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MarieCurieEOLC

@mariecurieeolc.bsky.social

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News from Marie Curie UK for researchers, health and social care professionals and those affected by end of life care. Together we’ll ensure a better end of life for all.

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MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 5

🚨Calling researchers - Submissions for abstracts and spotlight sessions for the Marie Curie Research into Practice Conference 2026 are now open!
www.mariecurie.org.uk/research-and...

Conference submissions are open. We are welcoming abstract and spotlight session submissions for the Marie Curie Research into Practice Conference 2026.

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Reposted by MarieCurieEOLC

Sarah Stanley @sarah-stan.bsky.social · 27d

Thank you to @rcn.org.uk #DigitalNursing and #PainandPalliativeCare for inviting me to talk all things #DigitalLegacy in #PalliativeCare.

🎙️Podcast link here: on.soundcloud.com/rJSvlejkY6BX...

#hpm #hapc #DigitalHealth
@ljmuofficial.bsky.social @ljmuimpact.bsky.social @ljmudoctoral.bsky.social

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MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 21

Improving hospital discharge is one of the Top 24 JLA priorities for palliative and end of life care research - mariecurie.org.uk/blog/researc...
It is also a key part of our recent Research Grants Scheme - www.mariecurie.org.uk/research-and...

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MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 21

The government's 10 Year Health Plan for England highlights the need to shift care from hospital to community. Discharge from specialist palliative care in hospital to community services and primary care is a poorly understood transition. Yet it is a key part of the end of life experience for many.

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MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 21

Dr Katharine Weetman, Marie Curie Associate Professor Dr John MacArtney and team have recently published findings on the challenges posing current discharge processes, identifying patient experiences and highlighting suggestions for healthcare professionals, summarised below.

John MacArtney @johnmacartney.bsky.social · Aug 20

Latest paper with Katherine Weetman et al. on improving specialist palliative care discharge:
bmcpalliatcare.biomedcentral.com/articles/10....

@nihr.bsky.social @warwickmed.bsky.social @mariecurieeolc.bsky.social @mariecurieuk.bsky.social @hospiceuk.bsky.social @nhscovwarksicb.bsky.social

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Abstract

Background: Patients who have received specialist intervention during periods of complex symptom and palliative care needs (e.g. pain crisis) may be discharged from specialist palliative care services to primary care. Despite such discharges being reasonably common, little is known about what happens during this process. We sought to explore
patient, carer and healthcare professional experiences, identifying ways to improve this crucial and time-sensitive part of the healthcare journey.

Methods: A qualitative interview study designed using an interpretive approach and reflexive thematic analysis methods. Sampling was purposive across six specialist palliative care sites (hospitals and hospices) and six general practices.

Results: A total of 38 participants took part in interviews:15 patients, 8 carers and 15 primary care professionals. Two overarching key themes were developed. The first described the multiple ways that ‘discharge’ was understood depending on the setting and circumstances of the patient. The second explored what was associated with better
or worse transitions to primary care. Discharge communications that were accurate and complete were described as effective whereby written information reinforced verbal instructions and acted as a reminder. Participant suggestions for improving these discharge communications included: incorporating the patient’s palliative care preferences (e.g. advanced directives); offering letters to patients and, where appropriate, carers; providing post-discharge follow-up
and contact details; ensuring medication instructions are accessible to patients and carers.

Conclusions: Current specialist palliative care discharge communications risk confusion, distress, and increased workload post-discharge. The study identified numerous suggestions professionals could take to improve this process.

Title: Improving specialist palliative care discharges from hospitals and hospices to community settings: a qualitative interview study of the communication experiences of patients, carers, and primary care professionals

Authors: Katharine Weetman, Catherine Grimley, Cara Bailey, Celia J. Bernstein, Jeremy Dale, Aprella Fitch, Sarah Mitchell, Rumandeep Tiwana & John I. MacArtney

Journal: BMC Palliative Care, volume 24, Article number: 214 (2025)

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MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 11

The Chief Medical Officer for England’s 2023 Annual Report on Health in an Ageing Society identified that more research needs to include older people. That's why we've joined other organisations in signing a statement of intent and to take action.

Read more - www.nihr.ac.uk/news/nihr-an...

MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 5

Submissions should therefore focus on one or more of these priorities. More details on this, and how to submit, can be found on our website - www.mariecurie.org.uk/research-and...

MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 5

The conference will focus on the Top 24 Research Priorities for palliative and end of life care. These were identified through the Priority Setting Partnership between Marie Curie and the James Lind Alliance, with lived and professional experiences central to their development.

MarieCurieEOLC @mariecurieeolc.bsky.social · Aug 5

🚨Calling researchers - Submissions for abstracts and spotlight sessions for the Marie Curie Research into Practice Conference 2026 are now open!
www.mariecurie.org.uk/research-and...

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MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 31

The project explores how people feel about a proposed NHS digital tool, NU-GEST, that could help clinicians identify when someone may benefit from palliative care.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 31

Research opportunity in Scotland - An opportunity to participate in the Marie Curie-funded NU-GEST project at University of St Andrews

See more below👇
standrews.eu.qualtrics.com/jfe/form/SV_...

