It's one of those no spoons, walking through waist deep cement kind of days where you are too tired to nap. #Lupus gets zero stars. Do not recommend. Very expensive. No returns.

My awesome husband is making me spaghetti carbonara FROM SCRATCH tonight. Already smells delicious. #marriagegoals

Shout out to the random guy who got in the elevator with me and my cane in my office building and said, "What's wrong with your legs?"

Chuck Schumer is Neville Chamberlain.

Woke up, threw up my guts, and the day was all downhill from there. Some days, you just aren't going to beat your disease. Went through the motions all day, but it was a losing battle. Try again tomorrow. #Lupussucks

I'm at that pain level where I've taken my extra pain meds and it's been an hour and I'm debating taking more meds. Arrrgh why don't these work instantly like in movies?

We are unpacking our go bags. Thank you to all the firefighters who kept us safe. True heroes.

Can someone recommend a middle grade fantasy book series like Fablehaven or How to Train Your Dragon?

Our bags are packed and we're on stand by to evacuate. We're the blue dot. I am so grateful that Bryan is so calm and reassuring. We can be out the door in 10 minutes.

Disability is not a competition. Your pain is valid even if someone else has it worse.

My mother is asking a non stop stream of questions. It's like watching football with The Riddler.

I accidentally left my disability parking placard in my parents' car so I'm going to have to pray to the parking gods for the next month. Or not leave the house. I choose B.

I will be filming a video tomorrow about how the growing lack of maternal care and privacy around obstetrics and gynecology are creating dangers in Red states. My talk co-authored by the architect of HIPAA, former chair of the Committee on Vital and Health Statistics, Prof. Mark Rothstein.

Nothing says you're visiting your Boomer parents like eating dinner at 5:15 and mom worrying about "the crowds."

Pull Ewers. He's limping and making poor decisions.

Thank goodness Trump selected Linda McMahon for DOE. I know that when I finish work on an IEP, I like to hit the Special Ed Services Coordinator with a folding chair and then a little People's Elbow. 🙄 What a ridiculous selection.

Making the switch!

I co-wrote this opinion piece for The Hill. thehill.com/opinion/heal...