The Massachusetts ME/CFS and FM Association
LightNews LightNews
banner
massmecfs.bsky.social
The Massachusetts ME/CFS and FM Association
@massmecfs.bsky.social
150 followers 150 following 37 posts
To improve the lives of all people affected by ME/CFS, Fibromyalgia, Long COVID, and other Infection-Associated Chronic
Conditions and Illnesses (IACCIs) through advancing awareness, care, treatment and research.

https://www.massmecfs.org
Posts Replies Media Videos
massmecfs.bsky.social
This weekend, Zoom with us! Join our Sunday Community Conversations meeting all about Disability. The program is free, and all are welcome.
Details here: form.jotform.com/243518011897...
#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #disabilty #disabilityawareness
November 12, 2025 at 2:10 PM
massmecfs.bsky.social
November Newsletter: Events, news, and updates
massme.monkeypod.io/mailcoach/we...

#massmecfs #MyalgicEncephalomyelitis #chronicfatigue #longcovid #fibromyalgia #MECFS
November 7, 2025 at 4:13 PM
massmecfs.bsky.social
Watch now! The recording is available for our 2025 Annual Meeting featuring MIT Research Scientist, Beth Pollack.
www.youtube.com/watch?v=15WR...

#massmecfs #mecfsreseach #longcovidreseach #chronicillnessresearch #invisibleillnessresearch
November 7, 2025 at 4:12 PM
massmecfs.bsky.social
November Newsletter: Events, news, and updates
massme.monkeypod.io/mailcoach/we...

#massmecfs #MyalgicEncephalomyelitis #chronicfatigue #longcovid #fibromyalgia #MECFS
November 7, 2025 at 4:06 PM
massmecfs.bsky.social
Our Wellness Workshop is open to residents of Massachusetts.
We meet monthly on Tuesdays from 3:00-4:30pm ET. Please join us!
Full details here: form.jotform.com/253006012968...

#massmecfs #MyalgicEncephalomyelitis #chronicfatigue #fibromyalgia #LongCOVID #chronicillness #pots #dysautonomia
October 29, 2025 at 2:08 PM
massmecfs.bsky.social
Our Wellness Workshop is open to residents of Massachusetts.
We meet monthly on Tuesdays from 3:00-4:30pm ET. Please join us!
Full details here: form.jotform.com/253006012968...

#massmecfs #MyalgicEncephalomyelitis #chronicfatigue #fibromyalgia #LongCOVID #chronicillness #pots #dysautonomia
October 29, 2025 at 1:53 PM
massmecfs.bsky.social
Registration is now open for our 2025 Annual Meeting with MIT Research Scientist, Beth Pollack!
massmecfs.org/events/annua...

#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #chronicfatigue #longcovid #invisibleillness
October 6, 2025 at 7:16 PM
massmecfs.bsky.social
We are so happy to announce that we will have Beth Pollack as our guest speaker for our Annual Meeting! Details coming soon!
MassMECFS.org
September 26, 2025 at 2:20 PM
massmecfs.bsky.social
Latest news, MassME events, research studies and more...
massmecfs.org/resources/ne...

#massmecfs #MyalgicEncephalomyelitis #MECFS #fibromyalgia #longcovid #chronicfatigue #chronicillness #invisibledisablity
September 12, 2025 at 6:36 PM
massmecfs.bsky.social
MassME: A Home Base for People Affected By ME/CFS
Explore our August Newsletter
massmecfs.org/resources/ne...
#massmecfs #MyalgicEncephalomyelitis #chronicfatigue #longcovid #fibromylagia
August 8, 2025 at 9:07 PM
massmecfs.bsky.social
Today is Severe ME Awareness Day

We see you. We know your suffering. We are here for you.

massmecfs.org

#massmecfs #MyalgicEncephalomyelitis #mecfsawareness #SevereME #SevereMECFS #severemeday #severemecfs
August 8, 2025 at 9:06 PM
massmecfs.bsky.social
It's hot but we're not gonna stop! Check out the latest news:
massme.monkeypod.io/mailcoach/we...

