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NativeBio Data Consortium @nativebio.bsky.social · 7m

BioResource rules need to help! "The task now is to ensure that the Treaty doesn’t just become a tool to justify & propel economic exploitation while only including clauses related to IPLCs as tokens of inclusivity by making them guests in their own house." journals.law.harvard.edu/hrj/2023/10/...

Common Heritage of Mankind at the Expense of Indigenous People’s Rights? BBNJ Treaty and Beyond – Harvard Human Rights Journal

journals.law.harvard.edu

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NativeBio Data Consortium @nativebio.bsky.social · 16m

If you're a data nerd and Indigenous, don't wait! Submit a presentation abstract for USIDSN's April Summit in Tucson, AZ. It was blockbuster in 2024, it portends to be mind-blowing in 2026! Deadline is Oct 30th, 2025. s2.goeshow.com/usidsn/summi...

Abstract Submission

s2.goeshow.com

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NativeBio Data Consortium @nativebio.bsky.social · 31m

We love promoting Indigenous success and our native relatives all over the world when they find true freedom! “[Poor health has to do with] the clear link between chronic disease & the history of colonisation and systemic racism from which this disadvantage grew." www.thelancet.com/journals/lan...

Alex Brown: fighting for the health of Indigenous Australians

There are stark health differentials between Indigenous and non-Indigenous Australians. Aboriginal and Torres Strait Islander people live 10 years less than the national average—15 years less for thos...

www.thelancet.com

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Reposted by NativeBio Data Consortium

Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 13d

DNA #WildWest & you all will be feeling like Indigenous of the Americas soon. You’ll soon realize that these companies stole from you & weaponized your data against your whole family & ethnic group. Direct to Market like Ancestry or NIH you need to protect your data. www.linkedin.com/feed/update/...

#web3 #ai #genomics #informedconsent #biodataownership #bionfts #desci #patientrights #blockchain #ethicsinai #precisionmedicine #digitalrights #biowallet | Daniel Uribe, MBA 🧬🔗🔐

The Uncomfortable Truth About Your Informed Consent & Biosamples in the Era of AI & Web3 Dear Biosample dependent company, we need to talk…. Most probably, YOUR consent forms are stuck in Web2 while...

www.linkedin.com

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Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 13d

Had this conversation w/ a staff member this morning. There is the Barker Hypothesis, Blue Zones, the Mexican health paradox, the Exposome, the microbiome, the proteome & Social Determinants of Health that all have had better predictions on health than genetics. www.sciencedirect.com/science/arti...

Language improves health and wellbeing in Indigenous communities: A scoping review

Indigenous languages in Australia, Canada, New Zealand and the United States are endangered due to colonial policies which promote English language do…

www.sciencedirect.com

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Reposted by NativeBio Data Consortium

Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 13d

1/3 There are at least 3 types of erasure via data 1) Data not collected because we’re too small a population, we don’t matter to economics or politicians and/or lumped with OTHER groups 2) Data is collected and is either not used, ignored or used to avoid accountability and action & lastly

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Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 3d

Indigenous Data sovereignty is the key. We told you a long time ago that #opendataistheft and dangerous because bad actors often look professional and rational

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Alondra Nelson @alondra.bsky.social · 16d

Appreciate these insights from @emollick.bsky.social.

But the "wizard problem" isn't that AI is too opaque. It's that we're designing systems that hide their processes. We could build AI that shows its work, explains, and lets us intervene. Instead we're choosing black boxes and calling it magic.

Miles Riven @rivenbydesign.bsky.social · 22d

Mollick argues we are drifting from co-intelligence to wizards. Strong results, opaque steps. I try to ask for receipts and name what must stay in my hands. Worth reading for #AI practice.
www.oneusefulthing.org/p/on-working... #Writing

On Working with Wizards

Verifying magic on the jagged frontier

www.oneusefulthing.org

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Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 3d

Yes Joseph Yracheta, famous in Viking mythology and other prophetic texts will be speaking over the digital pacifier on Wednesday

NISO @nisoinfo.bsky.social · 3d

This Wed. Oct, 8: Join Jane Anderson (@localcontexts.bsky.social) @joseph-yracheta.bsky.social @kvrouwen.bsky.social & @1nativesoilnerd.bsky.social for a discussion of Data Governance & Indigenous Sovereignty w/moderator Melissa Stoner. Free for NISO members: niso.org/events/data-...

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NativeBio Data Consortium @nativebio.bsky.social · 2d

First Public News that we are aware of regarding the Assembly of First Nation's decision to challenge the whole country of Canada and their questionable actions around Precision Medicine. genomecanada.ca/afn-resoluti...

