Long Covid Scotland
@longcovidscot.bsky.social
160 followers 19 following 61 posts
Long Covid Scotland is a charity & action group led by & advocating for people living with Long Covid. https://www.longcovid.scot
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longcovidscot.bsky.social
🛒𝟴𝟮%of Scots with #LongCovid told us they need help with shopping.
People are struggling with basic tasks but government funding is now just £𝟵.𝟳𝟬 per patient per year.

We're telling That isn't enough.

#LongCovidScotland #Disability #ChronicIllness #Scotland
Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 82% of Scots with Long Covid need help with shopping. The graphic includes a yellow shopping trolley icon and text noting that Scottish Government funding for Long Covid is only £9.70 per patient per year. Produced by Long Covid Scotland.
longcovidscot.bsky.social
🧹 89% of Scots with #LongCovid need help with household chores.
Many can’t cook, clean, launder without support yet funding is just £9.70 per patient per year?!

Hey ScotGov That’s not care. That’s neglect.
#LongCovidScotland #Disability #ChronicIllness #Scotland
Infographic titled The Financial Impact of Long Covid in Scotland. It shows that 89% of Scots with Long Covid need help with household chores. The graphic includes a yellow spray bottle icon and notes that Scottish Government funding is only £9.70 per patient per year. Produced by Long Covid Scotland.
longcovidscot.bsky.social
In Scotland, the disabled pay TWICE

🏥 84% of Scots with #LongCovid pay for supplements.
59% for alternative therapies. 41% for private appointments.
...Because Scottish Government funding is only £9.70 per patient per year

#LongCovidScotland #ChronicIllness #Disability #Scotland
Infographic titled The Financial Impact of Long Covid in Scotland. It shows that many Scots with Long Covid are paying privately for treatment, with bar chart data indicating high spending on supplements (84%), alternative therapies (59%), medication, and private health appointments. The text notes that Scottish Government funding is only £9.70 per patient per year. Includes the Long Covid Scotlan
longcovidscot.bsky.social
📊 4 in 10 Scots with #LongCovid told us they can’t work at all.
Another 2 in 10 are forced to cut their hours.
Meanwhile, Scottish Government funding is just £9.70 per patient per year.
People are losing livelihoods while support lags behind.

#LongCovidScotland #Disability #Scotland
Infographic titled The Financial Impact of Long Covid in Scotland. A pie chart shows that 4 out of 10 Scots with Long Covid (37.7%) are unable to work, while 21.3% work fewer hours. The text highlights that Scottish Government funding for Long Covid is only £9.70 per patient per year. Includes the Long Covid Scotland logo and data sources from the 2025 Long Covid Scotland Survey.
longcovidscot.bsky.social
Scots disabled by #LongCovid have lost over £50,000 in earnings on average.
Scottish Government funding? Just £9.70 per patient per year.
People are paying the price — not the government.
#LongCovidScotland #ChronicIllness #Scotland #MECFS
Infographic titled The Financial Impact of Long Covid in Scotland. It shows that Scots disabled by Long Covid have lost over £50,000 in earnings on average, while Scottish Government funding is only £9.70 per patient per year. Includes the Long Covid Scotland logo and a note citing survey data and government reports.
longcovidscot.bsky.social
We see seven major problems with the recent funding announcement. Here's what you need to know. Please watch, like and share to raise awareness. Audit Scotland MUST surely now investigate? #LongCovid #MECFS #ScotGov www.youtube.com/watch?v=BtO...
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longcovidscot.bsky.social
While we welcome the Scottish Government announcement of £4.5 million recurrent #LongCovid and #MECFS funding, serious concerns remain. Patients are told money is being allocated, but there is no clarity on how it will be used.

Read the full statement on our website: www.longcovid.scot/blog/res...
Dark blue graphic with text 'Response: ScotGov Funding Announcement' with a man wearing an FFP3 mask
longcovidscot.bsky.social
📢 New research from Robert Gordon University and the Poverty Alliance highlights the severe financial pressures faced by people with Long COVID in Scotland.

Read the full story - and let us know your experience

www.rgu.ac.uk/news/news-202...

#LongCovid #SocialJustice #Workplace #Scotland #Poverty
Long COVID, long consequences | September 2025 | News | RGU
New research from Robert Gordon University (RGU) and the Poverty Alliance highlights the severe financial pressures being faced by people with Long COVID in Scotland.
www.rgu.ac.uk
longcovidscot.bsky.social
Members of The Long Covid Cuppa in Falkirk, Noreen & Suzanne are braving The Forth Bridge Abseil on 28th Sep to raise awareness of Long Covid services from Chest Heart and Stroke Scotland and The Cuppa Group:

Can donate here: gofund.me/71d0cc9d1
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longcovidscot.bsky.social
36% of people with confirmed COVID develop Long COVID, per a mega-review of 429 studies. Higher in hospitalised patients (44%). Common issues: fatigue, respiratory and neurological problems. This is a long-term public health challenge.

www.eatg.org/hiv-news/more-...
#LongCovid #PublicHealth
More than one-third of individuals with COVID-19 experience long COVID
Long COVID remains a globally persistent condition, with a pooled prevalence of 36% worldwide, highlighting the urgent need for follow-up studies and policy responses.
www.eatg.org
longcovidscot.bsky.social
36% of people with confirmed COVID develop Long COVID, per a mega-review of 429 studies. Higher in hospitalised patients (44%). Common issues: fatigue, respiratory and neurological problems. This is a long-term public health challenge.

www.eatg.org/hiv-news/more-...
#LongCovid #PublicHealth
More than one-third of individuals with COVID-19 experience long COVID
Long COVID remains a globally persistent condition, with a pooled prevalence of 36% worldwide, highlighting the urgent need for follow-up studies and policy responses.
www.eatg.org
longcovidscot.bsky.social
🧠 COVID-19 Isn’t Just a Lung Disease It’s Hitting Our Brains Too.