The image reads: Have you or a loved one experienced palliative care? We'd like to heard from you. Researchers at the University of st andrews are inviting patients are caregivers to take part in a research interview exploring views on a new NHS tool designed to support earlier access to palliative care. What's involved? A one to one interview lasting 40 to 60 minutes, online, by phone or in person. You'll receive a £20 voucher for your time.
We're looking for adults 18+ across Scotland especially from communities that may face health inequalities, who are currently receiving palliative care or are currently supporting a loved one who receives palliative care. for more information, contact eg243@st-andrews.ac.uk

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 31

The Marie Curie funded SNAP in Prisons study team seeks a part-time Research Associate to join the project at the University of East Anglia.
Further details available 👇 vacancies.uea.ac.uk/vacancies/16...

Research Associate (RA2337) in University of East Anglia | UEA

View details and apply for this Research Associate (RA2337) vacancy in University of East Anglia. Faculty of Medicine and Health Sciences School of Health Sciences Research Associate Ref: RA...

vacancies.uea.ac.uk

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 17

This is open to any post-doc researcher across all disciplines and settings related to palliative and end of life care.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 17

We're looking for academics to join our new College of Peer Reviewers. Members will be invited to review applications and/or take part in review panels to feed into funding decisions to ensure Marie Curie funds the highest quality work.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 17

Are you a researcher interested in reviewing research funding applications? Join our College of Peer Reviewers!

Submit a submission of interest and find out more by visiting our website - www.mariecurie.org.uk/research-and...

Join our college of Peer Reviewers. Email research.grants@mariecurie.org.uk if you are interested.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 15

⏰Planning on applying to our next research grants scheme? You have until 21 July 23:59 to return expressions of interest.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 3

We’re delighted to announce that our Research Grants Scheme will be funded in partnership and is now open to applications.

Leeds Hospitals Charity and Royal Brompton & Harefield Hospitals Charity will be part funding the scheme with dedicated funding pots.
Applications close 21 July

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 15

These projects bring together experts to develop practical tools, training, and guidelines, improving homecare support, empowering carers, reducing unnecessary hospital admissions, and addressing the unique care needs of rare dementias.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 15

@mariecurieuk.bsky.social and @alzheimerssoc.bsky.social announce the projects awarded through our research funding partnership.

The projects aim to tackle the urgent need for better dementia-specific end-of-life care.

Find the individual projects ⬇️
www.mariecurie.org.uk/research-and...

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Reposted by MarieCurieEOLC

Marie Curie UK @mariecurieuk.bsky.social · Jul 4

“The principle is simple. Care should happen as locally as it can.”

It’s good to hear this from We Streeting (@rthonwesstreeting.bsky.social).👏 Too many terminally ill people are being rushed to hospital in a crisis because they can’t get the care they need at home.

This has to change.

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MarieCurieEOLC @mariecurieeolc.bsky.social · Jul 9

🎉Are you passionate about improving end of life care? Working in general practice?
➡️ Daffodil Standards Awards
🏅 7 categories – open to both clinical and non-clinical staff
🎁 Win free entry to the RCGP 2025 Annual Conference
📅 Deadline: 29 August 2025
🔗 Apply now: www.rcgp.org.uk/learning-res...

MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 27

Visit the toolkit -https://www.mariecurie.org.uk/research-and-policy/research/mens-shed
And if you're interested in starting a Men's Shed in your hospice, please email [email protected]

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MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 27

@johnmacartney.bsky.social and Research Nurse Rachel Perry have shown the benefits of Men's Sheds in hospices. Their funding will allow them to share their toolkit and host workshops to help hospices set up their own Men's Sheds.

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MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 27

🏅Announcing our awarded Research Impact Grants - 6/6
An essential part of the service: Increasing the impact of Hospice Men's Sheds to benefit men’s wellbeing

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MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 26

💡Check out the AMRCs annual roundup of charitable research funding. We're proud to be an AMRC charity and actively partner with other members where priorities align.

Association of Medical Research Charities @amrc-uk.bsky.social · Jun 26

Our annual infographic showcases the collective impact of our members and their incredible support for UK medical research.

AMRC charities invest in universities and the NHS, as well as supporting the R&D workforce from the earliest stages of their careers: shorturl.at/hocmR #CharityImpact

Various stats from our recent sector footprint infographic.

£1.6 billion was invested by AMRC charities in UK medical research in 2024 (pie chart showing AMRC: £1.6bn, NIHR: £1.3bn and MRC: £0.9bn.

Over 25,000 researcher salaries were funded by AMRC charities in 2024, including 9000+ early career researchers.

80% of AMRC charity research grants were awarded to UK universities in 2024.

1,212 clinical studies or trials in the UK were funded by AMRC charities in 2024.

1,216 research posts in the NHS were funded by 79 AMRC charities in 2024, including doctors, nurses and midwives.

MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 25

Previous research from Lynne Hughes and Louisa Dreja from Marie Curie, in partnership with the Terrence Higgins Trust, identified experiences and challenges for end of life planning and care for people with HIV.
www.mariecurie.org.uk/research-and...

MarieCurieEOLC @mariecurieeolc.bsky.social · Jun 25

🏅Announcing our awarded Research Impact Grants - 5/6
Palliative and End of Life Care and Support for people living with HIV.
The aim of this project is to engage the HIV community to produce tailored resources to help them understand their options, such as support with advanced care planning.

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