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phaware®

@phaware.bsky.social

39 followers 16 following 65 posts

Help make the 🌎 #phaware. Pulmonary hypertension (PH) is a rare, life-threatening disease of the lungs that can lead to right heart failure. 💜💙💚🧡❤️ Phaware Global Association is a 501c3 [email protected] www.phaware.global. www.phawarepodcast.com

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phaware® @phaware.bsky.social · Jan 6

Thank you Feedspot for naming I'm Aware That I'm Rare: the @phaware.bsky.social podcast the #1 "Best Pulmonary Hypertension Podcast You Must Follow in 2025!" ranked by relevancy, authority, social media follows and freshness. Like, Follow, Subscribe: www.phawarepodcast.com

phaware® @phaware.bsky.social · 1d

The Face of Addiction Isn’t Who You Think It Is. Dr. Nicholas Kolaitis reveals how building trust with meth associated-PAH patients can lead to incredible turnarounds. @phaware.bsky.social podcast ep 541 #phawareMD @JNJInnovMed @UCSFHospitals @LungTxptMD medium.com/@phaware/im-...

I’m Aware That I’m Rare: Nicholas Kolaitis, MD (541)

the phaware® interview

phaware® @phaware.bsky.social · 8d

How Stigma Blocks Meth-PAH Treatment and How to Stop It. Dr. Peter Leary explains how a change in mindset, language, and compassion can transform outcomes for a neglected and growing patient population. @phaware.bsky.social podcast ep 540 #Meth @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Peter Leary, MD (540)

the phaware® interview

phaware® @phaware.bsky.social · 15d

Dr. Vinicio de Jesus Perez discusses The Hidden Epidemic: Meth and PH and the need for compassionate, stigma-free screening. @phaware.bsky.social podcast ep 539 @PHatStanford @Viniciodjperez #MA-PAH #Methamphetamine @JNJInnovMed phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Vinicio de Jesus Perez, MD (539)

the phaware® interview

phaware.medium.com

phaware® @phaware.bsky.social · 22d

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, challenging misconceptions and the need for compassion in treating both PAH and addiction. @phaware.bsky.social podcast ep 538 #phawareMD @teamphhope.bsky.social @JNJInnovMed oembed.libsyn.com/embed?item_i...

Episode 538 - John Kingrey, MD

Dr. John Kingrey exposes the rising crisis of meth-associated pulmonary hypertension, a condition spreading fast across the U.S. He challenges misconceptions, highlights urgent research, and stresses ...

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phaware® @phaware.bsky.social · 29d

Dr. Kari Gillmeyer discussed PH care networks. She explores why so many patients experience delays, how geography and provider access play a role, and what can be done to improve timeliness of care. @phaware.bsky.social podcast ep 537 VABostonHC @The_BMC @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Kari Gillmeyer, MD, MSC (537)

the phaware® interview

phaware® @phaware.bsky.social · Sep 2

When Eric Borstein collapsed in 2020, doctors gave him just months to live. Now, he’s leading a movement, walking 200 miles down the California coast to prove hope has no limits. @phaware.bsky.social podcast ep 536 @teamphhope.bsky.social @DJLisaFoxx medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Eric Borstein (536)

the phaware® interview

phaware® @phaware.bsky.social · Aug 26

Akshay Muralidhar, MD discusses the importance of having specialized centers for pulmonary hypertension, underserved communities, meth use and PH, and the need for outreach programs for patients battling PH. @phaware.bsky.social podcast ep 535 #phawareMD @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Akshay Muralidhar, MD (535)

the phaware® interview

phaware® @phaware.bsky.social · Aug 19

Dr. Raj Parikh discusses building on foundational pathways with treatment options for PAH patients, the value of clinical trials, and the importance of a good doctor/patient relationship. @phaware.bsky.social podcast ep 534 #phawareMD @HartfordHealthC @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Raj, Parikh, MD (534)

the phaware® interview

phaware® @phaware.bsky.social · Aug 12

Dr. Robert Frantz breaks down the key metrics behind risk stratification: functional class, six-min walk distance, brain natriuretic peptide levels and how they shape treatment plans. @phaware.bsky.social podcast ep 533 @mayoclinic.org @teamphhope.bsky.social @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Robert Frantz, MD (533)

the phaware® interview

phaware® @phaware.bsky.social · Aug 5

ICU & You: What Happens When Pulmonary Hypertension Turns Critical? Dr. Jean Elwing breaks down what patients and families can expect when someone with PH ends up in the ICU. @phaware.bsky.social podcast ep 532 #phawareMD @uc_health @ElwingJean @accpchest.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jean M. Elwing, MD (532)

the phaware® interview

phaware® @phaware.bsky.social · Jul 29

Dr. John Granton discusses the evolution of lung preservation methods, the challenges of chronic rejection, and the hope for longer-lasting transplants. @phaware.bsky.social podcast ep 531 @UHN @teamphhope.bsky.social #phawareMD #PHILD #transplant @phacanada #PAH medium.com/p/im-aware-t...

I’m Aware That I’m Rare: John Granton, MD (531)

the phaware® interview

phaware® @phaware.bsky.social · Jul 22

Drs. Victor Test, Deborah Levine and Rodolfo Estrada discuss CHEST’s First 5 Minutes® program, which builds patient trust in the first 5 minutes of a visit. @phaware podcast ep 530 #phawareMD @accpchest.bsky.social @uthealthsa.bsky.social @PHatStanford @redraiderpulmcc medium.com/p/im-aware-t...

