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PKD International @pkdinternational.bsky.social · 1d

💡 The @eurordis.bsky.social Mental Health & Wellbeing Toolkit is a comprehensive resource for people with rare and undiagnosed conditions, their care givers, and families.

🔗 Access these free resources developed by EURORDIS here: mhtoolkit.eurordis.org

#PKDInternational #RareDiseases

PKD International @pkdinternational.bsky.social · 5d

💛 Support the PKD community today – your generosity truly matters!

🔬 Fund life-changing research: Every contribution, no matter how small, brings us closer to more effective treatments.

💻 Be part of the change today: pkdinternational.org/donate

#PKDInternational #DonateForPKD

PKD International @pkdinternational.bsky.social · 7d

#PKDInternational was pleased to participate in the annual members’ meeting of #SwissPKD, which took place yesterday in Zurich.

💛We are grateful for the opportunity to contribute to these important discussions and to strengthen collaboration in support of the #PKDcommunity.

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PKD International @pkdinternational.bsky.social · 8d

🌍 Global Collaboration for a PKD-Free Future

We are proud to partner with Polycystic Kidney Disease (PKD) Charity UK, the first and only organization in the United Kingdom dedicated solely to improving the lives of people affected by Polycystic Kidney Disease.

🔗 pkdcharity.org.uk

#PKD

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PKD International @pkdinternational.bsky.social · 9d

🌍 Welcome to our global PKD family!

We’re thrilled to announce that on Friday, 26 September 2025, during its Board meeting, PKD International officially welcomed Riñón Poliquístico de México A.C. as our newest member. 🇲🇽✨

#PKD #PKDCommunity #PatientAdvocacy #GlobalCollaboration

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PKD International @pkdinternational.bsky.social · 12d

Diagnosing #ARPKD in children is challenging.

Now a urinary peptide pattern can help distinguish it from other kidney diseases 👉 theracil.eu/publications...

@theracilproject.bsky.social
#PKDInternational

Urinary peptide signature distinguishes autosomal recessive polycystic kidney disease from other causes of chronic kidney disease - TheRaCil

Burgmaier et al, Clinical Kidney Journal, May 2025.

theracil.eu

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PKD International @pkdinternational.bsky.social · 13d

🌍 At PKD International, we’re committed to amplifying key educational opportunities for our community. Don’t miss the @pkdfoundation.bsky.social webinar on the unique challenges of ADPKD for women, pregnancy & children. All info in the original post.👇💛

PKD Foundation @pkdfoundation.bsky.social · 16d

In our upcoming webinar, learn about the unique challenges ADPKD presents for women, pregnant individuals, and children.

Register today ⬇️
pkdcure-org.zoom.us/webinar/regi...

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PKD International @pkdinternational.bsky.social · 15d

🌟 Live from @theracilproject.bsky.social Annual Meeting in Strasbourg!

PKD International is represented by our President, @flaviagalletti.bsky.social, PELSI Board member, ensuring the patient voice shapes research & care for #PKD. 💛

#PKDResearch #ADPKD #ARPKD

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PKD International @pkdinternational.bsky.social · 18d

❤️ Today we celebrate 20 years of AIRP in Milan!

PKD International President @flaviagalletti.bsky.social proudly represents us at this important event, standing with AIRP to support patients, raise awareness, and advance research. 💛

#PKDInternational #PKD #ADPKD #ARPKD

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PKD International @pkdinternational.bsky.social · 19d

On September 20, 2025, at the Auditorium Testori in Milan, the event “AIRP: 20 Years of Commitment in the Fight Against Polycystic Kidney Disease, Supporting Patients” will take place.

We are proud to stand alongside AIRP in this shared mission

👉 renepolicistico.it/save-the-date

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PKD International @pkdinternational.bsky.social · 22d

💦 Staying well-hydrated is essential for those living with polycystic kidney disease (PKD). Emily Campbell, Registered Dietitian, explains that proper hydration lowers vasopressin and helps flush waste through urine.

🔗 Read the full article on @endpkd.bsky.social:
www.endpkd.ca/hydration_an...

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PKD International @pkdinternational.bsky.social · 26d

In this video, Professor Dominique Guerrot presents the DAPA-PKD study, a collaborative research effort he co-leads with Professor Emilie Cornec-Le Gall (Brest). This important study will evaluate the potential of SGLT2 inhibitors, such as dapagliflozin, in the treatment of #ADPKD.

