nicholsclaudia.bsky.social
@nicholsclaudia.bsky.social
Reposted
New: People across the political spectrum really don't want Medicaid to be cut. And, it's personal: 53% of people say they or a family member has been covered by Medicaid at some point.
www.kff.org/medicaid/pol...
March 7, 2025 at 2:44 PM
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There are 2 types of genetic tests– newborn screening & diagnostic testing. Oliver had both. Newborn screening missed his #cystinosis. Once he became sick the diagnostic test found it. Lifesaving treatment began a year into his disease progression, though the damage already done is permanent.
May 8, 2025 at 5:01 PM
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"I am Oliver’s Aunt and #Medicaid is important to me because it provides life saving medicine and support to Oliver to help him live a normal life and thrive!" 

@jordynshields12
May 13, 2025 at 3:01 PM
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"I am Oliver’s Auntie B/Uncle B/Uncle Bug and #Medicaid is important to me because it gives Oliver the support he needs to have a chance at life."

@baily_syring

#SaveMedicaid #MedicaidMatters #IamMedicaid #WeAreMedicaid #MedicaidWorks #ProtectOurCare
May 13, 2025 at 3:14 PM
Reposted
Change starts with understanding; both the odds and Oliver. To show what is going on with him, and how he moves through the world: this monthly article series aims to share great sources, while breaking down the big ideas. Lets start with May– #Cystinosis: A Review. https://f.mtr.cool/jnvrybhujv
May 1, 2025 at 1:02 PM
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Did you know #Cystinosis was a fatal disease and is now a treatable disorder with a life expectancy beyond 50 years?  Read More from the National Library of Medicine ⬇️⬇️
Cystinosis: the evolution of a treatable disease
Cystinosis is a rare autosomal recessive disorder involving lysosomal storage of the amino acid cystine due to a defect in the membrane transport protein, cystinosin. Since the introduction of kidney transplants and the availability of ...
f.mtr.cool
April 29, 2025 at 8:02 PM
Reposted
Did you know #Cystinosis is a genetic disorder where the amino acid, cystine, builds up in cells, damaging them. This causes crystals to form, affecting organs and tissues, especially the kidneys and eyes.
April 29, 2025 at 4:54 PM