Myeloma Patients Europe
@myelomaeurope.bsky.social
A network of highly efficient, effective and sustainable myeloma and AL amyloidosis patient organisations across Europe
Are you getting the most out of your appointments?
Keeping a simple diary can help you communicate what really matters. Note symptoms when they happen. Try keeping a notebook or notes app and at your next appointment, you'll have a great conversation.
#WellnessWednesday
Keeping a simple diary can help you communicate what really matters. Note symptoms when they happen. Try keeping a notebook or notes app and at your next appointment, you'll have a great conversation.
#WellnessWednesday
January 28, 2026 at 3:04 PM
Are you getting the most out of your appointments?
Keeping a simple diary can help you communicate what really matters. Note symptoms when they happen. Try keeping a notebook or notes app and at your next appointment, you'll have a great conversation.
#WellnessWednesday
Keeping a simple diary can help you communicate what really matters. Note symptoms when they happen. Try keeping a notebook or notes app and at your next appointment, you'll have a great conversation.
#WellnessWednesday
#TreatmentTuesdays
The inMMyCAR study introduces KLN1010, a novel "in vivo" CAR T-cell therapy that targets BCMA without the need for cell collection & manufacturing. Dr. Phoebe Joy Ho, speaking at #ASH2025 shares promising early results.
Learn more
The inMMyCAR study introduces KLN1010, a novel "in vivo" CAR T-cell therapy that targets BCMA without the need for cell collection & manufacturing. Dr. Phoebe Joy Ho, speaking at #ASH2025 shares promising early results.
Learn more
Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.
f.mtr.cool
January 27, 2026 at 12:32 PM
#TreatmentTuesdays
The inMMyCAR study introduces KLN1010, a novel "in vivo" CAR T-cell therapy that targets BCMA without the need for cell collection & manufacturing. Dr. Phoebe Joy Ho, speaking at #ASH2025 shares promising early results.
Learn more
The inMMyCAR study introduces KLN1010, a novel "in vivo" CAR T-cell therapy that targets BCMA without the need for cell collection & manufacturing. Dr. Phoebe Joy Ho, speaking at #ASH2025 shares promising early results.
Learn more
#MyelomaMonday
Minimal residual disease (MRD) testing is becoming important for measuring the effectiveness of treatment. It can detect tiny amounts of myeloma cells that standard tests might miss.
Learn more https://f.mtr.cool/zgfrnovtpe
Minimal residual disease (MRD) testing is becoming important for measuring the effectiveness of treatment. It can detect tiny amounts of myeloma cells that standard tests might miss.
Learn more https://f.mtr.cool/zgfrnovtpe
January 26, 2026 at 11:32 AM
#MyelomaMonday
Minimal residual disease (MRD) testing is becoming important for measuring the effectiveness of treatment. It can detect tiny amounts of myeloma cells that standard tests might miss.
Learn more https://f.mtr.cool/zgfrnovtpe
Minimal residual disease (MRD) testing is becoming important for measuring the effectiveness of treatment. It can detect tiny amounts of myeloma cells that standard tests might miss.
Learn more https://f.mtr.cool/zgfrnovtpe
How are those New Year's resolutions going? Don't be hard on yourself if you're finding it difficult!
Forget rigid resolutions. Living with myeloma or AL amyloidosis may mean adapting to how you feel each day. Try setting healthy habits. What can you do for yourself this week?
#WellnessWednesday
Forget rigid resolutions. Living with myeloma or AL amyloidosis may mean adapting to how you feel each day. Try setting healthy habits. What can you do for yourself this week?
#WellnessWednesday
January 21, 2026 at 1:03 PM
How are those New Year's resolutions going? Don't be hard on yourself if you're finding it difficult!
Forget rigid resolutions. Living with myeloma or AL amyloidosis may mean adapting to how you feel each day. Try setting healthy habits. What can you do for yourself this week?
#WellnessWednesday
Forget rigid resolutions. Living with myeloma or AL amyloidosis may mean adapting to how you feel each day. Try setting healthy habits. What can you do for yourself this week?