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PKD International @pkdinternational.bsky.social · Sep 8

Researchers from the #ARegPKD registry & #TheRaCil Consortium developed a risk score for 2-month-old babies with #ARPKD to predict the likelihood of needing kidney replacement therapy early in life: bit.ly/4fUcyEU

#PKDInternational

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PKD International @pkdinternational.bsky.social · Sep 4

🌍 Today is #PKDAwarenessDay !

The global community comes together to raise awareness, share knowledge, and support one another.

Throughout September, our members across many countries are hosting events and activities to shine a light on Polycystic Kidney Disease.

#PKDInternational

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PKD International @pkdinternational.bsky.social · Sep 1

🌍 On Sept 4, the global PKD community unites for #PKDAwarenessDay to raise awareness, support patients & push research forward.

#PKDInternational #EndPKD #ADPKD #PKDResearch

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PKD International @pkdinternational.bsky.social · Aug 29

💛 Together, we can transform the future of PKD care

Polycystic Kidney Disease (PKD) affects millions of lives worldwide — but with your help, there is hope.

💻 Be part of the change today: pkdinternational.org/donate

#PKDInternational #DonateForPKD

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PKD International @pkdinternational.bsky.social · Aug 25

Eating well with PKD doesn’t have to be complicated. In this helpful blog post, Emily Campbell shares practical strategies to build healthy eating habits that last.

Read the full article by the PKD Foundation of Canada to learn how small: www.endpkd.ca/a_simple_gui...

A Simple Guide to Long-Term Healthy Eating with PKD | Kidney Nutrition

www.endpkd.ca

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PKD International @pkdinternational.bsky.social · Aug 20

🗓️ September 20, 2025

PKD International is honoured to join the celebration of the 20th anniversary of our founding member AIRP, marking two decades of dedication to the fight against polycystic kidney disease.

👉 renepolicistico.it/save-the-date

PKD International @pkdinternational.bsky.social · Aug 18

🤝🇦🇺 Proud to Partner with PKD Australia 🌏

💛 Together, we’re raising awareness and empowering individuals affected by PKD in Australia and worldwide.

#PKDInternational #ADPKD #ARPKD #PolycysticKidneyDisease #PKDResearch #PatientSupport #KidneyHealth #RareDiseases #StrongerTogether

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PKD International @pkdinternational.bsky.social · Aug 15

Did you know there’s a Mental Health & Wellbeing Toolkit created specifically for people affected by rare diseases?

This free resource, developed by EURORDIS, is designed for patients, caregivers, and professionals.

👉 mhtoolkit.eurordis.org

#PKDInternational
@eurordis.bsky.social

PKD International @pkdinternational.bsky.social · Aug 11

When living with polycystic kidney disease, knowing which fruits and vegetables to choose can make a big difference.

In this blog from the PKD Foundation of Canada, dietitian Emily Campbell shares tips to safely balance your diet: www.endpkd.ca/vegetables_a...

PKD International @pkdinternational.bsky.social · Aug 8

Supporting #PKDInternational means investing in research, education, and advocacy for people living with Polycystic Kidney Disease worldwide. Every donation, big or small, brings us closer to better treatments and real hope for the future.

💻 pkdinternational.org/donate

PKD International @pkdinternational.bsky.social · Aug 5

🤝💛 Proud to collaborate with Niervereniging Nederland

🌟 #PKDInternational is honored to partner with Niervereniging Nederland (Dutch Kidney Association), a trusted non-profit organization dedicated to supporting people living with kidney disease in the Netherlands 👇

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PKD International @pkdinternational.bsky.social · Aug 1

💛 Why Are Kidneys So Important?

Kidneys perform vital functions for our bodies: they filter toxins, regulate fluids, control blood pressure, support bone health, and aid in red blood cell production. When kidney function is impaired, it affects the whole body.

#PKDInternational

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PKD International @pkdinternational.bsky.social · Jul 29

KDIGO ADPKD Guideline: A Milestone in Genetic Kidney Diseases Why is a global guideline for ADPKD so important?

Prof. Roman Müller explains how the new KDIGO guideline marks a crucial step forward in harmonizing care for patients with #ADPKD) worldwide 👇

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