@loyaltynerd.bsky.social
15 years ago, our daughter was diagnosed with Phelan-McDermid & we were told there would never be a cure or treatment.
Never fucking take no for an answer
www.linkedin.com/posts/lifear...
Never fucking take no for an answer
www.linkedin.com/posts/lifear...
Although the holidays are just around the corner, our teams are still working hard to deliver impact for people living with rare diseases.
We are excited to share that we will be funding a new… | Li...
Although the holidays are just around the corner, our teams are still working hard to deliver impact for people living with rare diseases.
We are excited to share that we will be funding a new multi...
www.linkedin.com
December 19, 2025 at 7:32 PM
15 years ago, our daughter was diagnosed with Phelan-McDermid & we were told there would never be a cure or treatment.
Never fucking take no for an answer
www.linkedin.com/posts/lifear...
Never fucking take no for an answer
www.linkedin.com/posts/lifear...
@hughbon.bsky.social You sent a birthday msg to this girl about 7 years ago, do you remember! Last night she was on Children in Need in a sketch! Would love your advice,she’s 11 & loved the experience. Do we help her find more “real” acting roles this young or just say she should enjoy being a kid?
November 15, 2025 at 11:26 PM
@hughbon.bsky.social You sent a birthday msg to this girl about 7 years ago, do you remember! Last night she was on Children in Need in a sketch! Would love your advice,she’s 11 & loved the experience. Do we help her find more “real” acting roles this young or just say she should enjoy being a kid?
November 15, 2025 at 9:08 AM
Once Kiss lost Ace Freely they went downhill
September 27, 2025 at 9:20 PM
Once Kiss lost Ace Freely they went downhill
@dpurcell.bsky.social Archie, Bundy & now Elmo
September 18, 2025 at 4:29 PM
@dpurcell.bsky.social Archie, Bundy & now Elmo
@barleyscotch.bsky.social Kit Trigg rocks! Brought a couple newbies to the Junctiom, Back Row see you soon!
February 14, 2025 at 8:26 PM
@barleyscotch.bsky.social Kit Trigg rocks! Brought a couple newbies to the Junctiom, Back Row see you soon!
When in doubt, follow your gut instinct; it’s usually right
people over 30 quote this with some life advice for the rest of us?
January 30, 2025 at 5:32 PM
When in doubt, follow your gut instinct; it’s usually right
@barleyscotch.bsky.social I think you are finished touring by then, any chance you are in Cambridge May 25th? Its my 60th, if you were Id love to have you relive your “songs about drinkin” accoustic set you did at Live & Let Live years ago
January 17, 2025 at 3:31 PM
@barleyscotch.bsky.social I think you are finished touring by then, any chance you are in Cambridge May 25th? Its my 60th, if you were Id love to have you relive your “songs about drinkin” accoustic set you did at Live & Let Live years ago
@barleyscotch.bsky.social London St Pancras now has a wall of fame of pianists that played their piano - can’t believe they forgot you!!!
December 13, 2024 at 7:57 PM
@barleyscotch.bsky.social London St Pancras now has a wall of fame of pianists that played their piano - can’t believe they forgot you!!!
@jamesrapien.bsky.social Whodey! Welcome! Not much Bengals content here yet so go for it!!
November 12, 2024 at 2:33 PM
@jamesrapien.bsky.social Whodey! Welcome! Not much Bengals content here yet so go for it!!