Jennifer J Brown
@jjunebrown.bsky.social
#Author, #publichealth advocate, #genetics PhD.
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
Creatively driven & scientifically inspired, Mom of 2 with #PKU.
Latest book: When the Baby Is Not OK: Hopes & Genes
https://jjbrownauthor.com/
A book reading + discussion of certain rare genes which allowed survival of epic catastrophic conditions in the past... a positive spin on #raredisease ... www.youtube.com/live/QAIXPuF... From "When the Baby Is Not OK: Hopes and Genes", my mom #memoir published this year. #Booksky #Momsky #genetics
November 8, 2025 at 3:51 PM
A book reading + discussion of certain rare genes which allowed survival of epic catastrophic conditions in the past... a positive spin on #raredisease ... www.youtube.com/live/QAIXPuF... From "When the Baby Is Not OK: Hopes and Genes", my mom #memoir published this year. #Booksky #Momsky #genetics
Happy Halloween! Be safe... I'm heading to our local library for Edgar Allan Poe stories. Watched "The Fall of the House of Usher" on Nflx last PM, so Poe. www.imdb.com/title/tt1556... If you've ever worked in pharma, as I have, it may twist a nerve or two. #Halloween #Fiction #EdgarAllanPoe
October 31, 2025 at 2:39 PM
Happy Halloween! Be safe... I'm heading to our local library for Edgar Allan Poe stories. Watched "The Fall of the House of Usher" on Nflx last PM, so Poe. www.imdb.com/title/tt1556... If you've ever worked in pharma, as I have, it may twist a nerve or two. #Halloween #Fiction #EdgarAllanPoe
Grateful to stand with wonderful people in the "rare" community at NYC's "Lifting the Limits" NPKUA benefit last night with my daughter Lillian, @lillianisabella.com, a #PKUAdvocate. A huge limit right now is access to care.
#PKU #Raredisease #LTLFORPKU #phenylketonuria #LiftingtheLimits #healthcare
#PKU #Raredisease #LTLFORPKU #phenylketonuria #LiftingtheLimits #healthcare
October 25, 2025 at 3:53 PM
Grateful to stand with wonderful people in the "rare" community at NYC's "Lifting the Limits" NPKUA benefit last night with my daughter Lillian, @lillianisabella.com, a #PKUAdvocate. A huge limit right now is access to care.
#PKU #Raredisease #LTLFORPKU #phenylketonuria #LiftingtheLimits #healthcare
#PKU #Raredisease #LTLFORPKU #phenylketonuria #LiftingtheLimits #healthcare
Storytelling never dies and can't be killed.... will be reading this memoir tomorrow like so many others will be. A story to be heard. Here's the link to the Bookshop site that supports local indie book sellers: bookshop.org/p/books/unti... #memoir #booksky #VirginiaGiuffre
October 20, 2025 at 11:28 PM
Storytelling never dies and can't be killed.... will be reading this memoir tomorrow like so many others will be. A story to be heard. Here's the link to the Bookshop site that supports local indie book sellers: bookshop.org/p/books/unti... #memoir #booksky #VirginiaGiuffre
📚"Smartly plotted set of shorts reflecting on 'death' and how it's an inescapable part of life....short, sharp, snappy with good pacing and strong character development" - Wishing Shelf, UK. Gratitude for the editorial review of my 2nd Ed "Death & the Dream" stories! www.amazon.com/Death-Dream-...
October 16, 2025 at 5:19 PM
📚"Smartly plotted set of shorts reflecting on 'death' and how it's an inescapable part of life....short, sharp, snappy with good pacing and strong character development" - Wishing Shelf, UK. Gratitude for the editorial review of my 2nd Ed "Death & the Dream" stories! www.amazon.com/Death-Dream-...
In "The Finest Mask" a speculative fiction, I reimagine history with Europeans susceptible to epidemics, needing masks, looking for "perfect genes" of beautiful Indigenous Peoples to save them... a horror collection "The Doctor's Dreams" 2nd edition now out: www.amazon.com/Doctors-Drea...
October 13, 2025 at 2:43 PM
In "The Finest Mask" a speculative fiction, I reimagine history with Europeans susceptible to epidemics, needing masks, looking for "perfect genes" of beautiful Indigenous Peoples to save them... a horror collection "The Doctor's Dreams" 2nd edition now out: www.amazon.com/Doctors-Drea...
We start with 🧬, healthcare gaps + advocacy in our @matthewzachary.bsky.social interview, "Genes of Wrath," but end with a (true) nerdy #horror story.