#WellnessWednesday
Highlights from #ASH2025
Dr. Charlotte Pawlyn explains the MajesTEC-3 trial. This showed unprecedented benefits when teclistamab combined with daratumumab is used earlier in the myeloma treatment pathway.
https://f.mtr.cool/lijbryefdl
#TreatmentTuesday #Myeloma
Dr. Charlotte Pawlyn explains the MajesTEC-3 trial. This showed unprecedented benefits when teclistamab combined with daratumumab is used earlier in the myeloma treatment pathway.
https://f.mtr.cool/lijbryefdl
#TreatmentTuesday #Myeloma
Enjoy the videos and music that you love, upload original content and share it all with friends, family and the world on YouTube.
f.mtr.cool
January 20, 2026 at 12:31 PM
Highlights from #ASH2025
Dr. Charlotte Pawlyn explains the MajesTEC-3 trial. This showed unprecedented benefits when teclistamab combined with daratumumab is used earlier in the myeloma treatment pathway.
https://f.mtr.cool/lijbryefdl
#TreatmentTuesday #Myeloma
Dr. Charlotte Pawlyn explains the MajesTEC-3 trial. This showed unprecedented benefits when teclistamab combined with daratumumab is used earlier in the myeloma treatment pathway.
https://f.mtr.cool/lijbryefdl
#TreatmentTuesday #Myeloma
Smouldering myeloma is an early form of myeloma that usually progresses over time.
Because it's often asymptomatic, it's typically discovered by chance through blood tests. So it's important to get regular blood tests!
https://f.mtr.cool/dvxpwtgdsl
#MyelomaMonday
Because it's often asymptomatic, it's typically discovered by chance through blood tests. So it's important to get regular blood tests!
https://f.mtr.cool/dvxpwtgdsl
#MyelomaMonday
January 19, 2026 at 12:31 PM
Smouldering myeloma is an early form of myeloma that usually progresses over time.
Because it's often asymptomatic, it's typically discovered by chance through blood tests. So it's important to get regular blood tests!
https://f.mtr.cool/dvxpwtgdsl
#MyelomaMonday
Because it's often asymptomatic, it's typically discovered by chance through blood tests. So it's important to get regular blood tests!
https://f.mtr.cool/dvxpwtgdsl
#MyelomaMonday
#WellnessWednesday
Living with myeloma means bones can be more fragile, so preventing falls is important. Strong, stable ankles help keep you steady on your feet. Try gentle exercises, which help with this – always check with your medical team first.
#FallsPrevention #Myeloma
Living with myeloma means bones can be more fragile, so preventing falls is important. Strong, stable ankles help keep you steady on your feet. Try gentle exercises, which help with this – always check with your medical team first.
#FallsPrevention #Myeloma
January 14, 2026 at 12:31 PM
#WellnessWednesday
Living with myeloma means bones can be more fragile, so preventing falls is important. Strong, stable ankles help keep you steady on your feet. Try gentle exercises, which help with this – always check with your medical team first.
#FallsPrevention #Myeloma
Living with myeloma means bones can be more fragile, so preventing falls is important. Strong, stable ankles help keep you steady on your feet. Try gentle exercises, which help with this – always check with your medical team first.
#FallsPrevention #Myeloma
At #ASH2025 we interviewed some of the world's leading researchers and clinicians on studies in bispecific antibodies, CAR-T therapy, personalised treatment approaches and more
Each Tuesday, we'll be sharing these expert video explanations of key myeloma research as part of #TreatmentTuesday
Each Tuesday, we'll be sharing these expert video explanations of key myeloma research as part of #TreatmentTuesday
January 13, 2026 at 2:30 PM
At #ASH2025 we interviewed some of the world's leading researchers and clinicians on studies in bispecific antibodies, CAR-T therapy, personalised treatment approaches and more
Each Tuesday, we'll be sharing these expert video explanations of key myeloma research as part of #TreatmentTuesday
Each Tuesday, we'll be sharing these expert video explanations of key myeloma research as part of #TreatmentTuesday
#MyelomaMonday - Approximately 10–15% of myeloma patients will develop AL amyloidosis.
Find out more in our guide to AL amyloidosis https://www.mpeurope.org/wp-content/uploads/2023/01/AL-amyloidosis-Patients-Guide.pdf
Find out more in our guide to AL amyloidosis https://www.mpeurope.org/wp-content/uploads/2023/01/AL-amyloidosis-Patients-Guide.pdf
January 12, 2026 at 2:31 PM
#MyelomaMonday - Approximately 10–15% of myeloma patients will develop AL amyloidosis.
