Katarina Stano
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katarinastano.bsky.social
Katarina Stano
@katarinastano.bsky.social
👩‍💻 Blogger: www.fontanheart.com
#CHDawareness #singleventricleheart
🔍 Advocacy | Support | Empowerment
💔 Mom to a girl with half a heart
With Mirela Dežman @echdoheart.bsky.social making sure the voices of Europe’s congenital heart community are heard.
At the European Patients’ Forum Congress — a gathering of patient leaders, health experts, and policymakers shaping the future of healthcare across Europe. #EPFCongress25
November 26, 2025 at 1:20 PM
Never doubt the power of touch! ❤️‍🩹

New blog post: www.fontanheart.com

❤️ Basal stimulation helped us immensely in the ICU - and beyond. We're living proof that parental involvement matters.

How do you support your hospitalized child? I'd love to hear your experience! 🌻

#chdawareness #fontanheart
February 7, 2025 at 9:21 AM
Reposted by Katarina Stano
✨ Our next 𝐀𝐆𝐌 will be held in 𝐒𝐩𝐥𝐢𝐭, 𝐂𝐫𝐨𝐚𝐭𝐢𝐚, 𝐨𝐧 𝐭𝐡𝐞 𝟗𝐭𝐡 𝐚𝐧𝐝 𝟏𝟎𝐭𝐡 𝐨𝐟 𝐌𝐚𝐲 𝟐𝟎𝟐𝟓. Registration is open to all members. Email [email protected] for member queries. Visit our website for more details. 💖

𝐍𝐨𝐭 𝐚 𝐦𝐞𝐦𝐛𝐞𝐫? Complete the member application form under the 𝐉𝐎𝐈𝐍 menu.

www.echdo.eu
January 27, 2025 at 12:29 PM
Happy 7th, kiddo! What a journey! 🌻

www.fontanheart.com/birthday-cel...

Also: Hi! I'm here to talk about congenital heart disease, share life with a single ventricle heart, and empower parents to keep fighting for the best outcomes for their kids.

I’d love to connect! ❤
#chdawareness #fontanheart
January 22, 2025 at 4:51 PM