I’m Aware That I’m Rare: First 5 Minutes Care Team (530)

the phaware® interview

phaware® @phaware.bsky.social · Jul 15

University of Washington's Dr. Tijana Milinic and Lia Barros, DNP take a deep dive into the world of pulmonary arterial hypertension (PAH) clinical trials and discuss why diversity and inclusion matter. @phaware.bsky.social podcast ep 529 @uwepidemiology.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Tijana Milinic, MD & Lia Barros, DPN (529)

the phaware® interview

phaware® @phaware.bsky.social · Jul 8

Lana Melendres-Groves dives into racial and ethnic disparities in PAH treatment. She explores how systemic barriers impact care and what steps can be taken to ensure equity and inclusivity in PAH management.
@phaware.bsky.social podcast ep 528
@unmhsc.bsky.social phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Lana Melendres-Groves, MD (528)

the phaware® interview

phaware.medium.com

phaware® @phaware.bsky.social · Jul 1

Roham Zamanian, MD discusses the concept of disease modification in the treatment of pulmonary hypertension and the potential for treatments to impact the underlying disease process. @phaware.bsky.social podcast ep 516 #phawareMD @PHatStanford @docroham @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Roham Zamanian, MD, FCCP (527)

the phaware® interview

phaware® @phaware.bsky.social · Jun 24

When you introduce patients into committees and trials, you drive designs forward. You enable what patients regard as important to be at the forefront of all the work you do. PH patient, Hall Skaara @phaware.bsky.social podcast 526 @europePHA @Hall_Skaara @JNJInnovMed medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Hall Skaara (526)

the phaware® interview

phaware® @phaware.bsky.social · Jun 17

Cardiologist Dr. Lisa Mielniczuk on one of the most common — yet misunderstood — forms of pulmonary hypertension: the kind caused by left heart disease. @phaware.bsky.social podcast ep 525 #phawareMD @MayoClinic @PHACanada @teamphhope.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Lisa Mielniczuk, MD (525)

the phaware® interview

phaware® @phaware.bsky.social · Jun 10

Dr. Jason Weatherald explains how your everyday clinic visits can help shape the future of pulmonary hypertension treatment. @phaware.bsky.social podcast ep 524 @phacanada #phawareMD @teamphhope @albertaphdoc.bsky.social @ualberta.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jason Weatherald, MD (524)

the phaware® interview

phaware® @phaware.bsky.social · Jun 3

Dr. Rodolfo Estrada discusses the technology and clinical development behind YUTREPIA™ (treprostinil) inhalation powder and why it might be a good option for some PAH and PH-ILD patients. @phaware.bsky.social re podcast ep 523 @Liquidia_Corp @uthealthsa.bsky.social medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Rodolfo A Estrada, MD (523)

the phaware® interview

phaware® @phaware.bsky.social · May 26

Dr. Marc Simon discusses diagnosing pulmonary hypertension. His insights help clinicians refine their diagnostic approaches for better patient outcomes. @phaware.bsky.social podcast 522 #phawareMD #PHILD @Liquidia_Corp @ucsfcardiology.bsky.social @MarcSimonMD @CalThoracic medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Marc Simon, MD (522)

the phaware® interview

phaware® @phaware.bsky.social · May 19

Dr. Jean Elwing discusses groundbreaking advancements in treating pulmonary hypertension associated with interstitial lung disease. @phaware.bsky.social podcast ep 521 #phawareMD @gossamerbio.bsky.social #Pulmovant #PHOCUSstudy #PROSERAstudy medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Jean M. Elwing, MD (521)

the phaware® interview

phaware® @phaware.bsky.social · May 12

Seth Hall, MBA, RRT explores the history, benefits, and future potential of inhaled therapies, with a special focus on emerging technologies. @phaware.bsky.social are podcast ep 520 #PHILD @Liquidia_Corp #PRINTTechnology medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Seth Hall, MBA, RRT (520)

the phaware® interview

phaware® @phaware.bsky.social · May 9

We joined 32 fellow patient orgs to urge @commercegov.bsky.social to protect access to medicines. Tariffs on drugs could raise costs and decrease access for patients. Read the letter: chroniccarealliance.org/ccpa-submits... #PatientAccess #Section232 #phaware

phaware® @phaware.bsky.social · May 5

Dr. Richard Channick dives into the evolving world within pulmonary hypertension -- interstitial lung disease. Learn about what’s on the horizon. @phaware.bsky.social podcast ep 519 #phawareMD #PHILD @UCLAHealth @accpchest #Pulmovant #PHOCUSstudy #PROSERAStudy medium.com/p/im-aware-t...

I’m Aware That I’m Rare: Richard Channick, MD (519)

the phaware® interview

phaware® @phaware.bsky.social · Apr 29

Ioana Preston, MD explores the emerging field of pulmonary hypertension associated with interstitial lung disease (PH-ILD), highlighting the importance of early screening & diagnosis. @phaware.bsky.social podcast ep 518 #phawareMD #PHILD
@Liquidia_Corp phaware.medium.com/im-aware-tha...

I’m Aware That I’m Rare: Ioana Preston, MD (518)

the phaware® interview

phaware.medium.com