#massmecfs #MECFS #fibromyalgia #longcovid #invisibleillness
July 14, 2025 at 2:26 PM
massmecfs.bsky.social
Our Spring Fundraiser culminates this Sunday at the Waterfront 5K Run/Walk/Roll.
We need your help to reach our goal! If you haven't yet donated, please do so today. Thank you!

donate.hakuapp.com/donations/ne...

#massmecfs #mccourtfoundation #bostonwaterfront5k #chronicfatigue #mecfsawareness
June 13, 2025 at 2:07 PM
massmecfs.bsky.social
Newsletter time! Check it out! 📰👀
massmecfs.org/resources/ne...

#massmecfs #chronicfatigue #MyalgicEncephalomyelitis #fibromyalgia #longcovid #chronicillness
June 11, 2025 at 3:44 PM
massmecfs.bsky.social
1/2 We are excited to launch our new website today, marking International ME Awareness Day. You will find us in the same place — massmecfs.org — with a fresh new look and easier navigation to the information, resources, events, and services you need. Let us know what you think!
May 12, 2025 at 8:52 PM
massmecfs.bsky.social
MassMe has again arranged for several bridges in MA to be illuminated in blue on May 12.
Boston, Cambridge-> the Zakim & Longfellow Bridges. Worcester->the Burns Bridge, Quincy->the Fore River Bridge Be sure to tag us @massmecfs if you post a photograph!
#WorldMEDay #MEcfs
May 12, 2025 at 3:45 PM
massmecfs.bsky.social
Happy to share BHC's incredible work!
@bateman_horne_center has launched the Clinical Care Guide for ME/CFS, Long COVID, and IACCs—a practical, evidence-based resource for healthcare providers.
May 12, 2025 at 3:04 PM
massmecfs.bsky.social
Register Now for Sunday Conversations: "Twisted Connections: The Dynamic Relationship of ME/CFS & Hypermobile Ehlers-Danlos Syndrome" 4/27 @ 4pm EST. Program is free and open to all.

www.massmecfs.org/news-events/...
#massmecfs #MECFS #chronicfatigue #ehlersdanlos #ehlersdanlossyndromeawareness
April 21, 2025 at 3:43 PM
massmecfs.bsky.social
It’s newsletter time and we have it all: Events, Advocacy, News, and more!
massme.monkeypod.io/mailcoach/we...
#massmecfs #MECFS #chronicfatigue #fibromyalgia #longcovid #chronicillness
April 21, 2025 at 3:40 PM
massmecfs.bsky.social
We are here for you.
massmecfs.org
March 24, 2025 at 3:33 PM
massmecfs.bsky.social
Today is International Long COVID Awareness Day. Please take a moment to watch this video from the Long COVID Physio group.
www.youtube.com/watch?v=dmxp...
Long COVID and ME/CFS share many of the same symptoms. To all the patients and caregivers, we see you.
#mecfs #longcovid #longcovidawareness
March 15, 2025 at 2:34 PM
massmecfs.bsky.social
Long COVID and ME/CFS have so much in common. We see you!

#massmecfs #MECFS #chronicfatigue #longcovid #longcovidawareness #longcovidawarenessday
March 15, 2025 at 2:31 PM
massmecfs.bsky.social
Catch up on all the news: Events, advocacy Long COVID awareness & more
Copy and paste or click the link in our profile:
massme.monkeypod.io/mailcoach/we... #massmecfs #LongCovid
March 14, 2025 at 4:09 PM
massmecfs.bsky.social
*Important: Schedule Change for our Gen Z/Millennial Wellness Workshop* The group will now meet on Saturday 3/15 and 4/12 at 10:30am ET. This is a free program open to MA residents.
www.massmecfs.org/news-events/...

#massmecfs #MECFS #fibromyalgia #chronicillness #longcovid #chroniclyme
March 4, 2025 at 7:46 PM
massmecfs.bsky.social
New England Meetup for those with ME and chronic illness. Registration is ongoing, Join us! www.massmecfs.org/news-events/...
#massmecfs #MyalgicEncephalomyelitis #chronicfatiguesyndome #invisibleillness #pots #longcovid #fibromyalgia
March 4, 2025 at 7:46 PM