Natalie Banner
@nataliebanner.bsky.social
I work on all things trust, ethics, engagement and equity on genomics and health data use in research and healthcare. Director of Ethics at Genomics England. Also filed under: Queer, hiker, sci-fi bookworm, neurodiversity ally.
Brilliant to see this article out about the detailed, thoughtful process of designing and co-creating a consent process for our #newbornscreening #genomics research study @genomicsengland.bsky.social tl;dr it's about much more than a consent form! karger.com/phg/article/...
Co-Creating the Experience of Consent for Newborn Genome Sequencing: The Generation Study
Abstract. Introduction: The Generation Study (GS) aims to recruit 100,000 newborns in England to evaluate the utility and feasibility of using whole genome sequencing to screen for rare conditions tha...
karger.com
December 4, 2024 at 11:36 AM
Brilliant to see this article out about the detailed, thoughtful process of designing and co-creating a consent process for our #newbornscreening #genomics research study @genomicsengland.bsky.social tl;dr it's about much more than a consent form! karger.com/phg/article/...
Wonderful to see this important & ambitious work from @who.int come to fruition - guidance for human #genomics #data use founded on strong #ethics principles shared across cultures & countries 🧬 No easy feat! www.who.int/publications...
Guidance for human genome data collection, access, use and sharing
The WHO’s new document outlines a comprehensive set of globally applicable principles designed to guide stakeholders in the responsible collection, use, and sharing of human genome data. This document...
www.who.int
November 21, 2024 at 8:34 AM
Wonderful to see this important & ambitious work from @who.int come to fruition - guidance for human #genomics #data use founded on strong #ethics principles shared across cultures & countries 🧬 No easy feat! www.who.int/publications...
Seriously thought-provoking @infocommission.bsky.social event this evening. Powerful personal stories of what privacy means to people - and how protections around data can impact lives in profound ways, both positive and negative. Happy 40th Birthday ICO!🎂 #OurLivesOurPrivacy
November 19, 2024 at 10:17 PM
Seriously thought-provoking @infocommission.bsky.social event this evening. Powerful personal stories of what privacy means to people - and how protections around data can impact lives in profound ways, both positive and negative. Happy 40th Birthday ICO!🎂 #OurLivesOurPrivacy
Cats + bookshelves seems like a popular Venn diagram here: meet the highly effective furry alarm clocks. Yes, they are judging you #catsofbluesky
November 18, 2024 at 6:00 PM
Cats + bookshelves seems like a popular Venn diagram here: meet the highly effective furry alarm clocks. Yes, they are judging you #catsofbluesky
Well hello world! 👋My, the sky certainly does seem clearer and brighter over on this side. Looking forward to rediscovering the joy, insight and sense of connection in hanging out in an online space with interesting people🌤 #bluesky
November 15, 2024 at 12:20 PM
Well hello world! 👋My, the sky certainly does seem clearer and brighter over on this side. Looking forward to rediscovering the joy, insight and sense of connection in hanging out in an online space with interesting people🌤 #bluesky