🎧 His inspiring series, "Out of Patients" verifies truth is stranger than fiction + we have so much to fix! www.outofpatients.com/the-genes-of...
🎧 His inspiring series, "Out of Patients" verifies truth is stranger than fiction + we have so much to fix! www.outofpatients.com/the-genes-of...
October 13, 2025 at 2:24 PM
We start with 🧬, healthcare gaps + advocacy in our @matthewzachary.bsky.social interview, "Genes of Wrath," but end with a (true) nerdy #horror story.
🎧 His inspiring series, "Out of Patients" verifies truth is stranger than fiction + we have so much to fix! www.outofpatients.com/the-genes-of...
🎧 His inspiring series, "Out of Patients" verifies truth is stranger than fiction + we have so much to fix! www.outofpatients.com/the-genes-of...
🧬The Genes of Wrath ~ 🎧podcast episode's up! On "Out of Patients" ~ about disconnects between medical knowledge + human connection, rare disease parenting, trauma + survival while flipping the script. www.outofpatients.com/the-genes-of... #raredisease #memoir #PKU #books @matthewzachary.bsky.social
October 10, 2025 at 1:59 PM
🧬The Genes of Wrath ~ 🎧podcast episode's up! On "Out of Patients" ~ about disconnects between medical knowledge + human connection, rare disease parenting, trauma + survival while flipping the script. www.outofpatients.com/the-genes-of... #raredisease #memoir #PKU #books @matthewzachary.bsky.social
Why we need to support the Digital Equity Act ~ we all need internet access, including those of us who are elderly, vets, people with disabilities... story from KFF kffhealthnews.org/news/article... #healthcare #health
October 10, 2025 at 1:46 PM
Why we need to support the Digital Equity Act ~ we all need internet access, including those of us who are elderly, vets, people with disabilities... story from KFF kffhealthnews.org/news/article... #healthcare #health
Book signing at Brooklyn Book Festival in NY, nearly everyone had a story to share as they stopped by for my memoir "When the Baby Is Not OK: Hopes & Genes"...
Sharing our journey is my activism.
#booksky #scicomm #books #raredisease #pku #phenylketonuria #newbornscreening #publichealth
Sharing our journey is my activism.
#booksky #scicomm #books #raredisease #pku #phenylketonuria #newbornscreening #publichealth
October 4, 2025 at 8:00 PM
Book signing at Brooklyn Book Festival in NY, nearly everyone had a story to share as they stopped by for my memoir "When the Baby Is Not OK: Hopes & Genes"...
Sharing our journey is my activism.
#booksky #scicomm #books #raredisease #pku #phenylketonuria #newbornscreening #publichealth
Sharing our journey is my activism.
#booksky #scicomm #books #raredisease #pku #phenylketonuria #newbornscreening #publichealth
Excited about being at Brooklyn Book Festival this Sunday, the City's largest free book fair! I'll have a table as an indie author / publisher with my newest book "When the Baby Is Not OK: Hopes & Genes" + more 2nd editions. See you there? @bkbookfest.bsky.social #writerscommunity #books #scicomm
September 15, 2025 at 6:01 PM
Excited about being at Brooklyn Book Festival this Sunday, the City's largest free book fair! I'll have a table as an indie author / publisher with my newest book "When the Baby Is Not OK: Hopes & Genes" + more 2nd editions. See you there? @bkbookfest.bsky.social #writerscommunity #books #scicomm
Grateful to editor Nicola Miller for her review of my book in "Rare Revolution Magazine," latest edition! Here's a link to the nonprofit's hub, + magazine with her #bookreview: rarerevolutionmagazine.com with great resources, news + personal stories on #raredisease and #patientadvocacy #booksky
September 2, 2025 at 1:13 PM
Grateful to editor Nicola Miller for her review of my book in "Rare Revolution Magazine," latest edition! Here's a link to the nonprofit's hub, + magazine with her #bookreview: rarerevolutionmagazine.com with great resources, news + personal stories on #raredisease and #patientadvocacy #booksky
Read Kurt Vonnegut’s 1st novel, Player Piano last night ~ amazed, so relevant today #LaborDay (publ 1952). Machines replacing workers was the tragedy, echo to being displaced by AI now. Anti McCarthy focus burns, with job loss + witch hunting of US scientists + liberals now. #amreading #booksky #AI
September 1, 2025 at 1:23 PM
