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NativeBio Data Consortium @nativebio.bsky.social · 1d

First Public News that we are aware of regarding the Assembly of First Nation's decision to challenge the whole country of Canada and their questionable actions around Precision Medicine. genomecanada.ca/afn-resoluti...

AFN resolution on genomic data sovereignty - GenomeCanada

Genome Canada welcomes the opportunity to strengthen dialogue and coordination with the Assembly of First Nations (AFN) and other Indigenous leaders following the adoption of Resolution #11 at the AFN...

genomecanada.ca

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NativeBio Data Consortium @nativebio.bsky.social · 1d

Take a look. NativeBio's mission is to protect all Indigenous resources...human, non-human, man-made, natural, products of irresponsible pollution or new biological interactions due to capital extraction and migration. They all belong to Native peoples. www.thegef.org/what-we-do/t...

Biodiversity Beyond National Jurisdiction

www.thegef.org

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Reposted by NativeBio Data Consortium

Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 2d

Indigenous Data Sovereignty is a human right. It represents the future economic viability and political power needed for more basic components of culture, spirituality and land-based occupation/residence to continue unadulterated by the West. Stop labeling Indigenous Professionals as unethical.

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NativeBio Data Consortium @nativebio.bsky.social · 5d

We see the Beautiful Artwork of American Indian Science and Engineering Society (AISES). We hope they appreciate the artwork and #IDSov work of Native BioData Consortium

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NativeBio Data Consortium @nativebio.bsky.social · 6d

This is just in, Joseph Yracheta has been invited to be the keynote speaker at the University of Idaho's Biennial Tribal Summit. The title of his talk will be the "Data and Tribal Economies: Securing Our Cultural Future Through Sovereignty"

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NativeBio Data Consortium @nativebio.bsky.social · 6d

Indigenous Data Sovereignty is so important it's on everyone's lips at #AISES! Even the Cheyenne River Sioux Nation Chairman was up on stage talking about the future of research, data control, sovereignty & economics! I also met the famous Muscogee Geneticist, Dr. John Burnett! #IDSOV is survival.

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NativeBio Data Consortium @nativebio.bsky.social · 6d

Native Bio and their project (and partners) @d4itdr.bsky.social knocking it out of the park #AISES Dr. Kali Dale, Rebecca Dickinson (both Ojibwe) and Sakiah Perez (Borikua) demonstrating how our vision of a National Tribal Data Repository would work!

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NativeBio Data Consortium @nativebio.bsky.social · 8d

www.iccaconsortium.org/2025/09/12/r...

ICCA Consortium

Recap: Conversation on Indigenous knowledge, Artificial Intelligence, and funding and financing for territories of life

www.iccaconsortium.org

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Jul 30

When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

D4I Tribal Data Repository - How Data Sharing Systems Work

YouTube video by D4I TDR

youtu.be

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Jul 31

Dynamic consent can promote Tribal sovereignty, this video provides an overview of different informed consent types. youtu.be/_4j8kKh4Zjc?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Consent

D4I Tribal Data Repository - Informed, Broad, and Dynamic Consent in Indigenous Based Research

YouTube video by D4I TDR

youtu.be

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 1

This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)

D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations

YouTube video by D4I TDR

youtu.be

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 13

Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat...

#EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 15

Come check out our website! d4itdr.org/were-in-our-...

We’re in our IDSov Era: Explore Our New Video Resources on Indigenous Data Sovereignty | D4I Tribal Data Repository

d4itdr.org

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

#DataSovereignty #Indigenous #IDSov #Tribal #Data #CDE #definitions (3/3)

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

CDEs provide a way to standardize collected data, ensuring the type & format of data are consistent across projects/sites/studies/trials. This approach minimizes variability between studies. Reusing this data helps future studies & reduce research costs. Learn more at cde.nlm.nih.gov/home (2/3)

NIH Common Data Elements (CDE) Repository

Repository of Common Data Elements (CDE) and Protocol Forms. Search CDEs. Search Protocol Forms.

cde.nlm.nih.gov

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

What is a Common Data Element (CDE)? And why do we care about them?

CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 29

Do you have any questions or thoughts about our work? Feel free to contact us at [email protected]

#DataSovereignty #Indigenous #IDSov #Tribal #Data

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Sep 3

Have you ever thought about what Tribal derived data is and the big questions surrounding its use? youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty #Research

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Sep 8

#DataSovereignty #Indigenous #IDSov #Tribal #Conference #ASHG2025 #ASHG

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · 28d

We uphold Indigenous Data Sovereignty in our repository work youtu.be/twp6lABlTM8?...

#DataSovereignty #Indigenous #IDSov #Data #videoseries #TribalSovereignty

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · 26d

We also consulted with Tribal partners to discuss how Tribes can leverage sovereignty to get their data, an ongoing conversation we are always happy to engage in. (2/2)

#DataSovereignty #Indigenous #IDSov #Data #TribalSovereignty

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · 26d

Two weeks ago the D4I team visited the unceded territories of the Coast Salish peoples in the Pacific Northwest Coast. Here our team discussed data sovereignty with the Urban Indian Health Institute director, Abigail Echo Hawk. (1/2)

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Reposted by NativeBio Data Consortium

Krystal Tsosie @kstsosie.bsky.social · 19d

When Indigenous peoples build our own #Tribal #data repositories, we self-direct #health #research & create #education resources to train next-gen of #Indigenous science

From PhD student, Karina Hernandez-Hernandez (P’urhépecha) it is “hope-giving” news.asu.edu/20250917-sci...
@d4itdr.bsky.social

Professor creates 'a safe harbor' for Indigenous data | ASU News

Among Indigenous populations in the U.S., there is a history of personal data being used without consent. Now, a new digital repository hopes to change both who benefits from biomedical data and who g...

news.asu.edu

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · 19d

Ever wonder what IDSov and related topics could look like as a music album?

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Reposted by NativeBio Data Consortium

Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 16d

3/n I applaud Canada for this decades long project of healing. But healing is nothing without economic, political and health restoration. The passing of Bill C5 seems very anti-thetical to Truth and Reconciliation. First Nations (and the Latin American Indigenous

Lunch and Learns – Truth and Reconciliation Week

trw-svr.nctr.ca

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