December 5, 2025 at 10:40 PM
My period started again after two weeks, which is what I'm concerned about actually. I'm going to my OBGYN for a pap smear on Thursday, so I can also ask about this.
It's also the end of the week, which means my fatigue is in an all time high. It's only 2:40 ish, and I want to go home and sleep.
It's also the end of the week, which means my fatigue is in an all time high. It's only 2:40 ish, and I want to go home and sleep.
Sigh. I'm feeling kind of scared of sharing too much about my health feelings, even to doctors, even though they're supposed to be there to help you. But I have to keep on believing that if you don't share, then they won't be able to help. It's so hard to.
(This is not just about RA.)
(This is not just about RA.)
December 5, 2025 at 8:36 PM
Sigh. I'm feeling kind of scared of sharing too much about my health feelings, even to doctors, even though they're supposed to be there to help you. But I have to keep on believing that if you don't share, then they won't be able to help. It's so hard to.
(This is not just about RA.)
(This is not just about RA.)
Flare...? Is it because of this cookie I just ate? 😭😡
December 5, 2025 at 12:37 AM
Flare...? Is it because of this cookie I just ate? 😭😡
I just realized I never talked about how physical therapy went, and now I'm at work, so I don't have time to go in detail. Oops.
I also just scheduled like five more sessions since the lady was kind enough to accommodate my schedule after work. 🥺
I also just scheduled like five more sessions since the lady was kind enough to accommodate my schedule after work. 🥺
December 2, 2025 at 11:26 PM
I just realized I never talked about how physical therapy went, and now I'm at work, so I don't have time to go in detail. Oops.
I also just scheduled like five more sessions since the lady was kind enough to accommodate my schedule after work. 🥺
I also just scheduled like five more sessions since the lady was kind enough to accommodate my schedule after work. 🥺
I'm glad that I decided to take 30m off work early to get some forms done before my first appointment. It got dark fast.
November 26, 2025 at 1:09 AM
I'm glad that I decided to take 30m off work early to get some forms done before my first appointment. It got dark fast.
Just received a text with a survey from my physical therapist, asking about my pain and capability levels, which I thought was super interesting since after I did that, I received multiple graphs. I'm expecting this will be a tracker to see how I'm doing.
November 24, 2025 at 11:42 PM
Just received a text with a survey from my physical therapist, asking about my pain and capability levels, which I thought was super interesting since after I did that, I received multiple graphs. I'm expecting this will be a tracker to see how I'm doing.
I'm so glad I made myself wash my hair tonight since I feel so much better now. I was feeling so lazy earlier and everything.
My right knee was also flaring sooo much earlier, like it felt like it was going to give out if I didn't stop and just be gentle with it. Omg.
My right knee was also flaring sooo much earlier, like it felt like it was going to give out if I didn't stop and just be gentle with it. Omg.
November 22, 2025 at 8:31 AM
I'm so glad I made myself wash my hair tonight since I feel so much better now. I was feeling so lazy earlier and everything.
My right knee was also flaring sooo much earlier, like it felt like it was going to give out if I didn't stop and just be gentle with it. Omg.
My right knee was also flaring sooo much earlier, like it felt like it was going to give out if I didn't stop and just be gentle with it. Omg.
9th injection happened! Last single digit...
November 22, 2025 at 8:30 AM
9th injection happened! Last single digit...
My period started again yesterday. I wonder if it started early because I was working from home and just felt so lazy/comfortable just rotting in bed half the time.
Now to finish my 9-5 today to feel completely relaxed for the weekend. I feel so sluggish and tired right now.
Now to finish my 9-5 today to feel completely relaxed for the weekend. I feel so sluggish and tired right now.
November 21, 2025 at 7:37 PM
My period started again yesterday. I wonder if it started early because I was working from home and just felt so lazy/comfortable just rotting in bed half the time.
Now to finish my 9-5 today to feel completely relaxed for the weekend. I feel so sluggish and tired right now.
Now to finish my 9-5 today to feel completely relaxed for the weekend. I feel so sluggish and tired right now.
Last Friday was my eighth injection. I didn't write about it then since it went okay. This is to recap for memories sake.
November 10, 2025 at 6:29 PM
Last Friday was my eighth injection. I didn't write about it then since it went okay. This is to recap for memories sake.
Oh, hi period, nice to meet you again!
It's kind of crazy that it's literally the day after I felt super tired and I didn't feel like cooking dinner.
It's also kind of crazy that I think it's two month after I stopped eating my birth control pills, so I think my body is working on time again.
It's kind of crazy that it's literally the day after I felt super tired and I didn't feel like cooking dinner.
