Lidia Thompson
@lidiathompson.bsky.social
Studied and taught physics. Love science. Ill with ME/CFS for 30+ years. Doing my bit to promote biomedical knowledge of ME and Long Covid
Reposted by Lidia Thompson
🎧 An easy 30min listen: The #MyalgicEncephalomyelitis #MECFS medical scandal
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
November 29, 2025 at 9:04 AM
🎧 An easy 30min listen: The #MyalgicEncephalomyelitis #MECFS medical scandal
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
The Australian newspaper journo Jack the Insider (Peter Hoysted) colourfully tears shreds off Sir Simon Wessely.
F bombs fly as he lambastes the PACE trial & RACGP HANDI guide.
Starts 1:30
@milliganreports.bsky.social
Reposted by Lidia Thompson
Scientific reaction from Prof Kevin McConway (Applied Statistics) and, I understand, soon from Prof Alan J Carson (Neuropsychiatry), now posted. Prof Carson's critique misunderstands our methods, as Prof McConway's comments make clear. www.sciencemediacentre.org/expert-react...
expert reaction to observational study of blood biomarkers in ME/CFS patients | Science Media Centre
www.sciencemediacentre.org
June 20, 2025 at 8:18 AM
Scientific reaction from Prof Kevin McConway (Applied Statistics) and, I understand, soon from Prof Alan J Carson (Neuropsychiatry), now posted. Prof Carson's critique misunderstands our methods, as Prof McConway's comments make clear. www.sciencemediacentre.org/expert-react...
Reposted by Lidia Thompson
📢 Now published:
www.embopress.org/doi/full/10.....
Since the preprint, we replicated 9 of 14 traits in All of Us & showed that #pwME with PEM-like symptoms have stronger biomarker differences.
bsky.app/profile/cgat...
www.embopress.org/doi/full/10.....
Since the preprint, we replicated 9 of 14 traits in All of Us & showed that #pwME with PEM-like symptoms have stronger biomarker differences.
bsky.app/profile/cgat...
June 20, 2025 at 5:44 AM
📢 Now published:
www.embopress.org/doi/full/10.....
Since the preprint, we replicated 9 of 14 traits in All of Us & showed that #pwME with PEM-like symptoms have stronger biomarker differences.
bsky.app/profile/cgat...
www.embopress.org/doi/full/10.....
Since the preprint, we replicated 9 of 14 traits in All of Us & showed that #pwME with PEM-like symptoms have stronger biomarker differences.
bsky.app/profile/cgat...
Reposted by Lidia Thompson
An important new study on PEM showing abnormal spinal fluid metabolites before and after an exercise challenge:
In controls, metabolites were created in response to exercise, in ME/CFS they were consumed.
As with other research this shows an aberrant metabolic response to exertion in ME/CFS
In controls, metabolites were created in response to exercise, in ME/CFS they were consumed.
As with other research this shows an aberrant metabolic response to exertion in ME/CFS
New from the US:
Exertional Exhaustion (Post-Exertional Malaise, PEM) Evaluated by the Effects of Exercise on Cerebrospinal Fluid Metabolomics–Lipidomics and Serine Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
www.mdpi.com/1422-0067/26...
#MEcfs #CFS
Exertional Exhaustion (Post-Exertional Malaise, PEM) Evaluated by the Effects of Exercise on Cerebrospinal Fluid Metabolomics–Lipidomics and Serine Pathway in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
www.mdpi.com/1422-0067/26...
#MEcfs #CFS
February 2, 2025 at 3:47 PM
An important new study on PEM showing abnormal spinal fluid metabolites before and after an exercise challenge:
In controls, metabolites were created in response to exercise, in ME/CFS they were consumed.
As with other research this shows an aberrant metabolic response to exertion in ME/CFS
In controls, metabolites were created in response to exercise, in ME/CFS they were consumed.
As with other research this shows an aberrant metabolic response to exertion in ME/CFS
Reposted by Lidia Thompson
This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵
I never thought a day would come when I would write a post this critical about the Cochrane Collaboration. But today was that day:
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
absolutelymaybe.plos.org/2025/01/24/w...
#mecfs
When Journal, Scientific Society, and Community Values Clash - Absolutely Maybe
A process I’ve been involved with at a journal recently exploded. It was meant to resolve a controversy about a publication, not…
absolutelymaybe.plos.org
January 29, 2025 at 8:57 AM
This is deeply shocking and disturbing, the opposite of scientific good practice. As I see it, a group of diehards promoting a discredited treatment (exercise "therapy" for ME/CFS patients) are seeking to stifle medical progress - to protect their reputations. And Cochrane has kowtowed to them. 🧵