Find out more in our guide to AL amyloidosis https://www.mpeurope.org/wp-content/uploads/2023/01/AL-amyloidosis-Patients-Guide.pdf
Find out more in our guide to AL amyloidosis https://www.mpeurope.org/wp-content/uploads/2023/01/AL-amyloidosis-Patients-Guide.pdf
If you are experiencing neuropathy from treatment, cold weather can worsen symptoms. Try to keep hands and feet warm with quality gloves, thermal socks, and appropriate footwear. Take care on icy surfaces, as neuropathy can also affect balance.
Share your personal tips
#WellnessWednesday #myeloma
Share your personal tips
#WellnessWednesday #myeloma
January 7, 2026 at 11:15 AM
If you are experiencing neuropathy from treatment, cold weather can worsen symptoms. Try to keep hands and feet warm with quality gloves, thermal socks, and appropriate footwear. Take care on icy surfaces, as neuropathy can also affect balance.
Share your personal tips
#WellnessWednesday #myeloma
Share your personal tips
#WellnessWednesday #myeloma
Join our webinar on #ASH25 #myeloma highlights!
To summarise the most important myeloma updates presented at the @ash.hematology.org Annual Meeting, MPE will hold a webinar on Wednesday, 17 Dec, given by Dr. H. Einsele (University Hospital Würzburg)
Register now! 👇
www.mpeurope.org/mpe-webinar-...
To summarise the most important myeloma updates presented at the @ash.hematology.org Annual Meeting, MPE will hold a webinar on Wednesday, 17 Dec, given by Dr. H. Einsele (University Hospital Würzburg)
Register now! 👇
www.mpeurope.org/mpe-webinar-...
MPE webinar on ASH 2025 myeloma highlights
Join this webinar to lear more about the most important myeloma updates presented at the American Society of Hematology (ASH) Annual Congress 2025.
www.mpeurope.org
December 15, 2025 at 11:15 AM
Join our webinar on #ASH25 #myeloma highlights!
To summarise the most important myeloma updates presented at the @ash.hematology.org Annual Meeting, MPE will hold a webinar on Wednesday, 17 Dec, given by Dr. H. Einsele (University Hospital Würzburg)
Register now! 👇
www.mpeurope.org/mpe-webinar-...
To summarise the most important myeloma updates presented at the @ash.hematology.org Annual Meeting, MPE will hold a webinar on Wednesday, 17 Dec, given by Dr. H. Einsele (University Hospital Würzburg)
Register now! 👇
www.mpeurope.org/mpe-webinar-...
Probably the most important data in #myeloma was presented today #ASH25. @_DrCP explains in this video the main results of #majestec3 trial looking at the combination of daratumumab and teclistamab in #RRMM
youtu.be/LEFWII_tnsc?...
youtu.be/LEFWII_tnsc?...
ASH25 | Majestec-3 trial
YouTube video by Myeloma Patients Europe
youtu.be
December 9, 2025 at 2:54 PM
Probably the most important data in #myeloma was presented today #ASH25. @_DrCP explains in this video the main results of #majestec3 trial looking at the combination of daratumumab and teclistamab in #RRMM
youtu.be/LEFWII_tnsc?...
youtu.be/LEFWII_tnsc?...
The first #myeloma late breaking abstract was just presented at #ASH25! Interesting data of inMMyCAR study with a novel "in vivo" #CART. Watch this interview with the lead author of trial, Dr. Phoebe Joy Ho, Royal Prince Alfred Hospital, Sydney, Australia.
youtu.be/gNdz4GN-fM4
youtu.be/gNdz4GN-fM4
ASH 2025 | inMMyCAR trial
YouTube video by Myeloma Patients Europe
youtu.be
December 9, 2025 at 12:49 PM
The first #myeloma late breaking abstract was just presented at #ASH25! Interesting data of inMMyCAR study with a novel "in vivo" #CART. Watch this interview with the lead author of trial, Dr. Phoebe Joy Ho, Royal Prince Alfred Hospital, Sydney, Australia.
youtu.be/gNdz4GN-fM4
youtu.be/gNdz4GN-fM4
New trial dual-targeting #CART therapy for #myeloma has positive results! The Durga-1 trial evaluates safety and efficacy of AZD0120, a BCMA/CD19 dual-targeting CAR T-cell therapy. Watch Dr. Shambavi Richard, explain more here 👇#ASH25 @ash.hematology.org
www.youtube.com/watch?v=8H9o...
www.youtube.com/watch?v=8H9o...
