@mals-foundation.bsky.social
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
December 20, 2025 at 7:01 PM
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
It's not always Black & White sometimes it's teal.
December 10, 2025 at 9:02 PM
It's not always Black & White sometimes it's teal.
Did you need a stent or bypass done during your MALS Journey?
December 8, 2025 at 9:01 PM
Did you need a stent or bypass done during your MALS Journey?
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
December 6, 2025 at 7:01 PM
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
The link can also be found on our get involved page on our website.
Deadline for photos: January 15, 2026
Join us for a fun-filled live event where we are diving into the festive spirit by creating an Ugly Christmas Sweater in honor of National Ugly Sweater Day!
Event will be on December 16th at 7 PM (EST). We'll be going live on Facebook and Instagram.
Event will be on December 16th at 7 PM (EST). We'll be going live on Facebook and Instagram.
December 4, 2025 at 9:00 PM
Join us for a fun-filled live event where we are diving into the festive spirit by creating an Ugly Christmas Sweater in honor of National Ugly Sweater Day!
Event will be on December 16th at 7 PM (EST). We'll be going live on Facebook and Instagram.
Event will be on December 16th at 7 PM (EST). We'll be going live on Facebook and Instagram.
Sometimes I think doctors need to hear this. The amount of MALS patients who are treated poorly by doctors is still too high. Being told your illness doesn't exist or that the pain isn't real doesn't help the patient. It just makes them feel worse about their own circumstances.
December 1, 2025 at 7:02 PM
Sometimes I think doctors need to hear this. The amount of MALS patients who are treated poorly by doctors is still too high. Being told your illness doesn't exist or that the pain isn't real doesn't help the patient. It just makes them feel worse about their own circumstances.
Often, we are our own harshest critics, setting high expectations for ourselves. Yet, we readily offer compassion and understanding to others when they need it. It's important to give yourself that same kindness. Taking time for yourself is perfectly acceptable.
November 30, 2025 at 7:02 PM
Often, we are our own harshest critics, setting high expectations for ourselves. Yet, we readily offer compassion and understanding to others when they need it. It's important to give yourself that same kindness. Taking time for yourself is perfectly acceptable.
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
The link can also be found on our get involved page on our website.
November 29, 2025 at 7:01 PM
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
The link can also be found on our get involved page on our website.
Scars are a complicated topic in our community. Some find them inspiring while others prefer to hide them.
How do you feel about your scars?
Plain Text:
Your scars are someone else's hope
How do you feel about your scars?
Plain Text:
Your scars are someone else's hope
November 28, 2025 at 7:01 PM
Scars are a complicated topic in our community. Some find them inspiring while others prefer to hide them.
How do you feel about your scars?
Plain Text:
Your scars are someone else's hope
How do you feel about your scars?
Plain Text:
Your scars are someone else's hope
Happy Thanksgiving! We hope you are able to enjoy your day with your friends and/or family today.
Do what you need to do today for both your mental and physical health. Your health is the most important thing.
Do what you need to do today for both your mental and physical health. Your health is the most important thing.
November 27, 2025 at 7:08 PM
Happy Thanksgiving! We hope you are able to enjoy your day with your friends and/or family today.
Do what you need to do today for both your mental and physical health. Your health is the most important thing.
Do what you need to do today for both your mental and physical health. Your health is the most important thing.
As we ramp up into the hectic holiday season make sure you give yourself time to rest.
Plain text:
Allow yourself time to rest.
Plain text:
Allow yourself time to rest.
November 25, 2025 at 7:04 PM
As we ramp up into the hectic holiday season make sure you give yourself time to rest.
Plain text:
Allow yourself time to rest.
Plain text:
Allow yourself time to rest.
I enjoy a good cuddle with my cats and documentary or TV show. Do you have a favorite show you watch on your worst days?
Plain Text:
Self Care Sunday, How do you unwind?
Plain Text:
Self Care Sunday, How do you unwind?
November 23, 2025 at 7:00 PM
I enjoy a good cuddle with my cats and documentary or TV show. Do you have a favorite show you watch on your worst days?
Plain Text:
Self Care Sunday, How do you unwind?
Plain Text:
Self Care Sunday, How do you unwind?
How you talk about yourself matters. Remember to be kind to yourself.
Plain Text:
Alternatives to “I did nothing today”
- I rested
- I listened to my body
- I prioritized myself
- I watched my favorite show/movie
- Spoonie Things
Plain Text:
Alternatives to “I did nothing today”
- I rested
- I listened to my body
- I prioritized myself
- I watched my favorite show/movie
- Spoonie Things
November 22, 2025 at 7:01 PM
How you talk about yourself matters. Remember to be kind to yourself.
Plain Text:
Alternatives to “I did nothing today”
- I rested
- I listened to my body
- I prioritized myself
- I watched my favorite show/movie
- Spoonie Things
Plain Text:
Alternatives to “I did nothing today”
- I rested
- I listened to my body
- I prioritized myself
- I watched my favorite show/movie
- Spoonie Things
It's Self Care Sunday, have you done anything for yourself today?