Read Kurt Vonnegut’s 1st novel, Player Piano last night ~ amazed, so relevant today #LaborDay (publ 1952). Machines replacing workers was the tragedy, echo to being displaced by AI now. Anti McCarthy focus burns, with job loss + witch hunting of US scientists + liberals now. #amreading #booksky #AI
🎉"The Doctor's Dreams" has come out today in 2nd edition! My 4 novellas (2 added) in this revised edition explore inner lives of scientists & docs when faced with sudden change, uncertainty & deaths. www.amazon.com/dp/B0FP9GH568/ #booklovers #writingcommunity #writesky #books #booknews #booksky
August 30, 2025 at 8:01 PM
🎉"The Doctor's Dreams" has come out today in 2nd edition! My 4 novellas (2 added) in this revised edition explore inner lives of scientists & docs when faced with sudden change, uncertainty & deaths. www.amazon.com/dp/B0FP9GH568/ #booklovers #writingcommunity #writesky #books #booknews #booksky
Where can you go, spend no money at all, yet return with a great treasure? Feeling excited about my haul from the Queens Public Library... Sharing a reflection on a time the local library saved me: jjbrownauthor.com/public-libra... #libraries #booksky #memoir #gratitude #writingcommunity #amreading
August 27, 2025 at 2:44 PM
Where can you go, spend no money at all, yet return with a great treasure? Feeling excited about my haul from the Queens Public Library... Sharing a reflection on a time the local library saved me: jjbrownauthor.com/public-libra... #libraries #booksky #memoir #gratitude #writingcommunity #amreading
For people with patience, time with a dog is a little slice of heaven. 🐾 Happy International Dog Day! With my daughter's adopted Siberian Husky, Chloe here. Grateful for her rescue by ACCNY's Harlem shelter. She's some kind of angel. #InternationalDogDay #Gratitude #dogsky
August 26, 2025 at 5:54 PM
For people with patience, time with a dog is a little slice of heaven. 🐾 Happy International Dog Day! With my daughter's adopted Siberian Husky, Chloe here. Grateful for her rescue by ACCNY's Harlem shelter. She's some kind of angel. #InternationalDogDay #Gratitude #dogsky
2nd edition of "Death & the Dream" has just come out. 16 scary short stories uncover faces of death & meanings of dreams. From the Catskill Mountains to crises of conscience in NYC, my stories illuminate the beauty & the horror in ordinary lives. www.amazon.com/Death-Dream-... #booksky
August 23, 2025 at 1:19 AM
2nd edition of "Death & the Dream" has just come out. 16 scary short stories uncover faces of death & meanings of dreams. From the Catskill Mountains to crises of conscience in NYC, my stories illuminate the beauty & the horror in ordinary lives. www.amazon.com/Death-Dream-... #booksky
Provocative bedtime story event coming up; 3 tales of “rare” genes helping us survive epic disasters. Join Aug 23 10:30 PM ET for readings from my new book, "When the Baby Is Not OK: Hopes & Genes." Hosted by @canpkuplus.bsky.social Registration required, no fee. #PKU #booksky #raredisease #books
August 22, 2025 at 2:01 AM
Provocative bedtime story event coming up; 3 tales of “rare” genes helping us survive epic disasters. Join Aug 23 10:30 PM ET for readings from my new book, "When the Baby Is Not OK: Hopes & Genes." Hosted by @canpkuplus.bsky.social Registration required, no fee. #PKU #booksky #raredisease #books
When it's near 90 F in NYC, my budgie's summer heat hack is tasting my freshly-made iced hibiscus flower tea! Hibiscus is a #superfood, rich in antioxidants, may reduce inflammation, cholesterol + blood pressure. A drink which is actually good for your liver... Plants are amazing.
August 15, 2025 at 7:45 PM
When it's near 90 F in NYC, my budgie's summer heat hack is tasting my freshly-made iced hibiscus flower tea! Hibiscus is a #superfood, rich in antioxidants, may reduce inflammation, cholesterol + blood pressure. A drink which is actually good for your liver... Plants are amazing.
Survival Genes Stories: Positive Spin on "Rare" ~ coming up soon, a provocative event with tales of "rare" genes that allowed humankind to survive epic disasters.
Register: us06web.zoom.us/meeting/regi... 🎧 Free 📚reading event hosted by @canpkuplus.bsky.social virtually! #RareDisease #Genetics
Register: us06web.zoom.us/meeting/regi... 🎧 Free 📚reading event hosted by @canpkuplus.bsky.social virtually! #RareDisease #Genetics
August 15, 2025 at 1:50 PM
Survival Genes Stories: Positive Spin on "Rare" ~ coming up soon, a provocative event with tales of "rare" genes that allowed humankind to survive epic disasters.
