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kateviolette.com
Kate Violette
@kateviolette.com
6.6K followers 790 following 23K posts
Multipurpose nerd. Engineering manager currently waylaid by a complex illness. On a mission to watch every Katharine Hepburn movie. 🏳️‍🌈 they (🇬🇧), elle (🇫🇷) Currently in Portland OR. Always a Mainer. ✍️ Blog at my username! 📊 @healthlog.kateviolette.com
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kateviolette.com
Kate Violette @kateviolette.com · Jul 16
whew this poem 😮‍💨
emmessenn.com
Miyanda Nehwati 🇿🇼 @emmessenn.com · Jul 16
Ohhh Andrea Gibson ;(
Text: poem by Andrea Gibson :every time i ever said i want to die By Andrea Gibson A difficult life is not less worth living than a gentle one. Joy is simply easier to carry than sorrow. And your heart could lift a city from how long you've spent holding what's been nearly impossible to hold. This world needs those who know how to do that. Those who could find a tunnel that has no light at the end of it, and hold it up like a telescope to know the darkness also contains truths that could bring the light to its knees. Grief astronomer, adjust the lens, look close, tell us what you see.
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kateviolette.com
Kate Violette @kateviolette.com · 10h
love this! 🙏
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kateviolette.com
Kate Violette @kateviolette.com · 11h
me too! we're starting me out at 1/10th dose to introduce it very gently
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kateviolette.com
Kate Violette @kateviolette.com · 13h
It also addresses possible prescriber hesitations, such as that no patient who was already at a "normal" BMI became underweight as a result of the drug

(In the paper they discuss their suspicions that GLP-1 drugs are perhaps moreso "weight-normalizing" drugs than "weight-loss" drugs)
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kateviolette.com
Kate Violette @kateviolette.com · 13h
"Results: Among 47 cases (mean age 39, range 15-71, 89 % female), 89 % demonstrated clinical benefit with GLP-1RAs for a broad range of problems associated with MCAS."

A small study, but it's from really reputable MCAS researcher-clinicians
Utility of glucagon-like-peptide-1-receptor agonists in mast cell activation syndrome - PubMed
GLP-1RAs may have substantial benefit in MCAS. Randomized controlled trials are needed to assess the efficacy, and identify optimal dosing, of GLP-1RA treatment in MCAS.
pubmed.ncbi.nlm.nih.gov
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kateviolette.com
Kate Violette @kateviolette.com · 13h
Yes! A great collected cases studies article that was recently published, let me find you a link
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kateviolette.com
Kate Violette @kateviolette.com · 14h
post doctor visit epilogue: among several other things I've now got a prioritized list to try running through, I'm gonna give dual-classing a try starting today!

also, great news--my doctor asked if I'd been following the GLP-1 news and wants to try me on one! 🙏 I'm pumped.
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kateviolette.com
Kate Violette @kateviolette.com · 15h
ugh this is so depressing!

Can we not have like one company that treats their workers well and that we can feel good shopping at 😤
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kateviolette.com
Kate Violette @kateviolette.com · 15h
I cannot stop chuckling at this video, it's so perfect ❤️
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kateviolette.com
Kate Violette @kateviolette.com · 15h
there is one! there's been some chatter about it on here if you want to search for details :)
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Reposted by Kate Violette
rsphillips.bsky.social
Scott Phillips @rsphillips.bsky.social · 19h
It is my sincerest hope that by the end of this there are 1000 protesters in various animal/cartoon costumes.
carlquintanilla.bsky.social
Carl Quintanilla @carlquintanilla.bsky.social · 22h
#WarRavagedPortland
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kateviolette.com
Kate Violette @kateviolette.com · 15h
me too! 🙏 let it be so!
kateviolette.com
Kate Violette @kateviolette.com · 15h
😂 this made my day
carlquintanilla.bsky.social
Carl Quintanilla @carlquintanilla.bsky.social · 22h
#WarRavagedPortland
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kateviolette.com
Kate Violette @kateviolette.com · 16h
Yeah I have been going through it with my MCAS the past week, but luckily I have a call with my main dr in just a few mins to hopefully figure some things out to try!
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kateviolette.com
Kate Violette @kateviolette.com · 21h
ah fuck clearly this should be pump the *brakes*, I'm real tired tonight y'all

(physically tired from not enough sleep yet, mentally tired from the extremeness of the MCAS doom--if you know, you know; it is truly traumatizing)
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kateviolette.com
Kate Violette @kateviolette.com · 21h
anyway, back to sleep for a third time tonight and hoping my mast cells chill tf out and that I actually get some sleep before a 10a call with my doctor to figure out how to nip this week-long MCAS flare

(I briefly thought I was coming out of it this past weekend, but unfortunately not)
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kateviolette.com
Kate Violette @kateviolette.com · 21h
every once in while when I see a stranger melting down on here, I try to be nice in an effort to encourage them to pump the breaks

bc I have very limited energy I usually just block on sight, *liberally*

but sometimes I try

however, the success rate is a bit disappointing 😅

alas, such is world
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kateviolette.com
Kate Violette @kateviolette.com · 21h
anyway, I think I'm gonna block them now because holy hell
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kateviolette.com
Kate Violette @kateviolette.com · 21h
I know I've said it before but still: watching people put that much energy into being toxic is incomprehensible to me as someone with an energy-limiting illness

it's straight-up like watching someone light piles of money on fire

I envy all the other things they could be doing with that time/energy
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kateviolette.com
Kate Violette @kateviolette.com · 22h
you're welcome to try to point me to where you think she did that; I'll admit I'm skeptical of your claim, so I'll understand if you don't feel that's worth your time.
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kateviolette.com
Kate Violette @kateviolette.com · 22h
"watch your back"?!

whoa
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kateviolette.com
Kate Violette @kateviolette.com · 22h
(totally legit! :) )
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kateviolette.com
Kate Violette @kateviolette.com · 22h
with sincerity: hey, it's clear you're hurting--most people are these days, myself and almost literally everyone I know included--but taking it out on rando internet strangers whose backgrounds you don't even know is not gonna get you the relief you need

you're just causing more harm in the world
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kateviolette.com
Kate Violette @kateviolette.com · 22h
damn that makes me really sad to hear; we've gotta be learning to stick together these days, not drift further apart
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kateviolette.com
Kate Violette @kateviolette.com · 1d
oh mon dieu je peux pas avec ce bordel là
nicolasberrod.bsky.social
Nicolas Berrod @nicolasberrod.bsky.social · 1d
🇺🇸 Les États-Unis veulent des vaccins distincts contre la rougeole, les oreillons et la rubéole au lieu du vaccin combiné actuel, pour "optimiser le choix des parents".

Ce serait pourtant beaucoup moins pratique, et rien ne dit que ce serait plus efficace. 🤨
Acting CDC director calls to 'break up' the measles, mumps and rubella vaccine into three shots
Individual vaccines for each virus aren't available in the U.S., and no published scientific evidence shows a benefit to separating the combined vaccine.
www.nbcnews.com
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kateviolette.com
Kate Violette @kateviolette.com · 1d
It's a little hard to get to sleep when you have to worry about waking up to a body that thinks it might be at risk of imminent death, but,

sleep deprivation is also bad for mast cells, so,

here I go, trying to sleep after a very scary morning in like a week-long worse MCAS patch.
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