#MEAction Network
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meactnet.bsky.social
#MEAction Network
@meactnet.bsky.social
A global network of people empowering one another to fight for equity for myalgic encephalomyelitis. Home of the #MillionsMissing linktr.ee/meactnet

#pwME #MyalgicEncephalomyelitis #LongCovid #MECFS #ChronicIllness #DisabilityJustice
"The ability to have telehealth available through Medicare is especially important to me. For those of us with chronic illness and aging issues as well, it is extremely challenging to have enough energy to travel to doctor's appointments." Cindy

Thanks to our community members for sharing!
January 23, 2026 at 8:11 PM
Being able to access telehealth for people with ME/CFS and Long COVID is crucial.

"Without telehealth I would not be able to get any healthcare at all. I have severe ME and am mostly bedridden. With telehealth, I can regularly check in with both my ME specialist and my PCP..."
Kris Biffle Rudin
January 23, 2026 at 8:11 PM
The bill is now headed to the Senate for a vote before the Jan. 30th deadline.

Thank you to everyone who called their members to urge them to support telehealth extensions for Medicare. You can still call your Senator and ask them to support the telehealth. www.congress.gov/members/find...
www.congress.gov
January 23, 2026 at 8:11 PM
January 20, 2026 at 9:24 PM
January 15, 2026 at 3:22 PM
As the new year begins, there is so much to do to support and protect our communities, and we are rolling up our sleeves for this fight. We are in this together.
January 13, 2026 at 6:31 PM
This week, we will be contacting the winners of the (50) Visible bands and The We Should All Be Birds and Grief is Love books! Our hope is to continue to do more of these giveaways throughout the year.
January 13, 2026 at 6:31 PM
And as part of our campaign, we have fun rewards! We need to find joy wherever we can!

SAVE THE DATE: We will be holding our Keep the Light Gathering to come together as a community on Sunday, Feb. 1st. Stay tuned!

We will be announcing a date for the next Marisa Renee Lee workshop very soon!
January 13, 2026 at 6:31 PM