Register: us06web.zoom.us/meeting/regi... 🎧 Free 📚reading event hosted by @canpkuplus.bsky.social virtually! #RareDisease #Genetics
Register: us06web.zoom.us/meeting/regi... 🎧 Free 📚reading event hosted by @canpkuplus.bsky.social virtually! #RareDisease #Genetics
Echinacea, one of the miraculous plants with magical healing powers for us, at Queens botanical garden, summer Friday in NYC - Mother Nature just doing her thing... #gratitude #inspiration #summer #plantsmakepeoplehappy
August 8, 2025 at 8:36 PM
Echinacea, one of the miraculous plants with magical healing powers for us, at Queens botanical garden, summer Friday in NYC - Mother Nature just doing her thing... #gratitude #inspiration #summer #plantsmakepeoplehappy
So empowering to meet with my NY reps to advocate for healthcare access for all, joining families + patients in the rare disease community yesterday. Thanks to the office of @schumer.senate.gov for listening + action! #Gratitude to the #RareAcrossAmerica initiative with @everylifeorg.bsky.social 🙏
August 8, 2025 at 2:21 PM
So empowering to meet with my NY reps to advocate for healthcare access for all, joining families + patients in the rare disease community yesterday. Thanks to the office of @schumer.senate.gov for listening + action! #Gratitude to the #RareAcrossAmerica initiative with @everylifeorg.bsky.social 🙏
In a time with so much medical misinformation, Kee Chan's "What Is Public Health" podcast is refreshing. Her inspiring interview on childbirth | #newbornscreening | DNA | genetics | #raredisease + my new book is up now. Have a listen 🎧+ share! open.spotify.com/episode/0Z5v... #Booksky #PKU #scicom
July 23, 2025 at 4:01 PM
In a time with so much medical misinformation, Kee Chan's "What Is Public Health" podcast is refreshing. Her inspiring interview on childbirth | #newbornscreening | DNA | genetics | #raredisease + my new book is up now. Have a listen 🎧+ share! open.spotify.com/episode/0Z5v... #Booksky #PKU #scicom
🧬 Survival Gene Stories, a Positive Spin on "Rare" - will be a Storytime Event, livestreaming free.
🎤 Tales of “rare” genes that allowed humankind to survive epic disasters, from my book "When the Baby Is Not OK: Hopes & Genes."
🎧 To register: us06web.zoom.us/meeting/regi... #memoir #genetics #PKU
🎤 Tales of “rare” genes that allowed humankind to survive epic disasters, from my book "When the Baby Is Not OK: Hopes & Genes."
🎧 To register: us06web.zoom.us/meeting/regi... #memoir #genetics #PKU
July 18, 2025 at 6:30 PM
🧬 Survival Gene Stories, a Positive Spin on "Rare" - will be a Storytime Event, livestreaming free.
🎤 Tales of “rare” genes that allowed humankind to survive epic disasters, from my book "When the Baby Is Not OK: Hopes & Genes."
🎧 To register: us06web.zoom.us/meeting/regi... #memoir #genetics #PKU
🎤 Tales of “rare” genes that allowed humankind to survive epic disasters, from my book "When the Baby Is Not OK: Hopes & Genes."
🎧 To register: us06web.zoom.us/meeting/regi... #memoir #genetics #PKU
"Never dumb down," - Barbara McClintock, Nobel Prize winning scientist.
#MondayMotivation
(described in a scene from my memoir book, recalling her good advice on my going into science research, in "When the Baby Is Not OK: Hopes & Genes" jjbrownauthor.com/book-release...)
#MondayMotivation
(described in a scene from my memoir book, recalling her good advice on my going into science research, in "When the Baby Is Not OK: Hopes & Genes" jjbrownauthor.com/book-release...)
July 14, 2025 at 2:36 PM
"Never dumb down," - Barbara McClintock, Nobel Prize winning scientist.
#MondayMotivation
(described in a scene from my memoir book, recalling her good advice on my going into science research, in "When the Baby Is Not OK: Hopes & Genes" jjbrownauthor.com/book-release...)
#MondayMotivation
(described in a scene from my memoir book, recalling her good advice on my going into science research, in "When the Baby Is Not OK: Hopes & Genes" jjbrownauthor.com/book-release...)