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mogadsucks.bsky.social
mogmogomgom
@mogadsucks.bsky.social
Transverse Myelitis #TM, Neuro Myelitis Optica Spectrum Disorder #NMOSD #NMO, Myelin Oligodendrocyte Glycoprotein Antibody-associated disease #MOGad #MOG

Dealing with #nervepain #spasticity #fatigue

Music & Sneaker enthusiast
Pinned
Welp, looking to hear from people with #TM #NMO #MOG #MOGad #MS experiences to deal with #nervepain #fatigue #spasticity #nystagmus #PTSD

I will share my personal experiences* as well

*Disclaimer: Things that worked, or not, FOR ME, so do it at your own risk or talk to your doctors before
Me last week on ER

Nike Air Max 1 Anniversary Aqua

#TM #NMO #MOGad
November 20, 2024 at 7:05 AM
#Depression is a symptom derived from neurological disorders. I was on cloud #9, we were expecting a baby and just got a great promotion. Life was great and out of nowhere, I could not even walk, pain and spasm took over and my former neurologist put me on so many meds I was knocked out

⏬ thread ⏬
November 20, 2024 at 5:57 AM
... and always, ALWAYS, for any new symptom lasting 24 hours, call your Neurologist asap -or whoever is your specialist- and let them know about it. If you feel things are getting worse go to ER, let them know about your condition and what is going on, it can make a huge difference in your status
November 20, 2024 at 3:25 AM
The next thing is, if you feel you are not being listened, look for someone else. In my case, it was like night and day. I went from an old school neurologist who was only giving me more and more pain meds instead of going to the root of the problem, to work with two of the best specialist in the US
November 20, 2024 at 3:18 AM
The first and best advise I can give for anybody with a neurological disorder is to look for an specialist in your disorder to get a proper diagnosis and the best treatment

For #MOG #NMO #TM #MS #Lupus and many others, you can use the #SRNA medical network to find a specialist that may help you
Medical Professional Network
Find a medical professional specialized in rare neuroimmune disorders (ADEM, AFM, MOGAD, NMOSD, ON, and TM) in your area.
wearesrna.org
November 20, 2024 at 3:11 AM
Welp, looking to hear from people with #TM #NMO #MOG #MOGad #MS experiences to deal with #nervepain #fatigue #spasticity #nystagmus #PTSD

I will share my personal experiences* as well

*Disclaimer: Things that worked, or not, FOR ME, so do it at your own risk or talk to your doctors before
November 20, 2024 at 2:47 AM