ASH 2025 | DURGA 1 trial
YouTube video by Myeloma Patients Europe
www.youtube.com
December 8, 2025 at 6:20 PM
New trial dual-targeting #CART therapy for #myeloma has positive results! The Durga-1 trial evaluates safety and efficacy of AZD0120, a BCMA/CD19 dual-targeting CAR T-cell therapy. Watch Dr. Shambavi Richard, explain more here 👇#ASH25 @ash.hematology.org
www.youtube.com/watch?v=8H9o...
www.youtube.com/watch?v=8H9o...
The NoMoreMGUS study was presented today at #ASH25. 5,000 people with #MGUS were enrolled in this Spanish study to better understand who may progress and how to improve monitoring.
Watch the key results explained by Bruno Paiva, Clínica Universidad de Navarra, Spain.
www.youtube.com/watch?v=ORkR...
Watch the key results explained by Bruno Paiva, Clínica Universidad de Navarra, Spain.
www.youtube.com/watch?v=ORkR...
ASH 2025 | NoMoreMGUS
YouTube video by Myeloma Patients Europe
www.youtube.com
December 7, 2025 at 6:47 PM
The NoMoreMGUS study was presented today at #ASH25. 5,000 people with #MGUS were enrolled in this Spanish study to better understand who may progress and how to improve monitoring.
Watch the key results explained by Bruno Paiva, Clínica Universidad de Navarra, Spain.
www.youtube.com/watch?v=ORkR...
Watch the key results explained by Bruno Paiva, Clínica Universidad de Navarra, Spain.
www.youtube.com/watch?v=ORkR...
Yesterday at #ASH25 we heard data from the GEM-CESAR trial, studying early rescue treatment with daratumumab, pomalidomide and dexamethasone in high-risk smoldering #myeloma.
Watch the key results explained by Bruno Paiva (Clínica Universidad de Navarra).
youtu.be/jDoP3xCL8IE?...
Watch the key results explained by Bruno Paiva (Clínica Universidad de Navarra).
youtu.be/jDoP3xCL8IE?...
ASH 2025 | GEM-CESAR trial
YouTube video by Myeloma Patients Europe
youtu.be
December 7, 2025 at 3:48 PM
Yesterday at #ASH25 we heard data from the GEM-CESAR trial, studying early rescue treatment with daratumumab, pomalidomide and dexamethasone in high-risk smoldering #myeloma.
Watch the key results explained by Bruno Paiva (Clínica Universidad de Navarra).
youtu.be/jDoP3xCL8IE?...
Watch the key results explained by Bruno Paiva (Clínica Universidad de Navarra).
youtu.be/jDoP3xCL8IE?...
Iberdomide is a CELMoD drug being explored in #myeloma. Niels Van De Donk highlighted @emnmyeloma.bsky.social #EMN26 Phase 2 data on use as a post transplant maintenance therapy in NDMM.
#ASH25
#ASH25
December 6, 2025 at 6:44 PM
Iberdomide is a CELMoD drug being explored in #myeloma. Niels Van De Donk highlighted @emnmyeloma.bsky.social #EMN26 Phase 2 data on use as a post transplant maintenance therapy in NDMM.
#ASH25
#ASH25
MPE starts #ASH2025 by presenting APCL Cares, a comprehensive psychosocial support programme developed by the Portuguese Association Against Leukaemia (APCL).
December 5, 2025 at 2:20 PM
MPE starts #ASH2025 by presenting APCL Cares, a comprehensive psychosocial support programme developed by the Portuguese Association Against Leukaemia (APCL).
MPE is attending the @ash.hematology.org annual congress in Orlando, Florida. Over the next few days, we will follow the key updates in #myeloma and #ALamyloidosis and speak with leading experts to understand what they mean for patients.
#ASH25
#ASH25
December 5, 2025 at 1:29 PM
MPE is attending the @ash.hematology.org annual congress in Orlando, Florida. Over the next few days, we will follow the key updates in #myeloma and #ALamyloidosis and speak with leading experts to understand what they mean for patients.
#ASH25
#ASH25