AFN resolution on genomic data sovereignty - GenomeCanada

Genome Canada welcomes the opportunity to strengthen dialogue and coordination with the Assembly of First Nations (AFN) and other Indigenous leaders following the adoption of Resolution #11 at the AFN...

genomecanada.ca

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NativeBio Data Consortium @nativebio.bsky.social · 2d

Take a look. NativeBio's mission is to protect all Indigenous resources...human, non-human, man-made, natural, products of irresponsible pollution or new biological interactions due to capital extraction and migration. They all belong to Native peoples. www.thegef.org/what-we-do/t...

Biodiversity Beyond National Jurisdiction

www.thegef.org

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Joe Yracheta (A ∩ & ∪ Ω) @joseph-yracheta.bsky.social · 3d

Indigenous Data Sovereignty is a human right. It represents the future economic viability and political power needed for more basic components of culture, spirituality and land-based occupation/residence to continue unadulterated by the West. Stop labeling Indigenous Professionals as unethical.

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NativeBio Data Consortium @nativebio.bsky.social · 6d

We see the Beautiful Artwork of American Indian Science and Engineering Society (AISES). We hope they appreciate the artwork and #IDSov work of Native BioData Consortium

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NativeBio Data Consortium @nativebio.bsky.social · 7d

This is just in, Joseph Yracheta has been invited to be the keynote speaker at the University of Idaho's Biennial Tribal Summit. The title of his talk will be the "Data and Tribal Economies: Securing Our Cultural Future Through Sovereignty"

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NativeBio Data Consortium @nativebio.bsky.social · 7d

Indigenous Data Sovereignty is so important it's on everyone's lips at #AISES! Even the Cheyenne River Sioux Nation Chairman was up on stage talking about the future of research, data control, sovereignty & economics! I also met the famous Muscogee Geneticist, Dr. John Burnett! #IDSOV is survival.

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NativeBio Data Consortium @nativebio.bsky.social · 7d

Native Bio and their project (and partners) @d4itdr.bsky.social knocking it out of the park #AISES Dr. Kali Dale, Rebecca Dickinson (both Ojibwe) and Sakiah Perez (Borikua) demonstrating how our vision of a National Tribal Data Repository would work!

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NativeBio Data Consortium @nativebio.bsky.social · 8d

www.iccaconsortium.org/2025/09/12/r...

ICCA Consortium

Recap: Conversation on Indigenous knowledge, Artificial Intelligence, and funding and financing for territories of life

www.iccaconsortium.org

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Jul 30

When looking for data management solutions, Tribes can consider different models. In this video, D4I provides summaries of decentralized, federated, and centralized data systems. youtu.be/RNvNqoAXSGo?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty

D4I Tribal Data Repository - How Data Sharing Systems Work

YouTube video by D4I TDR

youtu.be

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Jul 31

Dynamic consent can promote Tribal sovereignty, this video provides an overview of different informed consent types. youtu.be/_4j8kKh4Zjc?...

#Datasovereignty #Indigenous #IDSov #Data #TribalSovereignty #Consent

D4I Tribal Data Repository - Informed, Broad, and Dynamic Consent in Indigenous Based Research

YouTube video by D4I TDR

youtu.be

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 1

This video provides an intro to data transfer, ownership, and use agreements (DTOUA) as one way to form mutually respectful collaborations with Tribal Nations that recognizes their legal authority, autonomy, and sovereignty to self-direct research partnerships with Tribal citizens in research (1/2)

D4I Tribal Data Repository - Research Contracts and Partnerships with Tribal Nations

YouTube video by D4I TDR

youtu.be

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 13

Are you an educator? Want to teach about data sovereignty? Look no further, we have an educational video series explaining several topics of Indigenous Data Sovereignty! youtube.com/@d4itdr?feat...

#EducationVideos #DataSovereignty #NativeEducators #Indigenous #IDSov

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 15

Come check out our website! d4itdr.org/were-in-our-...

We’re in our IDSov Era: Explore Our New Video Resources on Indigenous Data Sovereignty | D4I Tribal Data Repository

d4itdr.org

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

#DataSovereignty #Indigenous #IDSov #Tribal #Data #CDE #definitions (3/3)

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d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

CDEs provide a way to standardize collected data, ensuring the type & format of data are consistent across projects/sites/studies/trials. This approach minimizes variability between studies. Reusing this data helps future studies & reduce research costs. Learn more at cde.nlm.nih.gov/home (2/3)

NIH Common Data Elements (CDE) Repository

Repository of Common Data Elements (CDE) and Protocol Forms. Search CDEs. Search Protocol Forms.

cde.nlm.nih.gov

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Reposted by NativeBio Data Consortium

d4itdr.bsky.social @d4itdr.bsky.social · Aug 22

What is a Common Data Element (CDE)? And why do we care about them?

CDEs are a type of health data standard that is commonly used and reused both in clinical and research settings. (1/3)

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