It's also kind of crazy that I think it's two month after I stopped eating my birth control pills, so I think my body is working on time again.
October 29, 2025 at 6:05 PM
Oh, hi period, nice to meet you again!
It's kind of crazy that it's literally the day after I felt super tired and I didn't feel like cooking dinner.
It's also kind of crazy that I think it's two month after I stopped eating my birth control pills, so I think my body is working on time again.
It's kind of crazy that it's literally the day after I felt super tired and I didn't feel like cooking dinner.
It's also kind of crazy that I think it's two month after I stopped eating my birth control pills, so I think my body is working on time again.
Just scheduled an appointment with my rheumatologist for next Monday it to check on my rash just in case. I've been trying hydrocortisone eczema cream on it, and it may have seemed to help a bit.
If I didn't have to do training this week, I probably would've been checked sooner like Wednesday. 🥲
If I didn't have to do training this week, I probably would've been checked sooner like Wednesday. 🥲
October 27, 2025 at 3:55 PM
Just scheduled an appointment with my rheumatologist for next Monday it to check on my rash just in case. I've been trying hydrocortisone eczema cream on it, and it may have seemed to help a bit.
If I didn't have to do training this week, I probably would've been checked sooner like Wednesday. 🥲
If I didn't have to do training this week, I probably would've been checked sooner like Wednesday. 🥲
I had Tom help me take a photo this morning.
I put on some hydrocortisone for now, so I hope it works. 🙏
I put on some hydrocortisone for now, so I hope it works. 🙏
October 25, 2025 at 5:57 PM
I had Tom help me take a photo this morning.
I put on some hydrocortisone for now, so I hope it works. 🙏
I put on some hydrocortisone for now, so I hope it works. 🙏
Seventh injection today! Tom did a great job once again.
What has been bothering me is my left elbow started to have these red spots forming after I showered last night. Almost rash-like. Thankfully they're not itchy. It's annoying, though.
It faded a little, but it's still kind of visible today.
What has been bothering me is my left elbow started to have these red spots forming after I showered last night. Almost rash-like. Thankfully they're not itchy. It's annoying, though.
It faded a little, but it's still kind of visible today.
October 25, 2025 at 12:32 AM
Seventh injection today! Tom did a great job once again.
What has been bothering me is my left elbow started to have these red spots forming after I showered last night. Almost rash-like. Thankfully they're not itchy. It's annoying, though.
It faded a little, but it's still kind of visible today.
What has been bothering me is my left elbow started to have these red spots forming after I showered last night. Almost rash-like. Thankfully they're not itchy. It's annoying, though.
It faded a little, but it's still kind of visible today.
I think it's pretty crazy how it's still less than 3 months since I started my RA injections. It feels a little longer than that, and I want to feel more improvements, but then I am reminded that it's only less than 3 months when biologics are known to take 3 to 6 months to make you feel better.
October 21, 2025 at 9:34 PM
I think it's pretty crazy how it's still less than 3 months since I started my RA injections. It feels a little longer than that, and I want to feel more improvements, but then I am reminded that it's only less than 3 months when biologics are known to take 3 to 6 months to make you feel better.
I just got my stitches out from my wisdom tooth extraction. I don't feel as bad as the day of anymore, which is good. I just remember it feeling it pretty stressful to deal with it all.
October 20, 2025 at 6:58 PM
I just got my stitches out from my wisdom tooth extraction. I don't feel as bad as the day of anymore, which is good. I just remember it feeling it pretty stressful to deal with it all.
Just had my right wisdom tooth pulled out because it was decaying too much to leave it alone.
Now I'm going to be on antibiotics for a week and hopefully I don't let it infect.
I'm definitely not looking forward to the next coming days when I try to recover.
Now I'm going to be on antibiotics for a week and hopefully I don't let it infect.
I'm definitely not looking forward to the next coming days when I try to recover.
October 15, 2025 at 7:29 PM
Just had my right wisdom tooth pulled out because it was decaying too much to leave it alone.
Now I'm going to be on antibiotics for a week and hopefully I don't let it infect.
I'm definitely not looking forward to the next coming days when I try to recover.
Now I'm going to be on antibiotics for a week and hopefully I don't let it infect.
I'm definitely not looking forward to the next coming days when I try to recover.
Started eating my prenatal vitamins with omega 3. I've already started eating my calcium/vitamin D and turmeric supplements last week.
Let's see how my body feels about with all these supplements.
Let's see how my body feels about with all these supplements.
October 15, 2025 at 3:13 AM
Started eating my prenatal vitamins with omega 3. I've already started eating my calcium/vitamin D and turmeric supplements last week.
Let's see how my body feels about with all these supplements.
Let's see how my body feels about with all these supplements.