Maj F Birkedal
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majfbirkedal.bsky.social
Maj F Birkedal
@majfbirkedal.bsky.social
Paediatric nurse•thrombosis and haemostasis•Chair EAHAD nurses committee•Clinical trial coordinator🇩🇰
Reposted by Maj F Birkedal
In @eahad.bsky.social's latest podcast,
@majfbirkedal.bsky.social discusses using a subcutaneous drug delivery device to reduce treatment-related #pain in children with #haemophiliaA on #emicizumab. Read her paper in The Journal of Haemophilia Practice sciendo.com/article/10.2...

#HemeSky #MedSky
September 4, 2025 at 10:41 AM
Reposted by Maj F Birkedal
🩺 Calling all nurses in #haemophilia & bleeding disorders! The EAHAD Nurses Committee is looking for one new member to join for a three-year term starting September 2025! 📅 Don’t wait and apply now: www.eahad.org/call-for-app...
June 2, 2025 at 2:47 PM
Reposted by Maj F Birkedal
#PhysioNews 🎙️ Get ready for an insightful conversation with @physiopaul.bsky.social on his recent paper "Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia"! Tune in now 🎧 on Spotify: open.spotify.com/episode/2B8j...
Meet the Author Ep. 6: Exercise-based telerehabilitation for the management of chronic pain in people with severe haemophilia: a mixed-methods feasibility study
EAHAD · Episode
open.spotify.com
March 27, 2025 at 12:40 PM
Reposted by Maj F Birkedal
Relive the best moments from #EAHAD2025 congress with our official photo album! 📸 From insightful sessions to inspiring connections, dive into the memories now: www.flickr.com/photos/13951... 💬 Tag yourself or a colleague in your favourite pic and share your key takeaways!
March 28, 2025 at 2:30 PM
Reposted by Maj F Birkedal
🩺 Calling all healthcare professionals and patients! The VRCFD WG is surveying to gather insights into current practices for diagnosing, treating, and managing very rare coagulation factor deficiencies. 📝 Participate in the survey here: www.eahad.org/about-eahad/...
February 20, 2025 at 9:27 AM

If you care for a child on emicizumab treatment please consider if your practice could benefit from our experiences.
It has made a world of difference to our patients. Read it here: doi.org/10.2478/jhp-...

#HemeSky #MedSky #hematology #hemophilia #emicizumab @majfbirkedal.bsky.social
A single centre experience with clinical use of Neria™...
Background The introduction of emicizumab as prophylactic subcutaneous (SC) administered treatment for people with haemophilia A has...
doi.org
January 23, 2025 at 12:41 PM
Reposted by Maj F Birkedal
New in The Journal of Haemophilia Practice: a paper on the use of a subcutaneous drug delivery device to reduce pain and distress in children with haemophilia A receiving emicizumab. Read it here: doi.org/10.2478/jhp-...

#HemeSky #MedSky #hematology #hemophilia #emicizumab @majfbirkedal.bsky.social
January 23, 2025 at 7:25 AM
Reposted by Maj F Birkedal
We are excited to share a new resource developed by EAHAD WG+BD WG and designed for girls who are starting or will soon start their periods, providing valuable information about menstrual health in the context of bleeding disorders. 🔗 www.eahad.org/eahad-projec...
January 13, 2025 at 9:29 AM
Reposted by Maj F Birkedal
🎄Before the holidays, the EAHAD Physiotherapists Committee is excited to share the latest episode of the "Meet the Author Series". This time, Johan Blokzijl presents the project "A Clinical Practice Guideline for Primary Care Physiotherapy in PwH" 🎥 Watch it now academy.eahad.org/eahad/2024/m...
Meet the Author Series: Johan Blokzijl by Johan Blokzijl
EAHAD Academy; Blokzijl J. Dec 3 2024; 4150266;
academy.eahad.org
December 16, 2024 at 9:30 AM
Reposted by Maj F Birkedal
🌟 Do you know a #haemophilia nurse who goes above and beyond for their patients? Nominate them for the Star European Haemophilia Nurse Award! 📩 Send a 1-page nomination detailing their contributions to [email protected] by Monday, 13th January 2025.
December 4, 2024 at 10:11 AM
Reposted by Maj F Birkedal
📢 We need your insights! The EAHAD WG+BD Working Group invites healthcare professionals worldwide to take part in a short survey on Educational Needs regarding Principles of Care for HCPs🔗 www.surveymonkey.com/r/C3NVZQK ⏱ 8 minutes
December 2, 2024 at 10:54 AM
Reposted by Maj F Birkedal
We're researching what it's like to live with #vonWillebrandDisease. People with Type 1 & Type 2 #vWD have told us they bleed at least once a week - and we want to help change that. Can you help us? For more info on our survey, visit bit.ly/40MlHtv
#HemeSky
November 18, 2024 at 1:25 PM
Altuvoct has become commercially available in Denmark, just administered the first dose to a Danish patient. This development marks a significant advancement for families affected by #hemophilia offering new hope for improved management of the condition.
November 18, 2024 at 8:56 PM
Very pleased that my first post concerns good procedural practice in children- brilliantly delivered at the PREPARE congress by @lucybray9.bsky.social
November 18, 2024 at 2:09 PM