We need better mental support
Dr's should screen for brain symptoms early.
Long-term research and public health plan needed

#LongCovid #BrainFog #CovidRecovery #MentalHealth #Neurology #NeuroCovid
www.journalmbr.com.br/index...
Neuropsychiatric manifestations related to COVID-19 | Journal of Medical and Biosciences Research
www.journalmbr.com.br
longcovidscot.bsky.social
📣 HEAR US!
Long Covid Scotland has submitted our official response to the Long Term Conditions consultation. You can download it in full below.

🕒 You have until 20ᵗʰ July to submit your personal response.

#LongCovid #DisabilityRights #HearUs

drive.google.com/file/d/1mV...
longcovidscot.bsky.social
🚨𝗧𝗵𝗲𝗿𝗲'𝘀 𝗮 𝗻𝗲𝘄 𝗖𝗢𝗩𝗜𝗗 𝘃𝗮𝗿𝗶𝗮𝗻𝘁 𝘀𝗽𝗿𝗲𝗮𝗱𝗶𝗻𝗴 𝗶𝗻 𝘁𝗵𝗲 𝗨𝗞: 𝗦𝘁𝗿𝗮𝘁𝘂𝘀 𝗫𝗙𝗚.

Key symptoms:

‼️Sore Throat
🔇Hoarse Voice
😓Fatigue

www.independent.co.uk/news/...

#StratusXFG #LongCovid #CovidIsNotOver #HealthAlert #UKNews #LongCovidScotland
New Covid strain spreads across UK with unique symptom
The XFG and XFG.3 variants currently account for around 30 percent of Covid-19 cases in England
www.independent.co.uk
longcovidscot.bsky.social
🧬Does the Gut Hold the Key to Long COVID and Chronic Fatigue?
Researchers compared Long COVID to other fatigue & immune issues
www.mdpi.com/2218-273X/15/7...

#LongCovid #ChronicFatigue #GutHealth #Microbiome #PASC #PostViralFatigue #ImmuneSystem #HealthResearch #LongCovidAwareness
www.mdpi.com
longcovidscot.bsky.social
🧠💥 Could Long COVID Be Linked to Burnout in Your Body's Stress System?
Research suggests COVID affects adrenal glands,
When these don't work you can stay stuck in low-energy, high-stress mode.

#LongCOVID #ChronicIllness #Fatigue #BrainFog

scholar.kyobobook.co.kr/art...
Screengrab of link to the research
longcovidscot.bsky.social
🧠💥 Could Long COVID Be Linked to Burnout in Your Body's Stress System?
Research suggests COVID affects adrenal glands,
When these don't work you can stay stuck in low-energy, high-stress mode.

#LongCOVID #ChronicIllness #Fatigue #BrainFog

scholar.kyobobook.co.kr/art...
Screengrab of link to the research
longcovidscot.bsky.social
New study: Over 1 in 3 children had Long Covid symptoms 3 months after infection.
Breathing issues, sleep problems & hair loss were most common.
📌 Kids with moderate symptoms during Covid were much more likely to be affected.
he02.tci-thaijo.org/index.p...

#LongCovid #Covid19
Incidence and Risk Factors of Long COVID in Children and Adolescents: A Single-Center Cohort Study in Thailand | Vajira Medical Journal : Journal of Urban Medicine
he02.tci-thaijo.org
longcovidscot.bsky.social
New study: Over 1 in 3 children had Long Covid symptoms 3 months after infection.
Breathing issues, sleep problems & hair loss were most common.
📌 Kids with moderate symptoms during Covid were much more likely to be affected.
he02.tci-thaijo.org/index.p...

#LongCovid #Covid19
Incidence and Risk Factors of Long COVID in Children and Adolescents: A Single-Center Cohort Study in Thailand | Vajira Medical Journal : Journal of Urban Medicine
he02.tci-thaijo.org
longcovidscot.bsky.social
“Being alive is utterly exhausting.”
This Big Issue report shares how Long Covid is pushing people out of work — and into a benefits system that doesn’t understand them.
📉 2 million affected.
📢 No support, no treatment — just blame.
Read & share

www.bigissue.com/news/socia...
Five years on: How Covid forced people out of work and onto benefits
As the government seeks to crack down on worklessness in the UK, perhaps ministers need to consider the people suffering with long-Covid.
www.bigissue.com
longcovidscot.bsky.social
🫶 THANK YOU TO EVERYONE WHO FILLED IN OUR SURVEY

Your time, energy & concentration are so precious; we’re grateful you donated them. We’re now working with data experts to turn your answers into insights, then action. 

📢 Watch this space!

#LongCovid #InvisibleIllness #Fatigue #LivedExperience
Two masked people point at a sign saying "Thank you from Long Covid Scotland"
longcovidscot.bsky.social
Want to donate AND raise awareness of Long Covid in Scotland?
With every Shirt Purchase from our store £3.75 is donated to Long Covid Scotland. 

longcovidscotland.shop/prod...
Chap with a beard in a long covid scotland t-shirt
longcovidscot.bsky.social
A new large study suggests gene FOXP4, which helps control our lungs, is involved in long covid . It’s a different gene than the one linked to severe Covid, showing that Long Covid is its own condition, not just a “slow recovery”.

www.nature.com/articles/s41... #LongCovid #LongCovidScotland
Genome-wide association study of long COVID - Nature Genetics
A genome-wide study by the Long COVID Host Genetics Initiative identifies an association between the FOXP4 locus and long COVID, implicating altered lung function in its pathophysiology.
www.nature.com