Nuwuzoho
@nuwuzoho.bsky.social
Former athlete taken down by covid
Here for research & discussion about #longcovid #POTS #MCAS and related conditions
Trying to work my way out of the pain cave
Here for research & discussion about #longcovid #POTS #MCAS and related conditions
Trying to work my way out of the pain cave
The supplement graveyard 🪦
July 13, 2025 at 11:22 AM
The supplement graveyard 🪦
Did he try yoga though??
March 18, 2025 at 8:12 PM
Did he try yoga though??
Do you agree with the percentages? What’s your experience? #pwME #longcovid #POTS #MCAS #mecfs #pwLC #chronicillness
March 4, 2025 at 1:31 PM
Do you agree with the percentages? What’s your experience? #pwME #longcovid #POTS #MCAS #mecfs #pwLC #chronicillness
I once had a sports med doctor push my sacroiliac joints back into place and it was amazing. Def a hEDS thing for me
February 27, 2025 at 5:34 PM
I once had a sports med doctor push my sacroiliac joints back into place and it was amazing. Def a hEDS thing for me
Only in the context of Washington DC! Statehood now
February 11, 2025 at 12:13 AM
Only in the context of Washington DC! Statehood now
And then come the suggestions to try Tylenol, or a tens unit, or CBD. You think I haven’t tried those things? What’s going on is so far and beyond those interventions
February 5, 2025 at 4:44 PM
And then come the suggestions to try Tylenol, or a tens unit, or CBD. You think I haven’t tried those things? What’s going on is so far and beyond those interventions
And it’s in your whole body, for over a year continuously. Also, your joints are painfully popping out of place from hyper mobility.
Super fun, super normal
Super fun, super normal
February 5, 2025 at 4:43 PM
And it’s in your whole body, for over a year continuously. Also, your joints are painfully popping out of place from hyper mobility.
Super fun, super normal
Super fun, super normal
Gotta throw the apples harder
January 26, 2025 at 11:12 AM
Gotta throw the apples harder
Idk probably the unending physical agony, but idk lol
December 23, 2024 at 1:30 PM
Idk probably the unending physical agony, but idk lol
I bought one of those lactic acid meters and my levels were normal even when it feels like
I’m completely filled with lactic acid. It makes no sense. But nothing with this disease does
I’m completely filled with lactic acid. It makes no sense. But nothing with this disease does
December 21, 2024 at 10:26 PM
I bought one of those lactic acid meters and my levels were normal even when it feels like
I’m completely filled with lactic acid. It makes no sense. But nothing with this disease does
I’m completely filled with lactic acid. It makes no sense. But nothing with this disease does
I’ve been having 1 per day, but maybe I need some more. Good advice! I feel like if I could address the dysautonomia I would be significantly closer to healed…
December 21, 2024 at 9:51 PM
I’ve been having 1 per day, but maybe I need some more. Good advice! I feel like if I could address the dysautonomia I would be significantly closer to healed…
How much sodium are you taking per day? I keep upping mine but it’s not enough to make a difference to blood volume I think. Gonna try fludrocortisone soon
December 21, 2024 at 9:16 PM
How much sodium are you taking per day? I keep upping mine but it’s not enough to make a difference to blood volume I think. Gonna try fludrocortisone soon
I fall into the venous pooling category. Even my electrocardiologisr seemed to have no knowledge of different types of POTS. He prescribed ivabradine which was very unhelpful for me. Maybe better for the other type.
December 21, 2024 at 7:49 PM
I fall into the venous pooling category. Even my electrocardiologisr seemed to have no knowledge of different types of POTS. He prescribed ivabradine which was very unhelpful for me. Maybe better for the other type.
I swear I used to be hot and hemodynamically stable!
December 21, 2024 at 12:18 AM
I swear I used to be hot and hemodynamically stable!
Rolling away in my rollater at top speed
December 18, 2024 at 1:10 AM
Rolling away in my rollater at top speed