New: People across the political spectrum really don't want Medicaid to be cut. And, it's personal: 53% of people say they or a family member has been covered by Medicaid at some point.
www.kff.org/medicaid/pol...

There are 2 types of genetic tests– newborn screening & diagnostic testing. Oliver had both. Newborn screening missed his #cystinosis. Once he became sick the diagnostic test found it. Lifesaving treatment began a year into his disease progression, though the damage already done is permanent.

"I am Oliver’s Aunt and #Medicaid is important to me because it provides life saving medicine and support to Oliver to help him live a normal life and thrive!" 

@jordynshields12

"I am Oliver’s Auntie B/Uncle B/Uncle Bug and #Medicaid is important to me because it gives Oliver the support he needs to have a chance at life."

@baily_syring

#SaveMedicaid #MedicaidMatters #IamMedicaid #WeAreMedicaid #MedicaidWorks #ProtectOurCare

Change starts with understanding; both the odds and Oliver. To show what is going on with him, and how he moves through the world: this monthly article series aims to share great sources, while breaking down the big ideas. Lets start with May– #Cystinosis: A Review. https://f.mtr.cool/jnvrybhujv

Did you know #Cystinosis was a fatal disease and is now a treatable disorder with a life expectancy beyond 50 years?  Read More from the National Library of Medicine ⬇️⬇️

Did you know #Cystinosis is a genetic disorder where the amino acid, cystine, builds up in cells, damaging them. This causes crystals to form, affecting organs and tissues, especially the kidneys and eyes.