November 16, 2025 at 7:01 PM
It's Self Care Sunday, have you done anything for yourself today?
What win did you have today?
I got out of bed and fed my kitties. -Laura
Plain Text:
Celebrate every win no matter how small.
I got out of bed and fed my kitties. -Laura
Plain Text:
Celebrate every win no matter how small.
November 15, 2025 at 7:01 PM
What win did you have today?
I got out of bed and fed my kitties. -Laura
Plain Text:
Celebrate every win no matter how small.
I got out of bed and fed my kitties. -Laura
Plain Text:
Celebrate every win no matter how small.
What things have you normalized with MALS?
Having safe foods is something I still talk about and find normal but when I mention it to other people I find myself having to explain what that means. - Laura
Having safe foods is something I still talk about and find normal but when I mention it to other people I find myself having to explain what that means. - Laura
November 13, 2025 at 7:02 PM
What things have you normalized with MALS?
Having safe foods is something I still talk about and find normal but when I mention it to other people I find myself having to explain what that means. - Laura
Having safe foods is something I still talk about and find normal but when I mention it to other people I find myself having to explain what that means. - Laura
MALS can make you feel like you've lost yourself. Your mental health is important and it's important to be kind to yourself.
Plain Text: Be Kind to Yourself
Plain Text: Be Kind to Yourself
November 11, 2025 at 7:06 PM
MALS can make you feel like you've lost yourself. Your mental health is important and it's important to be kind to yourself.
Plain Text: Be Kind to Yourself
Plain Text: Be Kind to Yourself
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
The link can also be found on our get involved page on our website.
November 9, 2025 at 8:19 PM
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can also be found on our get involved page on our website.
The link can also be found on our get involved page on our website.
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can be found on our get involved page on our website.
The link can be found on our get involved page on our website.
November 9, 2025 at 7:00 PM
We are starting our prep for Awareness Day earlier than ever this year. With the amount of submissions we received last year we wanted to streamline the process a bit.
The link can be found on our get involved page on our website.
The link can be found on our get involved page on our website.
How do you feel about your life now versus before your MALS symptoms came into your life? MALS patients often say they are in survival mode versus truly living their lives.
May 28, 2025 at 11:01 PM
How do you feel about your life now versus before your MALS symptoms came into your life? MALS patients often say they are in survival mode versus truly living their lives.
There’s never a shortage of inspiring stories from the brave people who have served our country! Their stories and sacrifices should be honored today. If you or someone you love has a story they would like to share about their service, we would love to hear it.
May 26, 2025 at 11:01 PM
There’s never a shortage of inspiring stories from the brave people who have served our country! Their stories and sacrifices should be honored today. If you or someone you love has a story they would like to share about their service, we would love to hear it.
Today is Motivation Monday! It is a national day to encourage people. We know MALS can be difficult and that it can affect your mental health. We hope you find something to do today that will bring you joy. We are always here for you and see your strength.
May 23, 2025 at 11:01 PM
Today is Motivation Monday! It is a national day to encourage people. We know MALS can be difficult and that it can affect your mental health. We hope you find something to do today that will bring you joy. We are always here for you and see your strength.
Warm wishes on Family Day! We hope you get the chance to enjoy some valuable moments with your loved ones today.
We will be going live at 5 PM (EST) so come and hang out with your MALS family as we do some crafts and talk.
We will be going live at 5 PM (EST) so come and hang out with your MALS family as we do some crafts and talk.
May 15, 2025 at 6:02 PM
Warm wishes on Family Day! We hope you get the chance to enjoy some valuable moments with your loved ones today.
We will be going live at 5 PM (EST) so come and hang out with your MALS family as we do some crafts and talk.
We will be going live at 5 PM (EST) so come and hang out with your MALS family as we do some crafts and talk.
What do you consider the worst symptom of MALS?
For me it was the nausea. Which I think most people could guess because of the jokes I've made about it. But I hate being nauseous it makes me cranky and just not a good time to be around. - Laura
For me it was the nausea. Which I think most people could guess because of the jokes I've made about it. But I hate being nauseous it makes me cranky and just not a good time to be around. - Laura
May 14, 2025 at 11:01 PM
What do you consider the worst symptom of MALS?
For me it was the nausea. Which I think most people could guess because of the jokes I've made about it. But I hate being nauseous it makes me cranky and just not a good time to be around. - Laura
For me it was the nausea. Which I think most people could guess because of the jokes I've made about it. But I hate being nauseous it makes me cranky and just not a good time to be around. - Laura
No matter what side of the MALS Journey you are on, it can be challenging. We know that it can be hard to focus on yourself but we hope you can do that today.
May 11, 2025 at 11:01 PM
No matter what side of the MALS Journey you are on, it can be challenging. We know that it can be hard to focus on yourself but we hope you can do that today.